June 9, 2012 - 8:35pm
Alice, since you asked...... First of all., My heart goes out to everyone on this board. What a sad place to have to make friends. However, the understanding, compassion, and ability to identify with each others life changing process is proof that no one is alone in this battle. Whether renal cell cancer or any other health issue the reality of ones mortality hits home. And hits hard. Some of us have experienced death and dieing as a career. Others have not experienced it at all. For those ,We offer as much support as we can. This journey takes many turns. Most of us have to take the ride and not know where it will lead us. Remaining positive and optimistic is the only active influence we can control. This mind set is not only good for ones well being but maybe more for their loved ones. There is not a single parent who wouldn't give their own life for their child so he or she could grow grow up. The same concept applies. Our families depend on our strength. We are all family here. That's why we post.
The unfortunate history of renal cell cancer is that it has been unbeatable. But now, great progress is being made. If there was no hope, this board would have a different focus. There has been much in the medical journals, newspapers, internet and tv news during this past month regarding the huge strides in defeating this cancer. It is promising.
I for one was not expected to beat this disease. Metastatic disease multi organ involvement left me with a poor prognosis. But science offered an option. Unproven, but promising. A clinical trial. Few agree to being a research rat. Most only want approved therapies. Some of us felt we had little to lose.So we signed on. We now know there have been a few deaths due to respiratory complications. Probably an issue of dose management and having an immune system concentrating on eraticating the tumors..I myself, have had some respiratory issues. But I have also been on the highest dose of MDX-1106 for months. Dosage will be perfected with time.
As a result of this trial, I have experienced exceptional recovery. My oncologist spent some time with me this week. We reviewed my progress and scans. From having 18+ tumors that were identifiable, I am now battling only about 4. The others are GONE! This doesn't mean that I have won the battle. It does mean that I will probably not expire from kidney cancer. Another disease may be around the corner, but we'll deal with that when the time comes. The point is that there is hope for all. Opportunities to participate in ground breaking medicine are available to many. Investigate available clinical trials. They are posted on the internet. Challenge your physician to assist you. There is hope. Don't be afraid of this disease. And don't ignore it. Ones life has already been changed. Stand up and face it head on. Be strong for yourself and for your loved ones. Perhaps ones recovery will be dependent on having fought hard and then being the right candidate when the next big thing comes along.Be your own advocate. Or as many here are, be an advocate for the one you love. God bless you all. FLY. Fox loves you.