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prostate cancer with cyberknife treatment any long term side effects after six months or a year involving nerves

nuphasemechanical
Posts: 1
Joined: Jul 2012

has anyone who has had cyberknife radiation had any longterm side effects involving nerves

Kongo's picture
Kongo
Posts: 1167
Joined: Mar 2010

I had CK two years ago. No side effects at all. There are several threads regarding CyberKnife treatment if you take the time to go back through several pages of posts. If you're considering CK I recommend that you read these. You may also wish to visit www.cyberknife.com and review the posts by patients and the CK doctors who answer them.

K

ralph.townsend1's picture
ralph.townsend1
Posts: 353
Joined: Feb 2012

If CK is the same as Proton treatment in that you attack your cancer like in the lymph nodes, and if it's in your Lymph nodes, plus if it is blood born and high gleason score. Then its in all nodes through out the body. On top of that, if radiation is shot to the prostate area. Then most likely you will have problem's to function in that area. The bright side is that in early stage cancer with low gleason score. You are problily ok! One of the thing's that MD Anderson Cancer doctor's said about chasing this cancer with these type of treatment is that it's a moving target. You can only shoot this gun at you before it kill's the HOST.

If Ck is not the same as Proton! Then never mind. Sorry I was so negitive!

So good luck and God bless.

Kongo's picture
Kongo
Posts: 1167
Joined: Mar 2010

Sorry, Ralph. CK is nothing at all like proton treatment.

ralph.townsend1's picture
ralph.townsend1
Posts: 353
Joined: Feb 2012

I guess I need to learn.

Swingshiftworker
Posts: 634
Joined: Mar 2010

Like Kongo, I received my CK treatment about 2 years ago (2 years this Sept) and have experienced no side effects whatsoever -- no ED or incontinence.

Not sure what "nerve" problems you are concerned about. Can you be more specific?

mrspjd
Posts: 693
Joined: Apr 2010

Nuphase,

You might find the following CSN link/thread helpful about possible CK injury or side effects:

http://csn.cancer.org/node/206611#comment-1218200

Hope things work out.

mrdezzy
Posts: 23
Joined: Mar 2012

Kongo and Swingshiftworker, would you mind telling me which treatment center you guys had your CK done. I am still considering options and I have read many of your posts and both of you seem to very pleased with the outcome. From my research it appears that the proper planning to determine "where and how much" is very critical and from what I can tell is dependent upon the team that is designing your therapy. I am willing to travel and as one of the posters mentioned earlier there seem to be more and more centers being open. thanks

Kongo's picture
Kongo
Posts: 1167
Joined: Mar 2010

Mr. Dezzy,

I went through CyberKnife of Southern California at Vista. My doctor Patrick Linson. They have a website. Vista is about 30 minutes north of downtown San Diego between Oceanside and Escondido. I am very pleased with this group and Dr. Linson in particular.

K

Kongo's picture
Kongo
Posts: 1167
Joined: Mar 2010

Mr. Dezzy,

I went through CyberKnife of Southern California at Vista. My doctor Patrick Linson. They have a website. Vista is about 30 minutes north of downtown San Diego between Oceanside and Escondido. I am very pleased with this group and Dr. Linson in particular.

K

Swingshiftworker
Posts: 634
Joined: Mar 2010

I was treated w/ CK at the UCSF Medical Center in San Francisco and my treatment was covered by Blue Shield.

I would be cautious about using one of the many private CK treatment centers popping up around the country and would carefully assess the background and experience of the staff there. Wouldn't worry so much the by 1st tier medical schools/hospitals where CK is offered, like UCSF and Stanford.

That said, a lot of the "work" involved in preparing a CK treatment plan is done by the CK computer program provided by Accuray (the manufacturer). The procedure is actually pretty simple. You have the markers inserted in your prostate; get a CT and MRI scan; and then the CK program takes the images from the CT/MRI scans, superimposes them and plots the radiation delivery pattern (location and strength) based on the assessed location of the prostate and adjoining tissue/organs.

The professional staff (the radiation oncologist, medical radiologist, physicist, etc.) are there simply to confirm that what the program suggests is the right thing to do in your case.

Good luck!

mrspjd
Posts: 693
Joined: Apr 2010

I thought some of the comments/posts in your other thread titled "CK Update" (http://csn.cancer.org/node/239630) were particularly insightful and worthy of a repost here:

"It is important to keep in mind that any treatment to prostate cancer carries a risk and the glowing reports of one patient may not apply to you. Each of us has a different cancer, different body, different gene pool, and different sensitivities to various protocols." ~Kongo

"My last PSA test result in March 2012 was 1.55; still not below 1 (which is an indicator of success) but headed that way after some very erratic and somewhat frightening readings."  ~Swingswiftworker. (more recent posts seem to confirm similar PSA results >1.0) 

"Although many men when diagnosed are simply scared since they now have the big "C", want to take action and get the cancer out of their body, even though there is a risk of suffering side effects, AS [Active Surveillance], today is considered the wiser alternative by many since 70-75 percent of the cancers in these patients will never progress, and of the appr.25- 30 percent that will progress,close monitoring of the cancer will provide the patient with amply opportunty for treatment." ~Hopeful and Optimistic

It is a given that one must choose the best of the best MD & medical team for any PCa tx.  But first, before any tx is considered, it is imperative & critical that the PCa is clinically staged as accurately as possible using diagnostic testing technology and expert PCa  biopsy specimen pathology (2nd opinion).  Only then, along with your own independent research and investigation into PCa txs, will you be able to consider the best "curative" tx option for your cancer type, risk level and personal lifestyle priorities.  That is one of the most important pieces of info my husband & I learned after his PCa dx in Feb 2010. 

Best of luck in your ongoing challenging phase of decision making and beyond as your PCa journey continues. 

mrs pjd

mrdezzy
Posts: 23
Joined: Mar 2012

thanks to all for your kind responses...

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