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anyone else tried GCMAF or got any good or bad stories about it UPDATED great nagalase result <0.9

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

started on gcmaf yesterday, got a runny nose.
just google it, its all about stimulating your immune system
nothing on pubmed for colorectal but the method of action should be the same.
here is the pubmed link for breast cancer test, yes i know not in vivo.
http://www.ncbi.nlm.nih.gov/pubmed/22213287

it costs $170 dollars aud a week , planning for a 30 weeks program. we are stuffed financially temporarily but i have no will power when promising alternative advocates smile and says this is worth a shot. these are friends i trust. well here is hoping.

will check nagalase levels after 8 weeks to see if its worth the dollars.

anyone else done nagalase testing in conjunction with cea tests ?
I would be interested in your experiences as i have started down this path.

especially when still nothing on the table as far as treatments from conventional.
when i die one day, i want to be reincarnated as a guineapig, i figure thats fair.

i need to sell assets but so far wife not agreeing. so i have been cutting back non essential supplements and doctors visits and tests. this has in itself been kind of stressful. the positive to having more focused therapies / supplements is i guess i can tie the biological results to what i am trying.

its only money i keep telling myself. the compound interest on the credit cards is about as scary as the rate of cea rise.

its taking a while to get the emotions of fear, frustration and dissapointment under control with regard to the latest cea rise.

anyway thats life downunder. i am questioning many aspects of the alternative program i am on.

the only good news is that my gut dysbios is back big time, that my over zealous enemas may have upset my gut bacteria. certainly got some symptoms leakage, gas etc etc recently. that i should have realised was a problem with gut bacteria. so maybe these are somehow related to my rising cea.

so i am back onto progurt probiotic that fixed my gut ultra quick a few months ago.

anyway i am really interested if anyone else has tried gcmaf or has any stories.
its method of action is based on the immune system, i am also doing the nagalase blood test.

smile its a lovelly day to be searching for health.

hugs,
Pete

still sticking to the vegan diet, but its on a short leash.

my peace of mind has deserted me momentarily, like my mobile phone for 24 hours.

i think loosing my phone and my contacts, recordings and photos was as stressful the cea rise.

how a test result can tip my world upside down is intriuging for me. i need to realise is still am well, have no symptoms and great health. to let a test result dampen my mood is kind silly, i don't want to ignore the result, just deal with the result appropriately.

i am going to have to come up with a good framework for coping with "setup backs", thats what the alternative crowd call normal tumour progression.

just a few randon thoughts here, soon the peace of sleep, it can come a minute to soon.

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

listening right now, not surprising.

clear scan.

http://petertrayhurn.blogspot.com.au/2012/07/ken-sesel-senior-radiologist.html

i got the result while i was cooking tea for my wifes birthday dinner. the kids and i baked an organic cake and chocolate mouse.

hugs,
pete

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

so the nagalase result still looks good, while the cea which is rising is driving lots of tests and scans with all clear results.

is nagalase a better marker ????????????????

for me maybe yes, i have to determine the other possible causes of cea rising. now i can clearly see why onc's don't issue chemo based solely on cea rises.

could nagalase be the marker for colorectal for the future ????

now i asked my gcmaf about my cea rise and the conference call.

he is out of gcmaf! i am going to source this myself, as my surgeons out and i might be able to get it supplied from somewhere in australia.

hugs,
pete

manwithnoname
Posts: 402
Joined: Jun 2012

I really believe its a good marker, a few publications seem to confirm it, are you still doing Gc-MAF? we have just arranged ours, getting it flown in with a friend from Japan.

*Update* just googled 'gcmaf' this thread and not much else about cancer (still), you are on the crest of the wave Pete, good place to be ;-)

herdizziness's picture
herdizziness
Posts: 3492
Joined: Apr 2010

just making sure no edit

manwithnoname
Posts: 402
Joined: Jun 2012

I really believe its a good marker, a few publications seem to confirm it, are you still doing Gc-MAF? we have just arranged ours, getting it flown in with a friend from Japan.

