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Auto Stem Cell Transplant Tomorrow Morning

coachmike
Posts: 143
Joined: Oct 2011

Tomorrow morning in go in for my Auto stem cell transplant to treat my B Cell Non Hodgkins Lymphoma. Any words of advice or experience wit this procedure would be greatly appreciated.

allmost60's picture
allmost60
Posts: 3167
Joined: Jul 2010

Hi Mike,
I was hoping to hear today was better for you. Isn't a good night sleep a "wonderful" thing when going through treatments? I got so sick of just getting 2 to 3 hours sleep and then trying to function the next day!..UGH! Keep up the good work buddy. Sue
(FNHL-2-3a-6/10)

DadysGirl
Posts: 318
Joined: Aug 2011

You did great and wishing you'll continue to do even better and hoping praying it'll never come back for you my Dad and others... If you have energy could you please share with us your age, the stage, locations, treatments you've had in past and whether you were in remission before transplant, also if you other health issues... Only if you have energy... Take care... And looking forward to more wonderful news from you... I really appreciate the responses...made me cry... Yesterday felt down like nobody cares...I'm sorry I'm being too emotional...

jimwins's picture
jimwins
Posts: 2021
Joined: Aug 2011

I can hear them now, getting into the marrow and making those
much needed cells! Do you hear them?

Stem Cells Going to work... ☺

Keep us posted and hope you get to go home soon, Mike.

Jim

DadysGirl
Posts: 318
Joined: Aug 2011

How is your day 2 going Mike? Dad's platelets are still low for the transplant. Most likely is going to be admitted on Tuesday. T ake care and looking for good news from you.
Our prayers and thoughts are with you.

DadysGirl
Posts: 318
Joined: Aug 2011

How is your day 2 going Mike? Dad's platelets are still low for the transplant. Most likely is going to be admitted on Tuesday. T ake care and looking for good news from you.
Our prayers and thoughts are with you.

allmost60's picture
allmost60
Posts: 3167
Joined: Jul 2010

Hi DaddysGirl,
I'll be thinking positive thoughts for your dads platelets to improve so he can get things going. Keep the faith! Best wishes...Sue
(FNHL-2-3A-6/10)

DadysGirl
Posts: 318
Joined: Aug 2011

Thank you so much Sue. We really need it just as everyone else needs it. I so very much wish for a cure for all cancers... Wishing everyone health and cure after going through such difficulties... Wishing all the families long healthy lives... Best regards...

coachmike
Posts: 143
Joined: Oct 2011

Hey Everybody!

Day two was a boring day really. Feel fine, no complications or fevers. Going a little stir crazy i guess lol. I dont have too much of appetite right now so i just snack little by little, not too concerned with that bc I was told thats very normal. Hey atleasst ill get rid of the pesky few pounds that ive been trying to get off for years lol. But overall I really dont feel bad at all. I am a very active person ( i run a gym) so being confined in a room has been the hardest obstacle for me in all. Today however I feel like im able to see the light at the end of the tunnel...going home in a week or so which definitely makes me happier. I want to thank you all for you prayers and well wishes. Daddys Girl, I will continue to pray for your dad.

DadysGirl
Posts: 318
Joined: Aug 2011

Yeaaaahhhhhhhhh :)))))))))))))))))))))))))))))))))))

C'mon Hoping & praying for a wonderful #3 and counting...

Thank you so much Mike, I'm sharing your good news with Dad. I kept reloading this page all day today saw it as soon as it was posted... Was getting worried for you when I didn't see any post today... Just had a chance to write after dinner... Take care....

coachmike
Posts: 143
Joined: Oct 2011

Hey Guys

Today has been uneventful. Starting to feel a little fatiqued but im still staying on the course, walking the halls and finding ways to entertain myself. Not too much of an appetite but the doctors tell me that it is completely normal. One day down and getting closer to being able to go home. Miss my dogs and really wanna sleep in my own bed. Funny how you miss the small things when you dont have them anymore. Thank you all for your prayers and wishes.

