Jun 29, 2012 - 2:59 am
I am a bit confused about my options. I was diagnosed 1a stage 3 aggression carcinosarcoma. within 2 weeks of diagnosis, I had a complete hysterectomy, lymphnodes removed, ovaries, everything gone. No cancer found anywhere but the uterine wall where there was a tumor (which I found odd that the CT scan never picked up, it was the size of a lemon). I have talked with 3 different Dr's, whom they have put my case to their "boards" for discussion. Apparently this form of cancer is VERY rare and very aggressive. One of the Dr's said he looked it up and there are only just over 400 active cases in the united states. I have since had a CT scan of my lungs, which came back clean, and a port put in. My concern is the chemo, they want me to have 6 rounds and 2 rounds of radiation. I have been researching like a mad woman about this form of cancer, I cant find much on it, but the general thread i seem to find is the wait and watch. My concern is that they dont seem to have a way to test for it to see if it has spread as it doesnt show up in blood work. I am at a crossroads as to weather to go with the chemo, which I am not fond of that idea, or to wait it out, and change my whole eating and exercise lifestyle. Anyone else out there with the same form of cancer I have, and any suggestions?