Jun 29, 2012 - 9:13 am
There are some wonderful people on this site who know what they are talking about regarding EC and its treatment.
I am so fearful that some newbies may listen to the advise of unqualified people who are telling them what to do and what not to do.
EC is a vicious monster that shows no mercy. I can attest to that with all that my husband Vince went thru. There are so many people on here who truly care and THEY KNOW what they are talking about.
If I knew now what I knew then I truly believe my husband and my lives may have been different and with a better outcome. He may still have passed away BUT his care and last few months may have been better than they were. The chemo killed him as he was starving to death as they did not give him a feeding tube. They put him on PTN. This literally just put more fluid on him.
My husband wanted to stay home and do his treatment in our area where there is no real big cancer center. I wanted him to go to MD Anderson, UPMC, or Sloan. No way would he listen.
I listened to all of the people who were in the know at that time,2010 , until his passing in Feb 2011.
BUT he would not. He just wanted to stay at home and have his treatments.
This site has LITERALLY saved my Life as without hearing from many who went thru what we did I would never have known this much about EC and what it does to families and have been able to survive losing my husband.
We really want EVERYONE here, who has EC or the caregiver, to hear our stories and to try to make good decisions.
NO ONE knows everything but most of us have done our research and we really want to help.
PLEASE PLEASE PLEASE take care of yourselves, go to places where they can really help you, take meds that are prescibed and may help and If they don't help you, and you can always try something else. What works for one may not work for another. Scare tactics about meds should Never be an issue.
I really care