DadysGirl
Posts: 318
Joined: Aug 2011

:)))))))))))))))))))))))))))))))))

allmost60's picture
allmost60
Posts: 3167
Joined: Jul 2010

Hey Mike,
We like "uneventful".... it sure beats the heck out of the alternative!! Hospitals are definetely not the fun place to be for long stays. B-O-R-I-N-G!!! My last hospital stay consisted of 6 days(back in 2006), and I about went stir crazy come the 3rd day in. Couldn't wait to get to crawl into my own bed and soak up the comforts of home. The chairs in hospitals rooms are NOT comfortable for watching T.V or reading..at least they weren't at the hospital I was in. Hang in there friend...it's gonna be time to go home before you know it! By the way...your daily updates are just awesome and very much appreciated. Can't remember anyone being as diligent as you've been, so "THANKS"! :) Sue
(Follicular NHL-stage3-grade2-typeA-Dx 6/10-age61)stable.

jimwins's picture
jimwins
Posts: 2021
Joined: Aug 2011

Like Sue said, "uneventful" is good ;).
What type of dogs do you have? Just curious.

Keep it up and you'll be out of there in no time!

Jim

coachmike
Posts: 143
Joined: Oct 2011

two beagles

DadysGirl
Posts: 318
Joined: Aug 2011

I didn't read Jim's comment and just saw Mike's and thought he meant to write two bagels... Thinking he had two bagels for breakfast... Since he didn't have appetite I thought he was just letting us know his appetite was good this morning :) then read the comment above :)
Hoping your 4th day is better than 3rd with some appetite...

jimwins's picture
jimwins
Posts: 2021
Joined: Aug 2011

LOL - yeah I'll I'll have "two beagles" with cream cheese please ;).
Actually that just made me hungry - haven't had breakfast yet:).

Hugs,

Jim

DadysGirl
Posts: 318
Joined: Aug 2011

:))))))))))
I hope you had a nice breakfast Jim, hoping Mike ate well as well...
I truly wish everyone to have long healthy lives with their loved ones...

jimwins's picture
jimwins
Posts: 2021
Joined: Aug 2011

Cool. I love dogs - don't have any now but considering
it - pets can be such good therapy.

Hope you get to see them soon!

Thanks,

Jim

miss maggie
Posts: 929
Joined: Mar 2010

Hello Mike,

As I said above. everything comes to an end. Both good and bad. The good news,
you are doing so well and staying the course. I've been where you are. In the hospital
for 3 weeks when first dx. For me it was so bad, because my small bowel perforated, had
to have resection. I was in ICU for 1 week, then 2 weeks healing further. Sept 2009

Just remember, you are not alone. I know just how you feel. God bless and speedy
treatment, then home sweet home.

Love Maggie

coachmike
Posts: 143
Joined: Oct 2011

well another uneventful day. they changed my lines today so i got like a four hour break from my iv pump. was nice to shower and walk the halls without draggin that thing behind me. no complaints really. i feel ok...my counts are low and im sure ill be getting blood or platelets if not both tonight. i start my neuprogen tonight to help kick start these WBCs to get to work. keeping the faith and my eyes on the goal. just a bump in the road. but im definitely ready to get home soon. my doctor is very impressed with the way ive tolerated everything so far, thats encouraging. i want to thank you all for your prayers and well wishes. i will continue to pray for you as well.

DadysGirl
Posts: 318
Joined: Aug 2011

We are glad you are doing well Mike, I just hope and pray my Dad and everyone else also does well, even if they have a difficult time I just pray and hope the end result will be wonderful clean, remission and eventually cure... Out of curiousity how many rooms in your hospital for sct unit? Our hospital there is only 6 beds ie. 6 rooms only. The hallway they say is a mile if you go back and forth 40 times. We are also impressed with you :)))
Take care and wishing you nothing but the best of the best with remission and cure Mike... Please continue to keep us in your prayers...

