Jun 18, 2012 - 2:28 pm
When I read language like this from one of your last posts ... I am confused and saddened.
"just because we a desperately fighting for our lives in the presence of a few blood sucking scumbag conartist charletane doctors around does not mean they can out smart me and my many committed friends. we are simply smarter than them and i firmly believe working together, sharing our research our experiences we can improve our quality of life and survival odds. and with luck send some of the bastards to gaol or at least bankruptcy."
I know that the burdens of having cancer are very, very difficult and I honor and respect that you have a right to a full range of emotions that the burden of cancer present. I know that sometimes these emotions are dark and still need to be expressed ... I just sometimes do not understand the vitriolic nature of some of your posts toward mainstream medical procedures.
You have asked the board to be open to your alternative views and I think that you have been treated respectfully even though many most likely are not seeing alternative treatments themselves. Your ideas seem welcomed and I am sure read with interest.
It seems to me that what we might work towards is a way to respect all manner of treatment -- you know, perhaps find a way to seek your alternative treatments and discuss them without condemning those who both seek more mainstream treatments and those who treat with more mainstream treatments.
I know individuals well who are both nurses and oncologists and none are " blood sucking scumbag conartist charlatan doctors". They would be deeply offended by such a description. The vast majority of these individuals devote their lives to helping folks on a very difficult journey with great compassion. I would hate to think that someone would want to "with luck send some of the bastards to gaol or at least bankruptcy."
I come to this site for inspiration and support as the caretaker of my husband who has Stage 4 colorectal cancer with mets to the liver and lung. He has had palliative chemotherapy for the past 30 months. I also help him by preparing organic foods, encouraging exercise, juicing, massage, and a generally a healthy lifestyle. We live every day as loving and as in the moment as we can.
I know that I could just ignore the parts of your post, any post, that might offend or irritate me ... but, I just sometimes think you are asking for perhaps more than you give .... I am seeking open-mindedness and mutual respect for all choices. I mean, could you imagine if those that are helping you with your alternative treatments were described as "blood sucking scumbag conartist charlatan doctors". I think on some level you would be outraged.
Maybe you could think just a bit about this. You seem like an extraordinary person who is very passionate about the path you have taken, but please always consider ... other may be just as passionate about their paths. Language is powerful.
With respect to you -- Cynthia