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new here just diagnosed nhl +

baminfl
Posts: 1
Joined: Jul 2012

7 parotid gland tumors now 10 still fighting hmo Medicaid for help diagnosed so far with non hodgkins lymphoma on third biopsy .waiting for pet scan possible lung involvement but pulmonary function test so bad drs said I would die on table .not sure if its sarcoidosas or cancer so pet scan is only hope.I suffer from Sjogrens , fibromyalgia,/cfs /ME .puts me at higher risk for lymphoma . No support , don't no where to begin

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

you did not have to be here.You will find tons of support on this site. There is nothing worse than having to fight an insurance co. about your needs. Hopefully the Drs. can get it pushed thru for you. So far I have not had to much trouble with the insurance co.,except for their paying bills on time. It does get straightened out after hours on the phone. I do not know what to tell you about the diagnosis because they are not really sure what it is. You and your Drs. are going to have to keep pushing for the PET Scan. I know you are doing what you can and it is frustrating. Others here will reply shortly and hopefully they can point you in the right direction. John

allmost60's picture
allmost60
Posts: 3171
Joined: Jul 2010

Hi,
Sorry to hear about the problems with insurance coverage, or lack there of, but if you haven't already done so, talk to your primary care doctor and explain your situation. Have you talked to the folks at DSHS(Dept of Human Health Services) in your area? You might want to call your local chapter of the American Cancer Society, as I know they have means of connecting folks in your situation with the right people. Please come back and let us know what you find out once the PET scan is done. I'll keep you in my prayers.
Best wishes...Sue (Follicular NHL-stage3-grade2-typeA-Dx 6/10-age 61)

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