Jun 14, 2012 - 9:53 pm
I was wondering what others experiences were with this tumor. What types of treatments if any were done? Has anyone's tumors recurred? How long did it take? Any long term survivors or those without recurrence? It seems like this is a pretty rare tumor with no consistent treatment regimen and uncertainty if chemo/radiation are even effective on it. My thoughts are that the doctors will continue to suggest a "watch and wait" approach but I was wondering if this is what other people had done if they had a total resection, and how frequent are your follow-ups (I'm at every 3 months right now).
Thanks for any info!