Jul 13, 2012 - 5:26 pm
After being tired and fatigued for 3 years I finally elected to have a periaortal lymph node extracted for biopsy. DX was follicular lymphoma. It also showed up in my bone marrow which put me at stage 4. Since I had no large tumors in my PET scan, we elected Rituxan mono therapy as a starter and to "save the big guns for when I really need them". I had a severe blackout due to low BP in my 1st infusion but since then it has been uneventful. I completed 8 weeks of infusions and then went on maintenance. I have my third maintenance infusion next week. I went to MD Anderson for a second opinion found that I had a complete response. There are several suspicious spots so I need another PET in September.
Here is my problem: I don't feel better. I have severe leg pains and fatigue. Both shoulders hurt with no apparent injury. For the first time in my life I am having problems sexually. Does anyone else have theses symptoms?
I am not scared and think I handle it well. I do not feel "brave" or any of the other terms so often used to describe "survivors". I am mostly just pissed off. My career is gone, my sex life is gone and I have problems with my outdoor sports. If I could get rid of or lessen the pains and fatigue I would feel much better. Any stories of how you have dealt with similar symptoms?
I need to turn off self correction on this iPad!