allmost60's picture
allmost60
Posts: 3167
Joined: Jul 2010

Hi Mike,
Getting the 4 hour break off of the pump must have felt heavenly! I'm so pleased each day to hear how well things are going for you...keep it going buddy! You've eased alot of my worries concerning the SCT procedure, especially when I go to that scary place in my thinking that maybe someday I could be facing the same thing! I'll always remember how it went for you and have hope (if needed), that I could fare as well as you. Your a huge inspiration! Continued prayers and positive thoughts coming to you...Sue
(FNHL-2-3a-6/10)

jimwins's picture
jimwins
Posts: 2021
Joined: Aug 2011

So good to hear you're doing well :).
I agree with Sue - you are an inspiration to us all.
Many of us have the "scary place" in our heads about SCT.

Thanks for the updates and inspiration too!

Jim

coachmike
Posts: 143
Joined: Oct 2011

Well is day +5 and I really feel fine. No complications. Actually my labs came back last night and the WBC moved up slightly before starting neuporgen!!! That made me feel more at ease. Last night and the following three nights ill receive an infusion of neuqprogen to get them stem cells a healthy push to get to work. My personal goal is to be able to go home this upcoming weekend. That would make me so happy to be able to start recovering in the comfort of my own home. I really want to thank all of you for your prayers, they have been so helpful as I start this journey.

DadysGirl
Posts: 318
Joined: Aug 2011

:))))))))))))))))))))))))) MIKE!!!
Did you need any transfusion last night as you thought, I'm assuming no from your post :)))
Great Mike... how is your apetite? could I ask your age, just wondering because of my Dad being a little on the older side...
Take care... don't answer any questions you don't feel like answering :)))
I bet you being active also helped out, they say if you walk, take shower then you will most likely do much better...

allmost60's picture
allmost60
Posts: 3167
Joined: Jul 2010

Once again Mike..."YEAH"! I'll keep positive thoughts for a weekend release! So proud of you my friend, and totally happy with your good progress! Love...Sue (FNHL-2-3a-6/10)

kalalaud
Posts: 14
Joined: May 2012

i was on here to look for any postings regarding auto stem cell treatments and i came across your postings.. praise be to god you are doing so well and your positive posts are so awesome! my son will start all of this on july 5th..and i'm really scared but trying to be positive for him.. he's so upset and scared! we just got off the phone with the nurse and from what she was telling us... all of the things he's gonna be going through got us to be really concerned with all of this. they are telling him 3 months is what he's looking at for his treatements... is it really as bad has it sounds? please rub some of that positive thoughts and energy into us... i always love hearing the positive during this time....any suggestions of what he needs to do or how i can get his mindset ready for all of this?

jimwins's picture
jimwins
Posts: 2021
Joined: Aug 2011

Keep it up!

coachmike
Posts: 143
Joined: Oct 2011

I am 34 and was very active and in shape when I was admitted. My doctors told me that would be beneficial with the recovery period.

DadysGirl
Posts: 318
Joined: Aug 2011

:((( my Dad is 65 but I hope with prayers God willing he will get through it okay and hopefully be cured... He is my Dad and even if he is 100 we still want them around... we know we are in for rough times as he is not in the best shape and his age also adds to it as well.. but I hope everything will be great. He never went into remission so we've been dealing with this since beginning... I really hope this will put him in remission and cure...
wishing the same for you and everyone else as well...

DadysGirl
Posts: 318
Joined: Aug 2011

:((( my Dad is 65 but I hope with prayers God willing he will get through it okay and hopefully be cured... He is my Dad and even if he is 100 we still want them around... we know we are in for rough times as he is not in the best shape and his age also adds to it as well.. but I hope everything will be great. He never went into remission so we've been dealing with this since beginning... I really hope this will put him in remission and cure...
wishing the same for you and everyone else as well...

coachmike
Posts: 143
Joined: Oct 2011

just to let you know the doctors said that right before i was admitted that a 75 yr old man breezed right through the treatment and was discharged on day +15.