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

I still have a rising cea, to get to the bottom of.

now the gcmaf alt doc also suggested i good get harvested real granulocytes in preference.

i still have to have the big talk with onc and my gcmaf alt doc, now the results are in, getting cea done monday. so this markers behavour over the last 4 weeks will be interesting.

the mri results more closely align mondays cea result.

I hope we are both on a good crest, and that its a long long and enjoyable ride.
i love surfing, am not very good, its on my ever increasing bucklet.

i took the kids to brave and iceage4, they loved them. so did i.

hugs,
pete

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

see these links for details if you are interested.

just google maf and probiotic

http://cancergrace.org/cancer-treatments/topic/gc-protein-derived-macrophage-activating-factor-gcmaf/

http://petertrayhurn.blogspot.com.au/2012/07/maf-gcmaf-yogurt-have-ordered-this.html

where their is a will there is a way.

sweet dreams everyone on csn. another night of dreaming of windmills and of cea's that are zero.

hugs,
pete

lobb
Posts: 9
Joined: Jul 2012

just want to let you know i used gcmaf for about 64 weeks, it was not for cancer but for immune suppression due to very high nagalase 6.7.this is like aids with no hiv

i have crhonic hbv but this cannot make such high nagalase or immune suppression, anyway immune suppressionand all related problems cleared in a couple of weeks becoming very mild, after about 24 weeks they cleared definitively
they were candida infections in mouth and lips, continuous and never clear for years, monthly continuous sevre flu, chronic throteache.....if i was hiv positive i d have been decleared aids....

anyway that s all past, nagalase got down as infections cleared, my last test was in nov 2011 and it was 2.1, i stopped gcmaf one month ago to make interferon and will test nagalase end of july to see if complitely normal.

lobb
Posts: 9
Joined: Jul 2012

by the way zero sides from gcmaf, only welbeing, good sleep at night

i am actually using it for my dog who has breast cancer but she is only at 4 weeks of gcmaf, so too early
she looks much better but size of cancer maybe too big to achieve fast results (about 5cm)

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

Glad you are well, sorry to hear about dog
I like gcmaf succeeds, so few with colorectal try this, none here.
I am doing my duty as a crc guineapig with lots of Therapies, gcmaf the sexiest.
It might even give me a few extra hours, that will be great. Could message /pm me where you got it and the price.

My gcmaf stuff is on my blog

Hugs,
Pete

Ps give dog a pat from me

Pps onc cancelled today's followup MRI, I know it's confirmed good news when my favourite receptionist is calling early the same day as a results consult

lobb
Posts: 9
Joined: Jul 2012

i got it from UK and japan both sources 1000% reliable because i personally know the researchers studying on it and i know it is the real active stuff

lobb
Posts: 9
Joined: Jul 2012

actually since i really know the researchers i could personally witness breast cancer cells experiment with gcmaf added for 24-48hrs (it was only the cancer cells and the gcmaf, no immune system or other cells), well cancer cells turned to non cancer cells by 24 hrs, i could not be there to see the 48hrs effect but it probably continued to transform the cells.

this does not mean gcmaf if the magic cure and we do know it does not work on 20-30% patients due to genetic receptor differences and who knows what but it does work in early cancers and in the rest of patients

to know if it works nagalase test is needed, the responders to gcmaf have a small rise in vitd25oh the first 4 weeks and then a decrease of nagalase.for nagalase values >5 there is immune suppression and aids and i can witness that myself

lobb
Posts: 9
Joined: Jul 2012

also keep in mind it is not a fast cure, i started in may 4 2011 with nagalase 6.7 and in november it was 2.1, just stopped it now to make interferon and because i immuen system works now
the normal values are nagalase less than 0.6, the lowest the better and even when nagalase falls normal it keeps working on immune system because one thing is nagalase in blood flow and another thing is the value inside a cancer or an infected organ, it may take even longer to normalize nagalase there

