Jun 07, 2012 - 9:47 am
Hi all. I have been checking the boards but have been kind of in the shadows for awhile. I have done so well that I couldnt bring myself to post an update when others have had and are having such a difficult road. I finally decided that maybe my experience would help someone just diagnosed and afraid by showing that we all have varying degrees of reaction to treatment and length of healing.
First off I must say that I didnt really have too much of an issue until the last 2 weeks of radiation when the burns appeared and then for 9 days after the last treatment. Those few weeks were miserable to say the least. The pain with bowel movements was like nothing I had ever experienced, but that said with pain meds and resolve, and support from others here I got through it. I healed quickly, day 9 after the last radiation treatment the pain with having a bowel movement pretty much stopped, I was flabbergasted, 1 day I was holding a towel over my mouth yelling and the next just a little soreness. I tried very hard to maintain my nutrition and hydration (carnation instant breakfast, gatorade with protien, lean meat and mashed potatoes) and I really think that helped with the speed of my healing. For a couple weeks after that I had a few accidents, as I read here before NEVER TRUST A FART! My energy levels were very low, I did alot of sleeping.
I stayed off work for 4 weeks after the radiation because I was just worn out. Have been back at work since second week of May and feel great. My energy levels fluctuate and I have to be careful not to overdue but no complaints there. Naps have become my best friend :) I eat pretty much what I want without issue and have not had to take an immodium for over a month. No bleeding at all so far.
It seems weird to me that things are going so well. I look back now and it seems it all went so fast but it didnt feel that way when I was in the midst of the treatments. My radiation oncologist is amazed, she told me I was the first person that she has treated for this diagnosis that didnt have to take a break from the radiation (not that I didnt seriously think about it when I had only 3 left, but decided to just get it over with). She did a digital exam 2 weeks ago and felt nothing, so thats good.
I have my first post treatment PET scan 6/20 and find myself wondering if the treatment worked. I try not to let myself linger on that thought for long, but its there. I also have my first follow up with the surgeon 6/26 for a visual inspection via anascope. I basically just keep plugging away, keeping busy.
I pulled so much strength from people here, and am grateful that I was directed to this board. I pray each night for everyone on this board. Thank you!!!!!
For those who are just now finding their way here, you're not alone! The advice, support and compassion you can get here is priceless. Do not be afraid to post and ask questions and share you experiences, we all learn from each other.