DadysGirl
Posts: 318
Joined: Aug 2011

Thank you so much Mike for the comforting information and words... I appreciate it very much. I shared the information with my Dad and family right away... they are all wishing you the BEST... Regards...

anliperez915's picture
anliperez915
Posts: 751
Joined: Sep 2011

Hi Mike,
I'm really happy for you, It's great that you haven't had any complications and that you're feeling fine. I really do hope you can go home this weekend! Take care wishing you only the best! (((Hugs)))

Sincerely,
Liz

coachmike
Posts: 143
Joined: Oct 2011

Hello Everyone

Well I woke up today and I feel great!!! Its so weird how everyone is different. I know that many people struggle with this treatment and then there are others who kinda sail through it. So strange to me. Im not out of the woodworks by anymeans but for the here and now I feel good. I am so blessed. Last night I did have to have blood transfusion, my hemaglobin had dropped slightly below the level that they want me to be at so therefore I got a dose of blood. Im joking with the doctors telling them that im ready to go home now but they dont seem to agree lol. White cells are staying at the same level but i heard thats normal. From what ive been told once the levels start to go up they go up at good and somewhat rapid rate. SOOOOOOO im constantly giving my stem cells a pep talk and reminding them of their job and that they need to get to work!
I have such an amazing support group that has surrounded me with love and support that it sometimes seems unreal and almost selfish like to me. But I know that they love me and are fighting this battle everyday by my side.
I also want to thank all of you here that have given encouragement and well wishes at all. We are all in this together. We are all human and with that comes many emotions, some being vulnerability and fear. Having a place to come and share fellowships with others that can relate to you and your situation is a great method to ease some of those fears that we live with everyday.
My prayers are with you all

DadysGirl
Posts: 318
Joined: Aug 2011

Thank you so much Mike for letting us all know of how well you are doing... We are all extremely happy seeing you get through this journey with such ease (of course there are I'm sure still many minor difficulties but at least you did not have to deal with any complications so far)... we hope and pray it continues the same way and you'll get cured.
Again we went to first get blood work today before heading up to stem cell transplant unit, but again the blood work was not there yet... platelets went from 25 or 26 last Tuesday to 65 last Friday and today was 85, they called the doctor and again no, it needs to be at 100 at least... so we came back with the luggage and all and will be heading back up there again tomorrow early morning...do you recall your platelet levels? How many days did you go in for the harvesting and how long after did you get admitted? I don't know how normal this is... and it makes me worry... but again the end result I hope will be a cure for my Dad and everyone else fighting with cancer... Mike if you don't mind answering were you ever in remission before the transplant?
Take care...

coachmike
Posts: 143
Joined: Oct 2011

I do not remember my platelet levels. I did four days of harvesting and collected 4.1 million stem cells. I harvested over the memorial day weekend and went in 6/12/12. My cancer was reduced by 98.5 percent will one spot in one of my lymphondes that was termed residual. I was never in full remission but was in partial remission.

DadysGirl
Posts: 318
Joined: Aug 2011

I wonder if they were waiting for your platelets to go higher... My Dad went in on 12th for three days and looks like you went in for transplant process ~15 days after the collection, so we are in similar situation then... (of course unless you chose to go in around that time)
My Dad was diagnosed stage 3 with neck, chest abdominal around aorta mesentric area as well as right tonsil... with 3 rchop neck tonsil chest was gone and abdominal was reduced ~80-90%. After 6th rchop nothing changed in abdominal area... they did another 2 rchop total of 8 rchop treatments... about 1/3 reduction seen on the two lymph nodes that had reamined in abdominal area... doctor said to wait 3 months for a repeat of scan to make sure it is not inflammation. Dad started to have abdominal discomfort, doctor did a petscan a month earlier at 2 months and after 8th treatment the two lymph nodes had an suv uptake of 14 and 21 and now two months later the two had grown and now had suv uptake of 21 and 30. They decided on SCT. He went in for two RICE treatment in hospital setting... the new petscan showed a reduction of about 40% and doctor wanted to continue with SCT without doing any further chemo to not cause any more toxicity / damage... he is hoping with high dose chemo hopefully it will disappear... I wish he was in remission before the process but I just hope the end result will be clean and hopefully a cure because its a very aggressive type of lymphoma...
The suv uptake has gone down to less than 8... I don't know what has happened since his last chemo because it's been almost 1.5 months... I hope they haven't grown but just gone smaller... they said they won't be doing another pet before sct as it will not change the course...

coachmike
Posts: 143
Joined: Oct 2011

my admittance date was my date of choice...they let me choose when to come in based on my schedule

jimwins's picture
jimwins
Posts: 2021
Joined: Aug 2011

I'm so happy for you!

