Jul 08, 2012 - 3:02 pm
Well we are getting closer to getting started on treatment. Dave was at Hopkins on Friday and had his radiation simulation done. We are still waiting on the tumor identification to see if he'll be in a clinical trial and what meds he'll get. As of now, radiation starts Tuesday July 17th, and I assume chemo will run concurrently with that. We don't yet know if he'll need a port. With one regime he'd have the 96 hour infusion and of course need the port, with the other protocol he would not use a port and chem would just be done in an IV through the arm. Can anyone shed some light on this for me? I think I'm just on overload and for some strange reason I can't seem to process this one piece. We go back to Hopkins this Thursday for the pulmonary test, and also are meeting with the chemo team to hopefully flush all this out.
To complicate things further, we learned that the PET scan shows he has an anyersum in his neck which will need surgery after all the cancer treatment is completed. Unbelievable! I can't even imagine going through another surgery...
Some of the discussions of late about the caregivers have really hit home. I have become so stressed and run down that i have picked up a respitory virus. I'll be fine, just need to rest a few days, but it hits home how we as care givers need to take good care of ourselves. Life goes on even if someone has EC, and I still have all the other challenges in my life to contend with in addition to Dave's cancer. I had an appointment with my therapist yesterday and she helped to show me how I need to just take it one day at a time and not obsess over things I can't change.
But back to my original question, if anyone can help me out with the chemo protocol I would be most appreciative!