just my feelings, the japanese version feels more potent

lobb
Posts: 9
Joined: Jul 2012

i will update here my july nagalase tests off gcmaf if hopefully i remeber this forum

lobb
Posts: 9
Joined: Jul 2012

forgot to menthion there is also a probiotic version of gcmaf which makes immediate effect on gut but gcmaf doesn t get in the blood flow, it just activates macrophages thru guts malt membrane and since gcmaf has many many other effects in the blood, not only immune system activator, i d stay with inejctable gcmaf for cancer

it is very expensive and available by doctors in vienna, kassel germany and US.since money is not an issue for me i made combo of injection gcmaf and probiotic gcmaf from feb to may.

my experience is: probiotic is very very potent on gut balance and liver but injection gcmaf (especially the japanese version) feels more potent.

in the CFs forums there are many on this probiotic version called maf314 and some combo like i did, our experience is similar we both feel injectable more potent on pathogens and viruses and the probiotic more potent on gut

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

how could you forget this forum, if you want pm me with your email and i will email you in a couple of months to update the gcmaf story here and goodluck with interferon.

everything you have said backs up what i have read on cfs forums.
the idea of getting gcmaf into blood and as probiotic.

what do you think of dr enlander and maf 878 ?

goodluck with your next nagalase test. i really appreciate your contribution.

hugs,
pete

lobb
Posts: 9
Joined: Jul 2012

i dont like the approch try to copy and sell, this is something horrible in medicine, just my thought

lobb
Posts: 9
Joined: Jul 2012

i cant find how to pm, anyway i am moderator of hbv community at medhelp.org as stef2011, should i forget or lose link to this forum you ll find me there

i do hope not to forget

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

i guess you were refering to the gcmaf probiotic yoghurt techniques being copied.

i understand your concern, i guess my focus is just getting these non patentable techniques available to the masses. even $165 for a months supply of gcmaf yogurt is expensive for me now.

i will check out your community.

hugs,
pete

AncestralManor
Posts: 1
Joined: Aug 2012

Hello,

On July 25, 2012 my 41 year old niece alerted her father (my brother) and her brother (my nephew) that she may have cancer. I and my brother live in Massachusetts (MA), niece and nephew live in South Carolina (SC). First 4 weeks of updates from niece and nephew were contradictory. Nephew was providing 24/7 support and very disturbed about alternative medicine preferences and dismissal of traditional medicine advice. Niece was a bit detached, vague and dismissive, but late stage ovarian cancer was agreed upon.

While this discussion was started for Pete's colon cancer thread, it is the most informative I have found for GCMAF and other alternative approaches +/pr traditional chemo.

Auntie (me) flew down to SC from MA on 8/21 to provide care and try to figure out what is really going on with my niece.

Still absorbing the first month of conflicting reports and even more conflicting reports and observations since I have been here. Malnutrition symptoms include severely wasted arms, face, neck and chest - with distended belly of ovarian tumor and fluid build up.

Ovarian cancer indicator CA125 was well over 100 a year ago when niece refused the recommended hysterectomy. CA125 should be 35 or less. 3 weeks ago CA125 was over 1300, 2 weeks ago it was over 2000.

First order of business for me has been basic nutrition (3 squares), alleviating her constipation, helping her sleep and yet getting her to move out of bed more often.

We are doing ok with that for the time being, but as you folks seem to know all too well, building up body stamina to tolerate chemo long enough for chemo to do it's job can be a challenge.

In addition, I seem to be facing an alternative medicine religion for which I am ill prepared.

Niece just had her 4th GCMAF shot on 8/29 and is due for a 2nd traditional chemo treatment 9/5 - if her blood work etc is ok. In addition to the GCMAF, her alternative approach has included Alpha Lipoic & B12 & vitamin/mineral IVs plus 2 different nutritionists' supplements.

