Jul 12, 2012 - 7:00 pm
Dave and I were at Hopkins today for blood work, and to talk to the clinical trial nurse and get some more information about treatment next week. Well Dr. Kelly, the medical oncologist who is running the trial, says that his nurse can not get the hospital that did the initial endoscopy to send back the slides that pathology needs to determine whether the tumor is a HCR receptive, or whatever the correct term is... I'm tired and forgetful tonight. To make a long story short, Dr Kelly calls the hospital, says hi I'm Dr. Kelly from Johns Hopkins and I am a calling about a matter of some urgency. Funny how all the sudden doors open, he's reached the head of pathology there, and lo and behold we can get the slides by 4 this afternoon. Now Dave has to drive to the other side of town to pick them up, but we didn't trust it to Fed Ex or any other courier, time is of the essence! The bad thing is that he needs to drive back downtown to Hopkins in the morning. It just goes to show how even esteemed institutions can sometimes run into SNAFUS.
Since the lab needs to still type the tumor, treatment which was to start on Tuesday will now commence on Thursday of next week. He is slated to get his port on Monday, and then hopefully we can get this show on the road. He's frustrated by having to wait, I'm just frazzled in general, but there seems to be some light at the *beginning* of the tunnel. And we still don't know what protocol chemo he'll be on as not sure whether the tumor is metholated or not. Oy vey... And of course this is the week that I am going to the beach with my mom and kids. I'm still planning on going, I need to get away so I'll be ready to do battle with him!