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Auto Stem Cell Transplant Tomorrow Morning

coachmike
Posts: 132
Joined: Oct 2011

Tomorrow morning in go in for my Auto stem cell transplant to treat my B Cell Non Hodgkins Lymphoma. Any words of advice or experience wit this procedure would be greatly appreciated.

forme's picture
forme
Posts: 1151
Joined: Aug 2010

Hi Coachmike

I have not had a SCT. But I do want to wish you the very best tomorrow. Hope that all will go smoothly for you and that your recovery is as easy as can be.

I am sure that someone who has had the SCT will respond shortly.

keep us posted through your process.

All best wishes as you start your new journey.
Lisha

diazr1's picture
diazr1
Posts: 101
Joined: Mar 2012

If you are going to be at City of Hope let me know your room number and I will try to stop by and talk to you if you would like . I have done 2

coachmike
Posts: 132
Joined: Oct 2011

im receiving treatment at MCV in richmond va

diazr1's picture
diazr1
Posts: 101
Joined: Mar 2012

CoachMike try to eat your meals, if you cant then drink meal replacements like Ensure. Do you walks the best you can , Stay positive like others say welcome your friends and family

roimer72's picture
roimer72
Posts: 3
Joined: Jun 2012

Hi Coachmike,

I had Allogenetic Stem Cell transplant last year, and what helped me the most during this time was to keep my mind positive and welcome friends and family, they are the best to keep you going, if you believe in God on any other positive source keep it close this is what helped me the most.
I wish you the best and thank God and technology to have this new procedures to save our lives.
Rosy

allmost60's picture
allmost60
Posts: 3093
Joined: Jul 2010

Hi Mike
Haven't had it done, but wanted to wish you a good day tomorrow. Will keep you in my prayers. Come back when your up to it and let us know how it goes. Keep the faith and stay as positive as possible. Best wishes...Sue (FNHL-2-3A-6/10)

jimwins's picture
jimwins
Posts: 1840
Joined: Aug 2011

Hi Mike :).

I don't have experience with this procedure but wanted to send
warm hugs and positive thoughts to you. Please keep us posted
and you know we're here.

Hang in there and this will be over in no time!

Jim

coachmike
Posts: 132
Joined: Oct 2011

Im all checked in and start the first dose of chemo in couple hours...little nervous but more in a mindframe of ready to get this started so I can get it done. Praying that everything goes smoothly. Thank you all for your prayers

allmost60's picture
allmost60
Posts: 3093
Joined: Jul 2010

Hey Mike,
Well...now comes the fun stuff..NOT! I'm glad you've got your mind set to just wanting to get this done and behind you...what else can you do!? It's natural to be nervous, and I'd think something worse was wrong with you if you had said different..ha! I am praying for you today and will be sending positive thoughts your way. Sit back and take a deep breath....all will be well, friend...all will be well! Blessings and best wishes..Sue
(FNHL-2-3a-6/10)

jimwins's picture
jimwins
Posts: 1840
Joined: Aug 2011

My thoughts are with you.
You'll get through this.

Hugs and positive thoughts,

Jim
DX: DLBL 4/2011, Chemo completed 10/2011, currently in remission. :)

anliperez915's picture
anliperez915
Posts: 709
Joined: Sep 2011

Hi Coachmike,
Just wanted to say hi and to wish you the best today! I will be praying for you and stay strong! Keep the faith

Sincerely,
Liz

cathyp's picture
cathyp
Posts: 366
Joined: Dec 2009

Adding my prayers!
Cathy

diazr1's picture
diazr1
Posts: 101
Joined: Mar 2012

Oh yeah flirt with the nurses

coachmike
Posts: 132
Joined: Oct 2011

ok so im day -6 of the transplant and the first day of chemo went well, no complications. Feel good today and did lots of laps in the hallway. Trying to stay active and focused on staying healthy and getting back to being "normal".

allmost60's picture
allmost60
Posts: 3093
Joined: Jul 2010

Hi Mike,
Thats great news...keep up the good work! Anytime you can keep moving, it will help in so many ways. Just be sure to tie the strings on the back of your hospital gown while doing your laps...ha! Keep us posted and I'll keep positive thoughts coming your way. :)
Sue (FNHL-2-3a-6/10)

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Don't listen to Sue. Keep those ties hanging loose and hope there are plenty of pretty nurses walking around.LOL John

miss maggie
Posts: 929
Joined: Mar 2010

Dear Mike, Yes, I am so happy everything is going good.

To John and Jim. It is always such a pleasure reading your posts. Both of you always start
my day with a great big smile.

