Hi...just realized 2 weeks ago that I was a member of a select group...namely, those that are DES exposed..We can be Daughters or Sons...I would welcome hearing from anyone who, too, is a lifelong member...thanks..
I too am a DES daughter.I do not have a GYN cancer at this time BUT I am being followed by a GYN/oncologist because I had a bad pap last year. It was followed by a radical hysterectomy. Currently I am waiting for the results of most recent pap. They are more concerned that I may have vulva cancer. I am being followed closely for that now.
I am a des daughter and was just diagnosed wiith adenocarcinoma stage 1b2. I had a cone biopsy 15 years ago for adenocarcinoma in situ and was fine until this year.
Im a DES daughter as well as a Navy brat & was born in Ca at a Naval hospital. Had a total hysterectomy about 20 years ago. About 15 years ago, surgery for vulvar cancer. Now Im going in Nov 5th for vaginal cancer. Hopefully it hasnt spread elsewhere, & a partial or total vaginectomy will be enough. Before all of the surgeries occurred, I was told I had mis shaped reproductive organs, as well as a severe case of endometriosis. Both seen in DES daughters. I did manage to have one son, born prematurely, after one miscarriage in the 70s. Looks like I wont be riding my mustang mare for a while.