I know that it has been awhile since I have been on and that is because my daughter has taken a turn for the worse. She had another brain hemorrhage the week before the 4th of July. Surgery was done to stop the bleed and thats when the docs discovered that the tumor went from a quater size to the size of a mans fist, in just 3 months, on Etoposide. So after a very long discussion with her team and I, the decision was made that there will be no more surgeries and due to the growth rate and sensitivity to bleeding, they do not give her very long. I made them give me a number(which they never would before) of how long she has and they finally said, mathmatically of course, 3 months or less. They think more on the less side though. Our goal now is to make sure she has no pain. She is home now and hoe is involved. We will see how the rest of this journey goes. My daughter is strong and a fighter. She has surprised the doctors before. I am trying to take it day by day,but man is it hard. Anyway, I don't have alot of time to post but I will keep you all updated.
Sorry to deliver the bad news but you guys have been my rock for 2 1/2 years and I really need you now