Hugs to you both. Maggie

jimwins's picture
jimwins
Posts: 1840
Joined: Aug 2011

Hi Mike and thanks for the update and glad you're doing well.

In response to the comments about the hospital gowns:

I'm sure the nurses are accustomed to "cheeky" patients and "full moons" ;)

Hospital Gowns ☺

The gowns are a pain. I mostly wore "Joe Boxer" type bottoms with the hospital gowns
and learned the gown was much easier to put on if I placed it on the bed and tied/snapped
the shoulder areas first and then slipped into it. Then I would tie the side.
I generally preferred to let the tube(s) to my port come out the sleeve of my right arm.

You're doing super!

Hugs and positive thoughts,

Jim
DX: DLBL 4/2011, Chemo completed 10/2011, currently in remission. :)

coachmike
Posts: 132
Joined: Oct 2011

so day three here at MCV transplant center in Richmond VA. No complaints, feel fine. Did my laps and got me an exercise bike in my room today which is great. Counts are still holding up strong. Taking each day at a time and knowing that each day that passes is a day closer to being done. Already miss my bed and my normal routine but reminding myself that this is a bump in the road and is only temporary.

lboehlke's picture
lboehlke
Posts: 17
Joined: Apr 2012

Here's hoping everyday is as good as the past few days.

Lance

jimwins's picture
jimwins
Posts: 1840
Joined: Aug 2011

That is great news and you have a great attitude which helps alot!
It will be over before you know it.

allmost60's picture
allmost60
Posts: 3093
Joined: Jul 2010

Two thumbs up Mike! So glad this is going well for you! Hang in there...Sue
(FNHL-2-3A-6/10)

coachmike
Posts: 132
Joined: Oct 2011

well its my fourth day here and still doing well. i have another chemo tomorrow, starts with an M and then its done with the BEAM regiment. had all my tubes replaced today which allowed me bout two hours not connected to the pump so got lots of laps in today. the food here sucks and they dont allow people to bring foods in. so i have been eating lots of frozen meals instead of the hospital food. still focusing on the road ahead and realizing every passing day is a day closer to me getting to go home. thank you all for your prayers and well wishes.

vinny59's picture
vinny59
Posts: 1030
Joined: Nov 2006

Great attitude, think of the end prize! Hospital food is the worst!!!!! My wife would bring me in soup......... Stay strong Vinny

jimwins's picture
jimwins
Posts: 1840
Joined: Aug 2011

Thanks for the update! Hopefully you'll find some
of the hospital food palatable. I was lucky. Where I was
the food was pretty good for the most part and for cancer and
certain other patients, we got to order from a menu and
call it in like room service. It was very nice and made it seem
less like a hospital in some ways.

You're doing great, Mike!

Jim

coachmike
Posts: 132
Joined: Oct 2011

Well Its my fifth day here, only one more day of chemo and then day of rest then i get my babies back in me lol. Doctor came by this morning and was very pleased with how im handling the chemo so far. Not any complaints really. Not sure if thats gonna last but right now im just gonna focus on the fact that im feeling pretty good. Had a little scare of a infection but the tests came back negative so thats good. Appetite is doing well, although I hate the food here. I want a fresh salad so bad lol. Looking forward to getting home and back to my life partner and our dogs. Going through this really makes life be seen by a different light, crazy to say this but taking this journey has made positive impacts on my life.

allmost60's picture
allmost60
Posts: 3093
Joined: Jul 2010

Hi Mike,
I'm so glad you are doing so well with everything! The finish line is getting closer buddy! I know what you mean about the cancer making positive impacts on your life. I too look at everything in a different light now. The little things in life that use to annoy me just don't matter anymore. For me it's all about family and enjoying each day to it's fullest. Thanks for keeping us posted...your attitude is just amazing! I'm looking forward to hearing how great that salad tastes when you get home! Sue
(FNHL-2-3A-6/10)

coachmike
Posts: 132
Joined: Oct 2011

So today is the last day of chemo...the M of the BEAM regiment. Still doing good so far. Eating lots of ice chips as I take this so not to get such bad mouth sores. Still feel good and still have an appetite. No complications yet really. Staying active, walking the halls and riding the exercise bike they brought to my room. Doctors are pleased with the way im tolerating the chemo so far. Now I guess its the rest time frame that im monitored and getting the preparations for release. Been almost a week and im defintely ready to go home lol. Sooner than later hopefully. Thank you all for your cares concerns and prayers!

onlytoday's picture
onlytoday
Posts: 573
Joined: Jun 2010

Coachmike,

So glad to hear that you are doing so well! You sure are an inspiration to us all. Haven't experienced what you are going through right now. How long will you be in the hospital?? Praying for your continued strength.