Reading your posts, I can strongly recall how I was ready to go home - not
from SCT but my treatments were done as an in-patient.

Just think, you're not too far away from all the beagle kisses and yelping - LOL ;).

Good news is always encouraging to all of us.

Jim

DadysGirl
Posts: 318
Joined: Aug 2011

Mike, is your apetite better now? They say everyone will have no apetite... I hope yours is back...

coachmike
Posts: 143
Joined: Oct 2011

it is slowly coming back...i eat a couple peices of toast and crackers each day

DadysGirl
Posts: 318
Joined: Aug 2011

wow so they are right when they say you won't have apetite...
I'm glad its coming back Mike... I was telling my brother about you going through stem cell transplant and how well you were doing and how you mentioned about the 75 year old man and he asked if you had mouth sores, I told him I don't think so as he hasn't mentioned it and most likely he would have if he did... they had told us the whole digestive track will have problems and mouth sores were also mentioned especially with the last days infusion of M for 15 minutes BEAM..

coachmike
Posts: 143
Joined: Oct 2011

i did not get mouth sores but my mouth and tongue did get tender. The day that the melphalan is given your dad really needs to chew ice while its being infused if he can. I chewed and chompped on ice the whole time and thirty minutes after to restrict the blood vessels in my mouth so the chemo wouldnt pass through those veins and create sores. It worked for me.

DadysGirl
Posts: 318
Joined: Aug 2011

Thank you so much for that info, I read about that online and mentioned it to the sct coordinator when she went through the chemo regime my Dad will be receiving and she said that chemo will work several months and your Dad would have to chew on ice that whole time then if that were true... I'm definitely going to have my Dad chew on ice if it helps some it may help my Dad and I heard the sores are so awful even with a single mouth sore people can be put on morphine... I'm glad you didn't have to deal with that... I hope I'am not tiring you out with questions... Take care and have a wonderful restful pleasant evening.

coachmike
Posts: 143
Joined: Oct 2011

Hey guys

So yesterday the doctor told me how happy he was that I am progressing through the procedure so far. I have met all the requirements to go home except my white blood cell levels...so as soon as they hit a certain level i get to go home!!!! I feel good and am doing ok. I am slowly getting back to eating small portions couple times a day.
Thank you all for your cares and well wishes

allmost60's picture
allmost60
Posts: 3167
Joined: Jul 2010

Good morning Mike...(7:50 a.m pacific time for me)
Gosh darn those white blood cells...they need to hurry up and level out! You've done so good! Let us know when you get your official marching orders, and in the meantime keep eating to keep your strength up. Hang in there friend... Sue (FNHL-2-3A-6/10)

DadysGirl
Posts: 318
Joined: Aug 2011

So glad for you Mike... Dad's platelets were 90 today but they decided to admit him... We are here day -6...
Feeling very scared but hoping praying for the end result to be clean, remission and cure without major complications... Please keep us in your thoughts and prayers... Thank you everyone....

coachmike
Posts: 143
Joined: Oct 2011

Great news...doctor just came in my room and went over my prescriptions that I will be taking home with me bc he expects me to be going home soon!!!! I am so happy. All were waiting on is my White Blood Cell count to reach a certain level then im outta here!!!!

PS daddysgirl, I will continue to pray for your father during this time.

Thank you all for you well wishes

DadysGirl
Posts: 318
Joined: Aug 2011

Dad is starting the day 1 chemo in a little bit... Never had alcohol b4 so I hope he handles it well Mike...

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