Niece has not told oncologist about alternative MD therapies, and really doesn't want to continue traditional chemo. Her first chemo on 8/13 did not include the full Taxol/Cobol regimen her oncologist recommended - - only Cobol.

On the evening of 8/17 my nephew got her admitted to the hospital for dehydration and constipation - and as was discovered bad blood counts. Niece was in the hospital until the morning of 8/21.

I will only meet with the oncologist for the first time on 9/5, but I have had the opportunity over 4 visits to the alternative medicine office for IVs to witness a disturbing flightiness in the alternative medicine MD.

Alternative MD attributes 8/17 need for hospital regimen to the first abbreviated chemo, while his regimen has a two week head start. He has not looked at the hospital/oncologist test results. I have.

Alt MD does have decent credentials in occupational and environmental detox and rejuvenation therapies, but nothing specific to cancer. The alternative MD's flighty observations are disturbing because he is not measuring anything even basic to his idea that his regimen has reduced abdominal distention, increased weight gain and better color.

In the morning I am going to buy a tape measure, a weight scale and a log book.

I have transferred the oncologist's test results to a spread sheet, as well as creating a food diary and columns for when and what traditional and alternative therapies have been applied.

The log book is for my niece to help her get her involved in her own treatment. I am a geek scientist looking for patterns and team building opportunities. I will build on the spreadsheets as needed and possibly give them to the MDs - if they express any interest.

Thank you all for your many observations and experiences. I hope what we are doing may be helpful for you. But I certainly appreciate having a place where the issues that concern me are being discussed.

Sharon Sergeant

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

Dear Sharon, thanks for sharing your story,
You are a Pioneer.
Keep on trying, I do.
Keep on crying, I do
Keep on smiling, I do
And keep on loving.

Trust your gut, be healthy yourself.

Hugs,
Pete

Ps check vit d3 levels and 125 hydroxy ratios, find a Doctor who can give you the care you need. I found Skype really good.

FarmerJo
Posts: 2
Joined: Aug 2013

Hi,  I have read your posts about GcMAF.  I have a couple of questions that I think you could maybe help me with.  My dad has stage 4 prostate cancer and started to take GcMAF from an alterative doctor.  However, he is soooo very sick.  He has been on it for 14 weeks and has lost about 20 lbs and is in so much pain. From everything I have been reading on this forum there shouldn't be this kind of side effects if you have the "real" thing.  Would you be able to put me in contact with someone who could get him the real product.  I think there is alot of promise but not sure he has the real thing.  Also, how do you get the product to put in yogurt?  Any information would be great appreciated.

 

Thank You so much in advance,

 

herdizziness's picture
herdizziness
Posts: 3492
Joined: Apr 2010

Does his oncologist (your Dad's) say about this?  Did you ask him first?  Please tell me his oncologist is also overseeing your Dad's health.  You cannot put all your faith into an UNPROVEN pile of yogurt. Please let uS know. Sending prayers your Dad's way.

Winter Marie

FarmerJo
Posts: 2
Joined: Aug 2013

 

 

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

still doing weekly gcmaf shots imi. no sides, maybe a dash of flu like the next day.

still doing maf 878 smoothie, have added slippery elm and l-glutamine to the mix, tonight i had a veg juice base to the smoothie. with the frozen pawpaw and cacao, it comes out like a chocoloate shake. despite the tumeric and other spicey ingredients.

my thrush is improving noticably, its likely the heavy duty nilstat is working, but it may also be the zinc, the bebbercap, or the golden seal.

my stools are exceptional. not much to add. i suspect its the probiotic component of the smoothie. i have sourced german quark, as per budwig original formula.

getting nagalase test result tomorrow from alt doc, will update my level when i get the result.

hugs,
Pete

ps newest onc mentioned to time lag in cea drop off from alt therapies is longer than conventional so that even a rise could be die off and that i have to give the therapies time. he also gave me another free pet scan form. god this country has a good medical system, its been 6 months since my last pet. i must book it monday, though i am more interested qigong training

julians
Posts: 1
Joined: Dec 2012

Hi Pete. Any feedback to share with the GcMAF ?