Hugs,
Donna

coachmike
Posts: 132
Joined: Oct 2011

tomorrow is my day of rest and will get my stem cells back on tues...then its approxiamtely two weeks of recovery before im released. thank you for you prayers they mean so much

jimwins's picture
jimwins
Posts: 1840
Joined: Aug 2011

Do something nice for yourself today!
You're still doing great!

Hugs and super positive thoughts your way....

Jim

miss maggie
Posts: 929
Joined: Mar 2010

Dear Mike,

You inspire all of us. I know how important it is to finally go home. I've been there. In the beginning of my dx I was in the hospital for 3 weeks.

Home Sweet Home. Love Maggie

coachmike
Posts: 132
Joined: Oct 2011

well last night was rough because of the amount of fluids that they were pumping in me to flush out the chemo, as a result i had to get up and go to the bathroom every hour and half literally. so didnt sleep too much. Slept in this morning and feel well all in all. gonna take it easy today i think and watch some movies and just kinda veg out lol. tomorrow i get my stem cells back!!!! I want to thank you all for your prayers, they mean so much right now

cathyp's picture
cathyp
Posts: 366
Joined: Dec 2009

Thanks for taking the time to share your journey with us. I guess tomorrow will be another kind of birthday to celebrate for you! All the best.
Cathy

DadysGirl
Posts: 297
Joined: Aug 2011

It's 3:25am right now and came across your posts. I'm glad you are doing so well, I just hope my father will also do as well as you. How old are you Mike? My Dad is in his 60s. Did you ever go into remission before starting stem cell transplant. My Dad never did so he is considered primary refractory disease. He has large diffuse b cell no hodgkins lymphoma diagnosed a little less than a year ago. I hope and pray the dayss to follow will also be great for you similar to last week. Wishing you cancer free long healthy life with your loved ones. Please keep my father in your thoughts and prayers... am very nervous and scared...
Regards...

anliperez915's picture
anliperez915
Posts: 709
Joined: Sep 2011

Hi Mike,
I have been following your story, just wanted to say that you are such in inspiration to us all! You're doing great keep it up...sending you only positive thoughts. Take care (((Hugs)))

Sincerely,
Liz

coachmike
Posts: 132
Joined: Oct 2011

So today I got my stem cells back!!!! So I guess I have a new birthday lol. I have to get another dose tomorrow bc they limit the amount of cells you can get in one day. But so far im doing well. Fatigue is becoming a factor thats mainly it. Keeping my head up and focusing on the end result keeps me focused. Thank you all for your kind words and well wishes.

CHRIS M001's picture
CHRIS M001
Posts: 23
Joined: Jun 2012

Mike you are doing awesome. I am new to this board and have been reading your posts. I cant believe how good your are doing with the chemo. I haven't had a transplant but I had a hard time just getting through 6 months of CHOP. I have my 2nd post chemo PET scan tomorrow. The first one i did post chemo back in April showed a positive PET with no swollen Lymph Nodes. Doctors told me it was just inflammation from the chemo but I am pretty nervous about this next scan. If it doesnt come out so good i may have to have a stem cell transplant myself. Reading your posts gives me some comfort if I was to have to go through this. You definatley have a great attitude and that isn't easy battling cancer. You got this!

allmost60's picture
allmost60
Posts: 3093
Joined: Jul 2010

Hi Chris,
Good luck tomorrow with your scan. I'll keep you in my prayers for good results! Let us know what you find out. Best wishes...Sue (FNHL-2-3a-6/10)

allmost60's picture
allmost60
Posts: 3093
Joined: Jul 2010

Hi Mike,
I'm so happy for you! Won't be long now and you can have that yummy salad you've been craving. Your doing great! Best wishes for continued success!...Sue (FNHL-2-3a-6/10)

jimwins's picture
jimwins
Posts: 1840
Joined: Aug 2011

Happy Stem Cell to you.
Happy Stem Cell to you.
Happy Stem Cell Transplant....
Happy Stem Cell to you.

Silly - I know :).

Okay, where's the birthday cake?

Hugs and silliness,

Jim

onlytoday's picture
onlytoday
Posts: 573
Joined: Jun 2010

Mike,

You truly are an inspiration to us all. Keep it up friend! We are all with you on this and will celebrate with you every step of the way!!! Can't wait for the day you say " I'm heading home!"

