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Auto Stem Cell Transplant Tomorrow Morning

coachmike
Posts: 139
Joined: Oct 2011

Tomorrow morning in go in for my Auto stem cell transplant to treat my B Cell Non Hodgkins Lymphoma. Any words of advice or experience wit this procedure would be greatly appreciated.

anliperez915's picture
anliperez915
Posts: 748
Joined: Sep 2011

Hi DadysGirl,
I'm praying for your dad that everything goes smoothly so he can finally reach remission. Hang in there sweetheart, I think you're a wonderful daughter! May God bless you with enough strength so you can help your family through this very difficult time. Please let us know how your dad is doing. Take care

Sincerely,
Liz

anliperez915's picture
anliperez915
Posts: 748
Joined: Sep 2011

Hi DadysGirl,
I'm praying for your dad that everything goes smoothly so he can finally reach remission. Hang in there sweetheart, I think you're a wonderful daughter! May God bless you with enough strength so you can help your family through this very difficult time. Please let us know how your dad is doing. Take care

Sincerely,
Liz

DadysGirl
Posts: 315
Joined: Aug 2011

Thank you so much Liz. You made me cry but in a nice way, I appreciate your note and prayers very much. I read your note to my family including my Dad. We all say thank you and I looked at your info looks like you were both diagnosed July of 2011. We hope and pray your difficult times will be replaced with very long healthy happy life with all your loved ones. It's weird but all the cancer patients seem like a big family... One wishes nothing less for others than what they wish for their loved one... I'll be thinking of all of you in my prayers and everyone else going through difficult times...

anliperez915's picture
anliperez915
Posts: 748
Joined: Sep 2011

Hi DadysGirl,
Didn't mean to make you cry sorry, I think that its good to cry once in a while to take all those bottled up emotions out of your system.
I'm not sure but back then I thought you had posted a picture of you and your dad (I think one of you two had a yellow shirt on).
How is your dad doing today? Will be praying for you and your dad... Take care (((HUGS)))

Sincerely,
Liz

DadysGirl
Posts: 315
Joined: Aug 2011

It was good no need to be sorry, whenever I get emotional I take time to pray at those weak moments for everyone on this earth.
As we speak Dad is taking a walk in the short hallway back and forth. I usually walk with him but in this unit if I walk with him there won't be room left for nurses... There's only 6 beds in this unit... He did not get drunk last night only small things like red ears face, hay feverish symptoms little bit of reflux...
They had to re tube the chemo twice as it was beeping and not going through so it got administered on a slower rate with pauses in between chemo taken to pharmacy to get retubed... I never did add a picture of us, maybe I will one of these days... I saw your pictures, you're very pretty and your daughter is adorable... Love and hugs.. By the wa... He had his day -5 chemo today which will be same chemo for days -4 -3 -2 as well... They said symptoms side effects of these will be later on... They administered it at 8am he is done for today... Appetite still good... Mike how are you doing? Don't forget us... Wonder if you left for home sweet home...

coachmike
Posts: 139
Joined: Oct 2011

Well I cant believe it but my doctor just came in my room and informed me that im going home tomorrow. The engrafement of my WBC have begun and aslong as their is more growth tonight ill be discharged tomorrow evening. I will be leaving at day +9, which ive been told is a record for this hospital. So ive been working all morning on getting the carpet cleaners and pet groomer appointments moved to tomorrow morning so i can go home. The doctor explained to me that the treatment that im receiving can all be done outpatient. So ill be coming to the clinic everyday for a while getting labs drawn and any replacements if needed. I am over the moon right now and really am grateful for all the well wishes. There is so much power in prayer.

DadysGirl
Posts: 315
Joined: Aug 2011

Mike :)))))))) Doctors everyone just goes through the process... Everything goes as God has planned for us... We just have to try our best...that's all we can do... You're right about prayers... Let's continue to pray for everyone for a cure.... :) :). :)

allmost60's picture
allmost60
Posts: 3163
Joined: Jul 2010

Hey Mike...thats wonderful news! It will feel so good to get home and be in your own surroundings Best wishes friend...Sue (FNHL-2-3A-6/10)

DadysGirl
Posts: 315
Joined: Aug 2011

Sue, seeing your posts with the picture of this cutie always puts a smile on my face...

onlytoday's picture
onlytoday
Posts: 586
Joined: Jun 2010

Mike,
I've been offline for a bit but have followed the posts. Wow, you are such an inspiration. Truly you are! I am just thrilled at your news that you can go home to be with the beagles!! There is a lot to be said for being fit going into chemo and/or transplants. I have been coming back really quick from my treatments not only how I feel but my bloodwork too. My doctor said that going into treatment in a fit condition really makes a difference. (You are proof of it) They told me that I am a basically healthy 60 year old who happens to have cancer.