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

so far it did not stop my escalating cea, and the tumours growth in multiple sites.
i used 8 shots weekly from david noakes eu europe, and then i made maf878 i got from ebay from dr erlander.

now my other euro doc mikael has sent me maf314 from ruggerio.

none of the german doctors i have seen are supportive yet. i have seen vogel, nestlehut, copic. when I am paying big money for effective care i play by the clinics rules and don't cheat on the sides.

i still think gcmaf has potential, but i have one doctor who is positive that i respect, the others are neutral or negative on it.

goodluck and thanks for asking.

hugs,
pete

ps i started out this post being positive on gcmaf, the reality of metastatic illness has set in. it may yet save the day, i have been emailing today about this very subject.

pps i made maf314 probiotic yogurt in the hallwang clinic kitchen for 3 weeks and now in the hotels kitchen in duderstadt. you have to make it each week.

mibarba
Posts: 2
Joined: Feb 2013

Hello Pete,

 I previously worked for someone producing GcMAF in the early days, before it became evident to me from the results we were getting back, that GcMAF doesnt help with cancer or HIV (as was first sold for). But I still have access to the customer (patient) feedback database that includes the results and progress of the patients taking the gcmaf.  Maintaining the privacy and security of the patients, I feel its necessary to share some of what Ive learnt from those taking gcmaf, as I feel the gcmaf.eu website is very misleading and the information online is scarce or bias. Unfortunately I cant see any significant results that suggest gcmaf helps with cancer or HIV,  at the 944th patient, There have only been 2 positive results with cancer, and even then the results are inconclusive - no further follow-up, no statistical evidence, simply that the tumour has percievably decreased in size. Everything else has been so far, nonresponsive at best, with a lot of patients stopping taking conventional medicines and therapies in favour of gcmaf, with usually a decline in health. 

 On a further note, the gcmaf is relatively cheap to make, around 400 pounds to make a gram - and each intravenous dose is 100ng (0.000,000,1 of a gram.). Even if this did work effectively, it shouldnt be sold at such a high price (especially when the website says its claiming to be fighting 'Big Pharma' capitalism). Unfortunately its not proving to be helpful and people are paying thousands and losing time and health. 

 This chemical is sold with the idea that pharmacuetical companies put profit above health and 'they' dont want to use this becuase its cheap and unpatentable, so therefore not as profitable. Now i feel pharmacuetical capitalism is one at its most monsterous, but at least theres guidelines and safety checks. Whereas GcMAF is a research chemical, with little known about it, sold to people who are extremely hopeful, and often desperately ill, at extortionate rates, with no real patient care or follow-up or infact solid evidence to back up claims on the website. The person who runs the company has absolutely no medical knowledge or scientific background, only a business mentalilty that has served his economic interests very well at the expense of the wellbeing of people and causing a diversion from real treatment and a distortion of the truth in the search for viable medical help.

There may be some applications or positive implications with gcmaf, but at this time, it needs much more research to discover how, and in its current state i wouldnt recommend that anyone takes it for cancer or HIV. There seems to be positive reports from some autistic children and those suffering from chronic fatigue syndrome, far from all, i may add, but seems there maybe something there.

Sorry to be the bringer of bad news, but i feel its important for those considering options in this difficult time to have all the correct evidence to be able to make a well informed decision. 

