Jun 18, 2012 - 10:41 pm
Thanks for all the support I've received thus far about my Mom's recently diagnosed BOT cancer, which has spread to her larynx and at least one node. The biopsy came back positive for squamous cell and due to size and spread it's stage 4. Don't know anything form the pathology report about how the cells looked. A trach was placed during the biopsy to protect her airway.
She was to meet with an Emory oncologist Wednesday but is still in the hospital. She really didn't want a G-tube but at 85 lbs and aspirating about anything she eats it's become a life-saving necessity.
Her hoarding is presenting such a major obstacle in her treatment and recovery. She refuses to let me remove a single item from her home without her permission and the conditions there are such that she literally cannot live there anymore - shouldn't have been living there for the last decade.
I found her a bed in a rehab facility Medicare will pay for (at least for 30 days) and she's agreed to go there but wants to return "home" periodically to check on the place and insists on returning there after her days have expired - whether she's receiving chemo or radiation or anything else. Sorry to vent here, but I'm so angry, tired and frustrated.
I've spent most of the last 5 days making calls and sending faxes and email to anybody I thought could help here get a Medicare bed in a rehab facility and a G-tube and she's acting as if I'm forcing her to do these things out of some odd selfish desire to be rid of her.
It's so difficult. And I'm her only living relative. She owns two adjacent houses (her deceased parents' and her own) and can't live in either of them due to her mental illness. Now the cancer comes and I'm scared about that, and even afraid of a positive outcome if it means she returns to that "house" with the rodents and the 6-foot piles of garbage.
So I keep hoping something will happen and she'll allow me to help her clean the place - yet again. Maybe if she's inpatient and undergoing treatment something will click and she'll realize she simply cannot go on living like that. But I kinda doubt it.
Hope the radiation oncologist she sees next week will make her understand the reality of the situation, and the imperative to take better are of herself from now on - or allow others to help.
Thanks for listening/reading. I sincerely hope you are all well and on the road to permanent remission! Lost of love and light and positive energy to everyone.