Jun 25, 2012 - 11:30 pm
Hi. New to the board, so wish I found it sooner! I was diagnosed with Anal Cancer Apr 13, 2011, one day before my 50th birthday! I was also diagnosed with a severe abdominal infection and 2 major fistulas (due to the infection from that dang mesh). Anyway I did the myomiticin and 5-FU and radiation treatments for 6 weeks. 2 weeks after my diagnoses and just before my treatments I had a temporary diverting colostomy.
The thing is they could never really stage my cancer. They felt it was stage 3 or earlier because when they did the CAT scan I had enlarged lymph nodes in my groin, but they could not determine whether it was cancer or if it was the infection, so they just treated it like it was cancer (a couple of nodes had pinpoint radiation due to the size). IF they did a PET scan at the beginning they said my whole abdominal area would light up because of the infection, then the inflammation from surgeries..etc, so MY FIRST PET SCAN WAS TODAY!!!!
My surgeon repaired the fistulas in November 2011 and took localize biopsies, and THANK GOD NED!!! I prayed and believed that my body would heal it self well enough to attempt a colostomy reversal, and it did! I had the reversal Feb 28, 2012. I'm no where near the same as before CA, but let me tell you, it beats having that bag on your belly!
I am dealing with a lot of side effects from chemo/radiation as well. Has anyone every heard of chemo induced Rheumatoid Arthritis? My RF labs were high as is my sed rate and CPK. I have an appointment with a rheumotologist in July. I'm still dealing with fatigue as well. The joint pain is the worst in my hands, but is also in my wrists, shoulders and slightly in my ankles. My bone density scan revealed Osteopenia, so now taking Calcium and Vit D.
Boy it has been just as crazy as it was DURING treatments, maybe even more now.
My body is so much different then it was 1-2 years ago. I am trying to accept it and do the best I can with what I have. On a positive note, I did my first ever 5 K a week ago!