Hugs and prayers,
Donna

bluerose's picture
bluerose
Posts: 1089
Joined: Jul 2009

Hello Mike. Had a auto stem cell transplant for NHL 23 years ago and was interested in your day by day posting. Amazing, you are doing so well it's so great to read of your progress and so inspiring for others who are just embarking on this kind of journey. I know it's helpful for you to blog and reap the support that this site offers so freely but it's also just so inspirational for those who follow. Great to read something like this.

I noticed you were saying that they were pumping major amounts of fluid in to clear the chemo which is a normal way of dealing with it to be sure but just wanted to add that hopefully they are keeping good records of your output of urine too at the same time. I'm sure they are. I had trouble with this during my transplant and it resulted in some difficulties so just wanted to be sure you were on top of maybe asking the nurses if your output was good for the amount of fluids you are taking in. You don't want to retain too much fluid. Just a little heads up.

Anywho so super to read your posts. Hope you continue to do well and get back to your regular routines. I have no doubt that your positive attitude through all of that led to a much easier time with the treatments.

Blessings,

Bluerose

coachmike
Posts: 132
Joined: Oct 2011

So I am getting the remainder of stem cells today...apparently there is a limit to the amount of cells and preservatives that you can be givin in one day. So they gave me the last bit. Had a tough of fever last night, ran cultures to rule out infection but they havent come back yet. Drs feel that its most likely a neurtrapouenic fever. Also I had a rough time with diareah last night but that has seemed to subside today.
They have monitored my urine output a lot, and I can definitely feel that the fluids that they pumped in me are finally starting to come out, very grateful. All in all still doing well considering everything. I want to thank you all again for your support and prayers

onlytoday's picture
onlytoday
Posts: 573
Joined: Jun 2010

Hi Mike,
I am sorry to hear of the issues that you are experiencing. The fever alone can make you uncomfortable but then to have diarrhea on top of it- well my heart goes out to you. Hope that all of that stops completely and you have an easier time of it going forward. What they have done with the stem cells is so miraculous!! Amazing!

You are in my thoughts and prayers and I'm sending positive energy your way!

Hugs,
Donna

CHRIS M001's picture
CHRIS M001
Posts: 23
Joined: Jun 2012

I will pray that your fever goes away Mike. They will have you fixed up in no time.

allmost60's picture
allmost60
Posts: 3093
Joined: Jul 2010

Hi Mike,
Hopefully this is just a small bump in the road and tomorrow will be a better day for you. You've done great so far. Hang in there...you will be going home before you know it.
Best wishes...Sue
(FNHL-2-3A-6/10)

jimwins's picture
jimwins
Posts: 1840
Joined: Aug 2011

I think you're still doing great! I agree with Sue, "bump in the road" :).
I'm sure you're probably getting a little stir crazy being in your little
world there.

Hang in there!

Hugs and positive thoughts,

Jim
DX: DLBL 4/2011, Chemo completed 10/2011, currently in remission. :)

DadysGirl
Posts: 297
Joined: Aug 2011

June 19, 2012 - 3:30am
My Dad is going in for auto stem cell transplant today 19th
It's 3:25am right now and came across your posts. I'm glad you are doing so well, I just hope my father will also do as well as you. How old are you Mike? My Dad is in his 60s. Did you ever go into remission before starting stem cell transplant. My Dad never did so he is considered primary refractory disease. He has large diffuse b cell no hodgkins lymphoma diagnosed a little less than a year ago. I hope and pray the dayss to follow will also be great for you similar to last week. Wishing you cancer free long healthy life with your loved ones. Please keep my father in your thoughts and prayers... am very nervous and scared...
Regards...

They sent my Dad home after chest X-ray EKG checking his port line trifusion catheter lines for any infections and blood work they came and said his platelets are too low for the chemo... We go in for bloodwork tomorrow and then maybe tomorrow or Tuesday we are getting admitted again... Afterc 5 hrs they sent us home...
Mike you are doing awesome please keep us posted... The more difficult times are ahead for you but hopefully it'll just be a little tiredness... Everything will pass in no time and hopefully you and my Dad and everyone else dealing with cancer will go into remission and be cured, hopefully will never have to deal with it again...
Best regards...

coachmike
Posts: 132
Joined: Oct 2011

Hey everybody

Feeling really good today. Was able to sleep well last night which def made a huge difference. woke up feeling much better than yesterday. got my cells back and now im ready for them to get back in that marrow and do their job. make me some white cells so i can go home lol! thank you all for your concerns and prayers.
Daddysgirl, im praying for your father...he and your family will get through this

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