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Infiltrating Ductal Carcinoma, triple positive, Clinical Stage IIB with possible 1 node involvement

Mila45
Posts: 3
Joined: Jul 2012

Just week ago after my needle biopsy and MRI I was diagnosed with Infiltrating Ductal Carcinoma, Clinical Stage IIB. There is a possibility of nodes involvement since I have pain under my right arm and in my arm (it is swelling). I met with multidisciplinary team and they decided to go with chemo first. My IDS stage IIB-1 is grade 3 (aggressive), plus it is triple positive (ER+, PR+, Her2 3+). I was explained that in my case (Her2+) the best to start chemo first with addition of drug to treat Her2+. Also, they have scheduled a node biopsy and PET/CT scan. My only hope, the cancer has not spread in other parts of body...
Has anybody had this type of breast cancer and what was the treatment? Even though different body could react differently to therapies, what are the overall prognosis? Thank you for your support.

MAJW
Posts: 2515
Joined: May 2009

Glad you found us but hate the reason....the questions you've asked are best answered by your oncologist....no one can tell you what your prognosis is.....From my understanding triple positive Is "sort of" the opposite of what I have which is triple negative...but you have the option of taking estrogen blockers once all your treatment is over...Meaning your's is strongly driven by estrogen...plus your final pathology of your breast cancer won't be available until it is removed, ether by lumpectomy or mastectomy....Again, please address these questions to your doctor...He/she is "expert" in your particular type of bc....even though others may have your type each is unique to their own...

Hopefully some of the other ladies will chime in...this is a great group of ladies..
Keep us posted, we care..
Hugs, Nancy

Rague
Posts: 3335
Joined: Aug 2009

Can't give you any info as I'm different (IBC, ER+/PR-, HER2-). There are many IDCers here though - just takes a while for all to come on. I have seen several IDC say they had chemo first.

There is no 'one size fits all' when it comes to TX (treatment) even among those with the the same DX (diagnosis). We are each different and our Drs are different in how they want to treat. My TX was different than the others I have seen here who are IBC.

Ask questions and get as much info as you can to be armed to talk with your Drs. But do not expect to have the all same experiences that anyone else has had.

Has your Dr talked about a port?

Winyan - The Power Within

Susan

survivorbc09
Posts: 4378
Joined: Jun 2009

I had infiltrating ductal and had a lumpectomy, followed by rads, no chemo. I am also ER and PR+ and my onco wanted me on tamoxifen, but, I haven't taken it yet and probably won't. It is just my own choice to not take hormonal therapy.

I am sorry for the reason you're here, and, hope you can find the support that you need from all of us.

Hugs, Jan

Mila45
Posts: 3
Joined: Jul 2012

Yes, I have been scheduled to put port before my chemo starts.

camul's picture
camul
Posts: 2096
Joined: Dec 2010

I too have IDC, I was stage 1b, 3. ER+, pr+ her2-. I had surgery first, then chemo, reconstruction, and then hormone therapy for about 6 months. It was toxic to my system, so I was only on it for a short time. Now I am IDC, triple positive, the only real difference is I get herceptin with chemo.

As Nancy and Susan both said, each doctor treats differently, and prognosis depends on so many factors. You will find some doctors do tumor markers, some do pet scans. Mine does scans. Everything from age, medical history, tumor size, involvement in other areas and just the way the doctor does things will make a difference on treatment.

The only thing that I will add to the above, is if you are not sure get a second opinion. I love my oncologist, but still sent my file to City of Hope for a second opinion and they came back with the exact protocol that my Medical Oncologist had planned out for me! This just boosted my confidence in my doctor even further.

You came to a good group here. There is a lot of support. We are very fortunate to have some in the medical field who have been able to explain some of the terms, as well as help keep us up on new information regarding bc.

My best goes out to you. This is not easy but it is doable, and no matter how much support I have at home, it is so nice to be able to come on here and know that the men and women really do know how I feel because we have all been through it!

Hugs and prayers,
Carol

BlownAway60's picture
BlownAway60
Posts: 833
Joined: Nov 2009

As others have stated we are indeed all different and check with your onc for your particulars.

I am IDC stage 2a. ER+/PR+ and Her 2+. I had a lumpectomy, 6 rounds of chemo and 33 rads. I took Herceptin for a year for the Her 2+ and am currently taking the generic Femara for the ER+/PR+. I only had 1 lymph node removed, with only a microscopic amount of cancer found. My tumor was small but I was staged as 2a because of the lymph node involvement. Even though it was microscopic it still counts. My onc said that since the cancer in my lymph node was so small that it would be iradicated when I had all of the rads. So my rads were not just to my breast but under my arm as well. I asked my onc about reoccurance possibliity and she said becausa of all the treatments that I took and am currently taking that I have a 7-10% chance of reoccurance. I told her that I would take those odds.