I wish you and all those going through similar things all the best.

mibarba
Posts: 2
Joined: Feb 2013

Hello Pete,

 I previously worked for someone producing GcMAF in the early days, before it became evident to me from the results we were getting back, that GcMAF doesnt help with cancer or HIV (as was first sold for). But I still have access to the customer (patient) feedback database that includes the results and progress of the patients taking the gcmaf.  Maintaining the privacy and security of the patients, I feel its necessary to share some of what Ive learnt from those taking gcmaf, as I feel the gcmaf.eu website is very misleading and the information online is scarce or bias. Unfortunately I cant see any significant results that suggest gcmaf helps with cancer or HIV,  at the 944th patient, There have only been 2 positive results with cancer, and even then the results are inconclusive - no further follow-up, no statistical evidence, simply that the tumour has percievably decreased in size. Everything else has been so far, nonresponsive at best, with a lot of patients stopping taking conventional medicines and therapies in favour of gcmaf, with usually a decline in health. 

 On a further note, the gcmaf is relatively cheap to make, around 400 pounds to make a gram - and each intravenous dose is 100ng (0.000,000,1 of a gram.). Even if this did work effectively, it shouldnt be sold at such a high price (especially when the website says its claiming to be fighting 'Big Pharma' capitalism). Unfortunately its not proving to be helpful and people are paying thousands and losing time and health. 

 This chemical is sold with the idea that pharmacuetical companies put profit above health and 'they' dont want to use this becuase its cheap and unpatentable, so therefore not as profitable. Now i feel pharmacuetical capitalism is one at its most monsterous, but at least theres guidelines and safety checks. Whereas GcMAF is a research chemical, with little known about it, sold to people who are extremely hopeful, and often desperately ill, at extortionate rates, with no real patient care or follow-up or infact solid evidence to back up claims on the website. The person who runs the company has absolutely no medical knowledge or scientific background, only a business mentalilty that has served his economic interests very well at the expense of the wellbeing of people and causing a diversion from real treatment and a distortion of the truth in the search for viable medical help.

There may be some applications or positive implications with gcmaf, but at this time, it needs much more research to discover how, and in its current state i wouldnt recommend that anyone takes it for cancer or HIV. There seems to be positive reports from some autistic children and those suffering from chronic fatigue syndrome, far from all, i may add, but seems there maybe something there.

Sorry to be the bringer of bad news, but i feel its important for those considering options in this difficult time to have all the correct evidence to be able to make a well informed decision. 

I wish you and all those going through similar things all the best.

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

interesting comments, gcmaf from nokes i have not purchased, i too was skeptikal.

what i do make re gcmaf is maf314 probiotic yogurt, thats supposed to be supperior to the injection and costs $10 per week.

the real answer is who knows, one of my doctors has a few succesful cancer patients using gcmaf or maf314.

paients can do their own research, your comments should be read by all purchasers. given your claimed cost of production, extorionate seems reasonable.

everyone wants to make a buck out of us, while we are alive.

maybe my maf 314 has helped my getting and stying NED, i was on it and many other things when my tumours died and disappeared. may they rest in pieces.

hugs,

pete

claired36
Posts: 1
Joined: Sep 2013

Hi,

I just wanted to let you know about my experience using GCmaf for breast cancer, that I have treated only through my naturopath. I used it every 5 days, as the potency drops on the 6th day ,for 28 weeks and my last scan has determined my tumor as benign, it also raised my natural killer cells to 72%. I would highly recommend a product called Zell oxygen immunocomplex that i have been using since stopping the injections and it has kept my macrophage and mitochondria open, i get tested weekly at my naturopaths office.

I also did the Bio focus test from Germany that will tell you your natural killer cell levels, what conventional treatment or alternative treatments will work for your cancer, it also told me my levels of circulating tumor cells, it was the best thing i ever did!!! i followed the recommendations for my cancer which were mainy cerosene, vit c, graviola and angiostop and of course im on a strict diet of no dairy, sugar, gluten and hardly any meat, and tons of juices as well as lots of supplements.

I also believe in emotional healing and concentrated on lots of this, i use lots of EFT as i can do this at home.

I wish you good health!!!!!

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