Can someone please give me some advice. I live in Austalia and have been reading the discussions on this site for the past couple of weeks and you all seem so knowledgeable about your diagnosis and treatments. I am feeling helpless and not sure what to do.
I was diagnosed with grade 1 endometrial adenocarcinoma which had infiltrated 8mm into 12mm of the myometreum in August 2006. I had a complete hysterectomy followed by brachytherapy as this was thought to be all that was necessary. No lymph nodes were removed due to the need for me to have blood thinners daily for a heart valve.
I was quite well after this and was just having 3 monthly checkups where everything appeared to be normal
In November 2010 I was feeling unwell and a pelvic scan showed an enlarged lymph node pressing on my right kidney. A CA125 blood test was also done and it was 383.
A PET scan followed and, as well as the large node on the right, it showed para aortic nodes, another one near my left kidney and a supraclavicular node.
The node in my neck was able to be biopsied and I was told it was the adenocarcinoma. Following this I had 6 round of carbo/taxol finishing in April 1011. A follow up PET showed showed no active disease.
Over the past 12 months my CA125's have slowly been creeping up and in May this year (one month ago) a CT scan showed another mass measuring 2.7cm x 2.5cam x 2.4cm near my left kidney.
I feel very well(apart from being an emotional mess at this new diagnosis). My oncologist has told me I have two options - wait and see what happens or go on a trial of using an aromatase inhibitor to see if it slows the growth of the tumour or shrinks it. He will not consider chemo at the moment.
Has anyone else used aromatase inhibitors for their tumours and have you had success with them.
Please can someone help.