take a chance or not???

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tuffenuff
tuffenuff Member Posts: 277
in Head and Neck Cancer #1
so i just completed my 2nd round of chemo about 5 hours ago. 35mg cisplatin weekly since the doc said i could tolerate it better than the larger once every 3 wk dose. i get aloxi with the chemo and also take emend. i had no side effects the first go round. the lethargy and headaches and constipation i really think were from the zofran i took every 8 hours.

like i said, the zofran makes me drunk and tired. do you think i really still should take the zofran or should the aloxi and the emend do the job? (please keep in mind i have an extreme fear of vomiting so even considering not pumping myself full of extra nausea meds is a HUGE step...)

neurotically yours,

cindy

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  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #2
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    EMEND
    I only had EMEND for each of my three big doses (21 day schedule), which included Taxotere and 5FU. One EMEND for each day the first three days only.

    I rarely needed anything more... Unless someone kept yapping about the chemo and I thought about it too much. Anything extra, such as Zofran or Phenergan were optional and only if needed.

    So, while I can only speak for myself, the EMEND worked very well for me.

    John
  • CivilMatt
    CivilMatt Member Posts: 4,722 Member
    #3
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    be careful
    Hi Cindy,

    Something looks different about your picture, but I can’t quite figure it out.

    I belong to the Zofran constipation club and have to say “pass me the prune juice please”. It immediately took care of my nausea, but almost needed dynamite to loosen its grip on me.

    Here’s to no vomit nausea control.

    Matt
  • phrannie51
    phrannie51 Member Posts: 4,716
    #4
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    I've been getting the big blasts of
    Cispaten every three weeks. It took me the first two times to learn, that without all my anti-nausea meds from Tues (when I got my chemo) till the following Sunday, I'm going to be hanging on to the porcelain throne unless I take them all. I, like you, get VERY tired on Zofran, and of course the constipation is beyond believable. I also take Compazine, and did try to use that in lieu of the Zophran...but it didn't work for me.

    You can try and go without it, and see how you do...the worst that will happen is you'll get sick...and you can get right back on it if you do.

    p
  • tuffenuff
    tuffenuff Member Posts: 277
    #5
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    CivilMatt said:

    be careful
    Hi Cindy,

    Something looks different about your picture, but I can’t quite figure it out.

    I belong to the Zofran constipation club and have to say “pass me the prune juice please”. It immediately took care of my nausea, but almost needed dynamite to loosen its grip on me.

    Here’s to no vomit nausea control.

    Matt

    oh yeah, the constipation is
    oh yeah, the constipation is not good. doc just told me yesterday it was probably the zofran. been of it for 4 days and things are finally moving along.
  • tuffenuff
    tuffenuff Member Posts: 277
    #6
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    phrannie51 said:

    I've been getting the big blasts of
    Cispaten every three weeks. It took me the first two times to learn, that without all my anti-nausea meds from Tues (when I got my chemo) till the following Sunday, I'm going to be hanging on to the porcelain throne unless I take them all. I, like you, get VERY tired on Zofran, and of course the constipation is beyond believable. I also take Compazine, and did try to use that in lieu of the Zophran...but it didn't work for me.

    You can try and go without it, and see how you do...the worst that will happen is you'll get sick...and you can get right back on it if you do.

    p

    doc said same results and
    doc said same results and way fewer side effects with my weekly dosage so i figured i would give it a shot with just emend. so far, so good.

    ste cereal fr breakfast, had turkey/mashed potatoes/gravy/veggies during treatment, ate a banana at the grocery store 6 hours ago, some grapes when i got home, 2 small bowls of chicken noodle soup about 2 hours ago. all is quiet on the western front thus far. :o)
  • Tim6003
    Tim6003 Member Posts: 1,514 Member
    #7
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    tuffenuff said:

    doc said same results and
    doc said same results and way fewer side effects with my weekly dosage so i figured i would give it a shot with just emend. so far, so good.

    ste cereal fr breakfast, had turkey/mashed potatoes/gravy/veggies during treatment, ate a banana at the grocery store 6 hours ago, some grapes when i got home, 2 small bowls of chicken noodle soup about 2 hours ago. all is quiet on the western front thus far. :o)

    Wish I could help..
    but I never had traditional chemo...just Erbitux and radiation :)

    Best,


    Tim
  • phrannie51
    phrannie51 Member Posts: 4,716
    #8
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    tuffenuff said:

    doc said same results and
    doc said same results and way fewer side effects with my weekly dosage so i figured i would give it a shot with just emend. so far, so good.

    ste cereal fr breakfast, had turkey/mashed potatoes/gravy/veggies during treatment, ate a banana at the grocery store 6 hours ago, some grapes when i got home, 2 small bowls of chicken noodle soup about 2 hours ago. all is quiet on the western front thus far. :o)

    Well....you certainly are eating good, Tuffy....LOL....
    I was drooling reading the whole list....I'd LOVE some grapes right now!

    p

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