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Happy "Port Day" for Aaron

jimwins's picture
jimwins
Posts: 2066
Joined: Aug 2011

Hi Aaron,

Just wishing you good luck on your port install today.
A little awkward at first, it will soon become your friend.
It will also make great "show and tell" for the kids and
others too ;).

Hugs and positive thoughts,

Jim
DX: DLBL 4/2011, Chemo completed 10/2011, currently in remission. :)

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Aaron,
You will find the port will become your Bestest Friend when it comes to the infusions. It will feel odd at first and swollen. After a few days you will notice the swelling has gone down and you can feel the 3 little tips on top. They are in a triangle shape postion and the nurse knows where to place the needle for the chemo...right in the center. I would recommend some numbing cream to rub on it before the infusions to numb the sensation. John

Aaron's picture
Aaron
Posts: 241
Joined: Jun 2012

Thanks Jim, thanks for the encouragement. I must admit to being a bit nervous about it, I'm not sure if it's the procedure itself or the fear of chemo that's doing it. Either way, thanks again for all your kind words to me and everyone else. Everyone on this board has been so kind to me and all the other new folks that have come along recently, I surely do appreciate it. Aaron

Aaron's picture
Aaron
Posts: 241
Joined: Jun 2012

John, odd, numb and swollen is pretty much how I've felt sence my dx so this will fit in perfectly ;)

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Aaron,
I was a bit nervous myself. After getting my port put in I think then I realized all this was really happening and the road I had to travel ahead of me was for real.John

allmost60's picture
allmost60
Posts: 3172
Joined: Jul 2010

Hi Aaron,
I was nervous on "port day" also, but I'm soooooo glad I have it. Mine has been in for 2 years and hasn't given me one problem. The first few days after implant you will find it a bit tender and sore. I also knowtice that after each infusion and monthly flush it will feel tender that day, but fine the following day. I have the nurse use the numbing spray before poking it...(infusion, flush and labs) which works great for me. Best of luck today and again on Friday. Boy...Friday will be the day when your nerves are totally going to run wild on you, but it's only natural when getting the first round of chemo to feel this way. The pre-meds will help calm you down and make you drowsy..at least they do for me. The fear of not knowing how you will react is something we all experienced. You are going to do "GREAT" buddy...I just know it! Let us know how it goes today, if you feel up to it.
Prayers and positive thoughts being sent to you! Sue
(FNHL-2-3A-6/10)

Aaron's picture
Aaron
Posts: 241
Joined: Jun 2012

I'm off to be ported, I'll check back in a few hours and let y'all know how it went. One upside to this is my wife wants to dress me up as a Borg for Halloween ;)

forme's picture
forme
Posts: 1158
Joined: Aug 2010

Hi Aaron

We all get your feeling of fear. And being nervous about any medical procedure is just fine. You will do great. As others have mentioned, you may be sore for a bit, but over time you will hardly know it's there.
Sending you tons of positive good thoughts as you start this part of your new journey.

Thinking of you
Lisha

ta8631
Posts: 40
Joined: Jun 2012

Good Luck Aaron.... still trying to get used to mine i don't know if i ever will, but thankful it is there to help me along this journey :)

Aaron's picture
Aaron
Posts: 241
Joined: Jun 2012

Thanks ta, how are things going for you? I hope your doing well.

ta8631
Posts: 40
Joined: Jun 2012

Things are going well, just getting to feeling better it has been a really exhausting week :)

Aaron's picture
Aaron
Posts: 241
Joined: Jun 2012

That good, it's weird how our little ones are so sweet and understanding for about 5 minutes and then it's business as usual. Even on day one and now 5 am on day 2 I keep thInking on how you said " I feel worse from treatment than from the disease " or something to that effect. I can sure relate to that, I felt so foggy headed and drained after yesterday. Guess we have to just keep our eyes on the prize. Take care my sister in arms, we can defiantly win this war. btw if you feel inclined put up a pic of you and your family, it's always nice to see who your talking to. Stay strong my friend, Aaron

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Aaron,
Up at 5am??? Its almost 10am here on the East coast. I get up around 7am. What got you up so early or do you always rise early? Its not like we don't have something on our minds or anything to not let us sleep thru the night..Right!!!...I went thru the same thing and still at times I still do. John

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Aaron,
Up at 5am??? Its almost 10am here on the East coast. I get up around 7am. What got you up so early or do you always rise early? Its not like we don't have something on our minds or anything to not let us sleep thru the night..Right!!!...I went thru the same thing and still at times I still do. John

anliperez915's picture
anliperez915
Posts: 756
Joined: Sep 2011

Hi Aaron,
Good luck today, I didn't have to get one so can't really offer any advise but still hope that all goes well today and on Friday. Take care and keep us updated