Kind of funny in a sick way! :)

Anyway, I just wanted to tell you that I am so proud of how you have handled this "situation" that you find yourself in! 9 days!! Wow!! I know that you will continue to take care and do the right things! Hope that your appetite returns soon.

Continued prayers.
Donna

coachmike
Posts: 139
Joined: Oct 2011

Today I will be going home!!! I am so blessed to have such an amazing suppport group that have been by my side. ready to go home and relax and recover in the comforts of my own home.
I wish you all here the best and pray for you

DadysGirl
Posts: 315
Joined: Aug 2011

Great news Mike. Please be careful and take care of yourself... My Dad is at day -4. His hct is low looks like he'll need transfusion of blood tomorrow... Other than that he is ok so far... Doing his laps in the tiny hall here... Eating well still. Pls continue to keep us posted and continue for praying for us all...

coachmike
Posts: 139
Joined: Oct 2011

Hey Guys

Well i got to sleep in my own bed last night which felt so great. You forget how much the small things you miss when you dont have them anymore.
Of course my luck I get home yesterday and we had a huge storm here in VA and lost power around 11 30 pm LOL but hey ill take home with no power any time rather than staying in the hospital. At the clinic today getting labs and waiting to see if I need any replinishments.
Daddys Girl, I hope and pray your dad is doing well. Please keep us updated and I know we are all praying for this to be as easy as possible for him.
Thank you all for your well wishes and prayers, they have meant so much

DadysGirl
Posts: 315
Joined: Aug 2011

I'm sorry about the storm Mike but I guess you didn't mind it so that's good... We're very happy for you Mike... Dad is @ day -3. Last night he developed pain on upper left abdominal area as he takes deep breath. A little over the bottom of rib cage behind it. He also gets it when he presses in the area. They have him on no food drink for 8 hrs to do an ultrasound of his spleen. I hope it is just something muscular even though Dad doesn't think so... I hope it won't be anything serious... Thank you Mike and all of you for your thoughts and prayers... My Dad loves Virginia he wanted to move down there after retirement... I hope he will have many many more healthy yrs ahead along with everyone else so he everyone else may live their dreams...
I hope I will continue to give good reports... And wishing the same from you Mike and others as well.. Take care.

onlytoday's picture
onlytoday
Posts: 586
Joined: Jun 2010

Mike,
So so happy that you are HOME! Yay!!!!! I'm sure the beagles are still going nuts getting their Dad back! Take care and rest. So happy that this last "thing" is behind you. You are amazing.

Hugs,
Donna

DadysGirl
Posts: 315
Joined: Aug 2011

Dad's spleen little on large size but not too much difference ie less than cm from earlier last yr scans compared with ctscan vs ultrasound... Doctor wanted to check his liver enzymes still...didn't hear from him yet... Dad had to get blood today... Day -1 will be today where he'll get the chemo known for mouth sores gi tract sores... Tomorrow will be his stem cell infusion day... Blood pressure was a little high at one pt... His left foot is swollen tonight... We hope things will continue to be good without complications... How are you doing Mike? Please don't forget to keep us up to date...
Take care everyone and please don't forget us....

coachmike
Posts: 139
Joined: Oct 2011

Hey everyone. Im doing well. I went to the clinic yesterday and had my labs drawn. My WBC was at 4.7!!!!! My hemaglobin and plateletes were back on the climb as well. I didnt need anything except a little Magnesium. They gave me today off and are wanting me to come back tomorrow to have routine labs again. I will also be meeting with my nurse practitioner in regards to removing the hickman line soon. I felt so good sleep in today too. My mom is here and she is definitely in mom mode full force. She has every intention to getting these pounds that i was happy to lose back on me lol. Im constantly reminded how blessed I am and how grateful I am to have so much support.
DaddysGirl,I continue to pray for your dad and your family. When he gets the Melphalan please please please have hime chew ice and ice pops during the infusion and thirty minutes after its done. Thats what I did and I had no sores only a tender spot on the side of my tongue. It was advice given to me and it seemed to do the trick. Hes gonna get through this and get back to a good quality of life in no time.
Thank you all for your concerns

allmost60's picture
allmost60
Posts: 3163
Joined: Jul 2010

Hey Mike,
Sooooo glad you are still doing so well! DaddysGirl will be very happy to hear your good news, as this is such a scary time for her and her dad. We will all definetely keep him in our prayers for as successful recovery as you have had. Arn't mom's just great?... Sounds like yours is pretty special...glad she's there for you. Keep up the good work Mike and enjoy your recovery. best wishes...Sue (FNHL-2-3a-6/10)

anliperez915's picture
anliperez915
Posts: 748
Joined: Sep 2011

Hi Mike,
Glad to hear that you're doing well, and that your mom is taking care of you! We all need our moms especially when we feel vulnerable, let her take care of you (it's OK to let other people take care of us once in a while) :)
Continue with the great updates! Take Care (((Hugs)))