Lumpectomy - Sep 14 2009
Chemo completed Feb 24 2010
Rads completed July 2 2010
Herceptin completed Nov 22 2010
Femara began Mar 2010

Hugs
Donna

disneyfan2008
Posts: 5433
Joined: Oct 2010

sorry to hear of your diagnosis...I had DCIS and that is all I know...NO other #s or info like you posted...I was never told anything other then DCIS..

I had lumpectomy and radiation ...just over 4 yrs ago..on tamoxifen

Denise

Pinky68's picture
Pinky68
Posts: 206
Joined: Jul 2012

Hi Mila, I am IDC stage 2b ER+ at99%,PR+at70%, Her 2--. Grade 3, 50% tumor was necrosis (meaning dead cancer cells due to growing so fast not enough blood supply getting to them) subtype Solid, Cribriform and Comedocarcinoma w/nuclear grade 3..Also, Carcinoma present in Fascia(connective tissue) and Carcinoma present in Pectoralis muscle. 1/9 lymph nodes positive. Not sure what all that means!!! I had 3 surgers due to unclear margins. After last reincision I had one unclear margin of .12cm. I'm still a little confused about all this but I am doing well and so will you!!! I had 4 Adriamyacin/Cytoxin chemo every 2 weeks followed my 16 Taxol chemos every week, followed by 36 rads. I now take Megace for ERPR+ but am questioning if I should be taking Tamoxifen. It seems no one else on the board takes Megace......My onco just isn't real good about answering questions.
You said your having a PET/CT scan? My onco hasn't given me either of those tests. He ordered a breast MRI and thats all he's ever ordered since my diag on Dec. 15,2010. I've asked him several times about having a PET or CT scan and he always shoots me down...
I am very glad you are having those tests done.

Please let us know the results and keep us informed every step of the way! It is better to talk then to isolate yourself like what I did. I finished treatment 9 months ago and am doing good!!!! You will do good too!! Joyce

Asmi637
Posts: 8
Joined: Dec 2012

Pinky Im wondering how your doing now and what you decided on for your treatment?  We got the Oncotype sent out for my mom so we can decide on Chemo but we are really confused on what to do.  Does anyone else have the same situation?  Or have been on the same situation?

 

 

SIROD's picture
SIROD
Posts: 2189
Joined: Jun 2010

Asmi,

That is a very old post and the lady you are writing to hasn't been on CSN since July 20th.  It would be better if you posted it as your own post, you might have an answer.

Best to you,

Doris

Bella Luna's picture
Bella Luna
Posts: 1575
Joined: Aug 2009

Mila... I am triple positive like you. I was diagnosed 3 years ago with stage 1, grade 3 markers. I underwent 2 lumpectomies, chemo( herceptin, carboplatin, taxotere), and 6 weeks of rads. I am on Tamoxifen and see my doctor several times a year. I am also taking 5000 IU vitamin D tablets due to low levels and baby aspirin.

I am doing fine and continue to work on my Temple( mind, body, soul) and keep it Strong! My best to you on your recovery.
Ines

Mila45
Posts: 3
Joined: Jul 2012

Nancy, Susan, Jan, Carol, Donna, Denise, Joyce, Ines,

Thank you so much for your support and all facts you shared with me. It gave me some feeling of hope... I will keep in touch.

Hugs,

Mila

VickiSam's picture
VickiSam
Posts: 8314
Joined: Aug 2009

Welcome to our 'Site' of Sisters in PINK. Please come and visit us as often as
time permits. We are here 24 hours a day, 7 days a week!

Prayers and positive thoughts for you as you start this journey we call breast
cancer.

Strength, Courage and HOPE for a Cure.

Vicki Sam

jlhubert
Posts: 1
Joined: Oct 2013

Mila45, Hello! It appears we are in the same boat - triple positive, stage 1, I had negative nodes and diagnosed on July 15th. I posponed treatment until I could get more info. Unfortunately, there is not alot of data because we are rare (1% ?). After a lumpectomy with sentinal node removed, I am to start chemo with herceptin. Then radiation, followed by more herceptin and a hormone inhibitor. I am not OK with hair loss but was not given another good option for an alternative to chemo. Ocncology gave me a 10% - 12% survivabiliity rate with this teatment. On recommendation of a friend I am getting permanent makeup (tattoo) for eyebrows and eyeliner. Also looking for a wig, may have one made with my own hair. Best to you, jackie

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