Sincerely,
Liz

Aaron's picture
Aaron
Posts: 241
Joined: Jun 2012

Well they got it in and it wasn't bad at all. In fact the "twilight " drugs they give you are quite nice indeed. My appointment was for 11:30 and they didn't start on me until 2 . I was so hungry by the time we got out of there we went and had juevos rancheros (Seattle style) and pancakes. I ate way too much and am feeling pretty queezy right now. Worst part is I can't lay down for another 2 hours. Oh well it's in and this is all becoming very real in a big hurry. Thanks for all the good vibes y'all. Aaron

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Watcha wanna bet you won't be able to keep your hands off it ? John

Aaron's picture
Aaron
Posts: 241
Joined: Jun 2012

I don't know John, I have barely looked at it yet. They left a needle in it so the nurses won't have to "access" it on Friday. Apparently it reduces the chance of infection. 7 days of sponge baths is going to make me a bit unpopular with my family but oh well. The trick will be sleeping through the night without touching it or rolling over on it.

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

I am sure you have a gauze and bandage over it right now. Afterall they did have to put some stitches in. Are you telling me you haven't even felt the bandage and the tape quite a few times. I did not have a needle left in mine because I waited 2 weeks before I got my first chemo. Mine is on the left side.Makes me wonder why some are on the opposite side.Why not make them standard.You know,the hell with why the country is going down the tubes.Whats really important is why the ports are not on the same side,LOL. John

allmost60's picture
allmost60
Posts: 3172
Joined: Jul 2010

Hi guys,
Mine was put on the right side because my rotator cuff surgery on my left shoulder did not heal properly. I only have about 60% range of motion with my left arm, so my port surgeon didn't want to add a new problem to my left side. He said the left side is the most common place for port implant. BTW John,...I'm always touching my port...had to laugh when you said that to Aaron. Sue
Glad all went well with your port surgery Aaron. That was a good idea leaving the needle in for Friday...one less stressor to deal with! :)

Aaron's picture
Aaron
Posts: 241
Joined: Jun 2012

Hey sue, I asked for the right side so it wouldn't interfere with my golf swing and the doc agreed. And your right one less stressor on Friday is a GREAT thing, I don't think there's enough Xanax in the world for me come Friday morning ;)'

Aaron's picture
Aaron
Posts: 241
Joined: Jun 2012

btw sue, I think I remember you mentioning taking senekot to handle a " certain situation" I'm curious if you pre treated or took it after infusion or just took it all the time? Everyone else please chime on with your " tricks of the trade" as it were and any other products you may have used. Also sue, I mentioned it on another thread but I love the new pic, she is adorable.

allmost60's picture
allmost60
Posts: 3172
Joined: Jul 2010

Hey Aaron,
Actually I learned the hard way about constipation from chemo. I didn't take the Senokot soon enough, so my first week of chemo was troublesome forsure! Day 4 of my first week I finally took 2 Senokot in the a.m and then 2 more that night and bam...the next morning everything started working GREAT! Normal BM and easy to go. From that day on(Aug of 2010) I always take one a day without fail. Now... during chemo weeks I would take 2 a day for the first 7 days and then fall back to 1 after that. Be sure to ask your Onc beforehand if it's ok to take the Senokot...can't imagine you couldn't because it's all natural with no harsh chemicals in it. Thanks about the new picture...thats my seetie pie granddaughter Lizzy...14 months old. Good luck on Friday...I'll be fishing on the coast that day for summer run steelhead in the lower Columbia river, but will be home late Friday afternoon, early evening and will check in to see how you did. My prayers and positive thoughts are with you!...Sue (FNHL-2-3A-6/10)

Aaron's picture
Aaron
Posts: 241
Joined: Jun 2012

Lower Columbia, you live In washington too? I'm up here in kent where are you?

allmost60's picture
allmost60
Posts: 3172
Joined: Jul 2010

Hi Aaron,
I'm East of the Cascades in good old Yakima....the "Palm Springs" of Washington...or so the sign on I82 says...ha! What a joke...sign should read "Gang Springs"!!! If you can't tell...I'm not fond of Yakima anymore. Been here for 34 years and can't believe how bad it's gotten. Back in the late 70's and 80's it was a great place to live...not anymore! We plan on moving next year down on the Columbia River...Bingen, White Salmon, Undedrwood, Stevenson...somewhere in that general area. We vacation every year down there and have always said we will live out our final days down on the river. Steve retires Jan 1st, so we will start looking in the spring for a place to live. I haven't been to Kent, but been many times to Seattle...Mariner games, shopping,doctors etc. I love the Seattle area, but wouldn't want to live in the city. Anyways.... I be in Yakima...ha! Sue

Aaron's picture
Aaron
Posts: 241
Joined: Jun 2012

I lived all over that area when I was a kid Yakima, sunny side, wapato, grand view and prosser and a few more I can't remember from the late sixties to the mid seventies. My dad was a dj at almost every country station in that region back in those days. Have a great trip and limit out! If y'all get to this side of the mountian let me know I'd love to meet one of my new friends from the board.