Sincerely,
Liz

allmost60's picture
allmost60
Posts: 3163
Joined: Jul 2010

Hi DadysGirl,
No way will we forget you! I've had you, your dad and family in my prayers from day one, as I do with all of our friends here. Sometimes we get side tracked with life and don't post as quick as we should, but that doesn't mean we've forgotten. My days can get hectic with babysitting my grandbaby Lizzy, but I can usually find time in the evening to respond. Your dad is in my age range and even though the "60"s" seem old to younger folks, we are a lot tougher than we look. This is going to be a tough period for your dad, but it sounds like he is in good hands and getting good care. Hopefully he will sail through this with minimal discomfort. You are such a great daughter...your dad is very lucky to have such a wonderful supportive daughter. Hang in there and keep us informed...you might want to start a new discussion concerning your dad since this thred has gotten so long. I'm sure Mike is doing well and enjoying his new found freedom at home away from the hospital. You take care, and don't worry...we have not forgotten you and your dad. Alwyas here for you! Much love...sue (FNHL-2-3A-6/10)

anliperez915's picture
anliperez915
Posts: 748
Joined: Sep 2011

Hi DadysGirl,
It sounds like your dad is doing OK with the treatment, hopefully he can continue without too many complications.
This weekend I was a little busy had birthday parties (back to back) lol!
Take care of yourself, I will continue to have him and you in my prayers.

Sincerely,
Liz

DadysGirl
Posts: 315
Joined: Aug 2011

going to keep it short I appreciate all the messages above VERY VERY much and all the thoughts and prayers along with it... I read the messages to my Dad and family and it gives us comfort knowing you are all there with us... Dad had a very tough time today stem cell infusion.. he had 8 syringes, first 5 was no problem, 6th started to get chest discomfort, throat discomfort heaviness... cramping diarhea with 6th they had to give him in the bathroom, blood pressure went way up over 200s shaking so bad they couldn't measure blood pressure even manually... they administered some medicine through iv to stop shaking along with other medications, then started throwing up, coughing... it was terrible I couldn't watch him the whole time had to leave the room didn't want to have my anxiety effect others... mom left at one point too and couldn't go back in... it was so scary... they held on the 8th shringe for about 5 1/2 hrs later... it was the dsmo chemical the stem cells were stored with... he had too many bags so too much of dsmo... he did well with the last syringe... no reaction... what's important is for others anyone going through it is to tell the SMALLEST bid of reaction they feel so they can give breaks in between bags... I'm glad it's over... he has no apetite at the moment... again thank you very much for all the notes and everything... not sure of how to start a new thread can't think at the moment... unless someone else wants to start it for me...

coachmike
Posts: 139
Joined: Oct 2011

Daddys girl...i dont understand why they gave him all that at once. I too had a lot of bags of stem cells and they split the infusion over two days so i wouldnt have the reactions that your dad had. I would really question why they decided to infuse all in one day when they could have easily split it over two. Im very sorry that he had a negative response to the chemicals that store the cells. Im sure that was very scary to watch and I hate that you had to see that and that your dad had to endure that. I will continue to pray for his recovery and truly hope that things get easier for him.

I got home from the clinic and they are very happy with my counts. WBC staying at 4.7. Plateletes and Hemaglobin both increased. Havent had an infusion yet since discharged. Appetite is coming back slowly. Once again I want to thank you all for your cares

I think we should def start a new thread for DaddysGirl, if you want ill start it for you

roryhorsburgh's picture
roryhorsburgh
Posts: 16
Joined: Jul 2012

Hope all is going well. I just signed up with cancer survivor network. I heard about your situation through a friend who survived Lymphoma. He is watching your posts. I suffer from Hodkins Lymphoma. I am set up to receive stem cell transplant. I am going to beginning the process towards the later parts of July. Well a nurse just showed up to my house got to cut things short.

God bless you and your family Mike.

I will get back with you.

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