Aaron's picture
Aaron
Posts: 241
Joined: Jun 2012

I lived all over that area when I was a kid Yakima, sunny side, wapato, grand view and prosser and a few more I can't remember from the late sixties to the mid seventies. My dad was a dj at almost every country station in that region back in those days. Have a great trip and limit out! If y'all get to this side of the mountian let me know I'd love to meet one of my new friends from the board.

Aaron's picture
Aaron
Posts: 241
Joined: Jun 2012

John, the irony of my port being on the right and yours on the left is not lost on me ;) and no I haven't touched it but I've looked plenty of times..... Jeez it reminds me of being a teenager.

forme's picture
forme
Posts: 1158
Joined: Aug 2010

Hi Aaron

You said it! Glad that you sailed through the port placement. I'll be getting mine sometime after surgery. I did ask why not do it at the samt time. No such luck, involves different docs and different depts. Of course...

Anyway. sorry you are queasy. Me and queasy are still trying to work out our relationship.
I now have another new anti nausea med on top of the one from a few hours ago. I am feeling a whole lot less of that yuck feeling.

We will be with you on Friday, be prepared for a long day.

((hugs))
Lisha

Aaron's picture
Aaron
Posts: 241
Joined: Jun 2012

Bless your heart! I know I'm in for a long one, thankfully my wife's going to spend the day with me. I know y'all will be with me on Friday. They said I could use my smartphone during treatment so y'all may get some play by play. I hope you know we will all be with you on tuesday . Hugs right back at ya! Aaron

forme's picture
forme
Posts: 1158
Joined: Aug 2010

I'll be on the lookout for an update. But, I also won't be surprised if there is none. The pre chemo meds may send you right off to sleepy land. many have slept right through their chemo.
Sue and I are both on west coast time. I think everyone else in east of us.
There was a gal about a year ago from Calif, like me, but have not seen her lately.
Also Sue and I are both night owls, so if you are up late looking for someone to talk with, you will usually find one or both of us.
hang in there, we are all with you.

Lisha

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 1156
Joined: May 2012

Aaron,

As a sub sailor, we always loved it when port was in view (I know, I gotta keep my day job !).

When they go to insert the special needle that is used for a port, they gave me the option of a numbing spray, which avoids any small pain, but they also told me I could take a cream home, which has similiar effects. I always just let them use the spray. Actually, I do not think that needle insertion would hurt with neither, for that matter.

A port is a great convenience, and will avoid frequent cath work in your arms.

Best of luck and go with our prayers on Friday.

They were slow and cautious on my first infusion, but it took over 7 hours (You will get three bags of med (Rituxan, dicarbazine, bleomycin), two push-pull cylinders (Adromycine "Red Devil," and Vinblastine), as well as a few fluid bags, to protect your kidneys.

Expect a lot of trips to the bathroom after the first two or three hours...

Really, except tiredness and feeling extremely bloated, I had no trouble on my first day.

Your dad played Country music on the radio ?

There is a huge hit out right now by Kelly Clarkson that has a refrain:

"Whatever doesn't kill ya makes you stronger."

max

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

I may be different in the way I feel pain,but the first time I got stuck in the port it HURT. I then went searching for some numbing cream. I made up my mind right there I was nobodys Macho Man. LOL...It did not hurt the second time,but I did feel the pressure.Like I was saying we are different in the way we feel pain. John

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 1156
Joined: May 2012

John,

I never took a needle in the port without spray, so I might have hurt as badly as you if I had. The visible part of the port is the little ball, but the ball is framed in a hard disk, and the edges of the disk are sewn into muscle tissue, to prevent it from moving around. So, it would make sense that shoving on that wuld hurt, especially before the incision had healed well.

max

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Max,
You know I never knew how it was placed. It was all explained to me beforehand ,but I was so much not with it I can't remember what they said. I knew it was sewn to something and the tube end is sewn into a main artery or vein. I don't know which.You are right it does not move at all. I know when I got home it was swollen pretty good. As time went on and everything started to go back to normal I felt the 3 little triangle nubs at the edges. The nurse does not even have to feel for them. They show up real nice. John

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