CSN Login
Members Online: 21

More stinking bad news

jgwright's picture
jgwright
Posts: 252
Joined: Oct 2011

Well phooey. This second round of chemo is NOT working. I have little cancer-buddies popping up here and there. A subcutaneous lump on my ribs under my right breast, sitting in the layer of fat over my right pectoral muscle, and of course that so-called infection in my jaw, which turns out to be a tumor.

So, 24 hours a day, 7 days a week with the infamous chemo-pump. Joy...

--Jerry

jgwright's picture
jgwright
Posts: 252
Joined: Oct 2011

My oncologist recommends I meet with the radiation oncologist. Well, I hope to shout.

Living with cancer rather than dying of cancer. That's what I'm doing.

--Jerry

megmacmd
Posts: 94
Joined: Jun 2011

Hope they can ward off the cancer buddies .Living with cancer is what I do every day as a stage 4 My new scans wernt too bad just one new little peritoneal node and some thickening of esophagus. They want to rescope but Im working and eating just fine and feel great and am enjoying the summer and beach with my kids when they come to visit. So I want to hold off another scope until Im symptomatic still am not sure I will do any more chemo I like feeling good and that was a very long8 months of every other week folfox with 48 hours on a pump.Hope you can get things under control and get back to living as well as you can best wishes Meg

captdave's picture
captdave
Posts: 168
Joined: Feb 2012

Jerry, what rotten news! I'm sorry that things are not going your way right now. Keep the good attitude and we will keep praying for you. Hope the 24/7 treatments will do the trick for you.

Dave

monica_sss
Posts: 57
Joined: Dec 2011

So sorry to hear this - I'm praying that the cancer shrinks and shrivels with the 24/7 treatment.

Guigna
Posts: 71
Joined: Feb 2012

I am disappointed to hear that the jaw infection is also cancer. You have my heartfelt sympathy.

sandy1943's picture
sandy1943
Posts: 883
Joined: Jun 2010

Jerry, so sorry to hear this. I also "hate" cancer-It cuts life so short-hits all ages ( my pastors 2 month old, who passed at 3 1/2 yrs)and hurts the lives of all connected with it.
I thank God for what He has done so far in my life, and pray for the cure for all cancer.

Hugs and prayers, Sandra

stephikindred's picture
stephikindred
Posts: 153
Joined: Mar 2012

Well I was wondering about the lump but didn't think the jaw infection would be a tumor! That sneaky cancer really stinks! I hope the new chemo helps. Sorry to hear this news Jerry!

bingbing2009
Posts: 179
Joined: Feb 2011

Jerry, I am so sorry to hear this. I have followed you closely, perhaps because I am a teacher, too. Anyway, I was truly hoping this was nothing. This is such a horrible beast of a cancer. Keep on fighting--hopefully there will be a chemo cocktail that works wonders for you.

As always, my thoughts and prayers are with you.

In Chantal's and Judy's words, cuck fancer and FEC!!!!

Melinda

DX October 2009: T3N1M0
November and December 2009: chemo (Cisplatin and 5 FU) and radiation
February 2010: Ivor Lewis surgery

JReed's picture
JReed
Posts: 463
Joined: Nov 2011

Jerry:

Everyone has said everything I would want to say to you. I am sorry this is happening to you and along with William and Loretta and all the others here supporting you as much as we can, we will be praying for God to help the doctors and you find a path that will work for you.

I never dreamed that your pain the jaw would be cancer - I really thought it would be an abcess. I don't know how you manage to stay so strong but I sure am glad you do.

Sending you and Mrs. Wright a ton of hugs, prayers and positive thoughts.

Hugs,
Judy

AngieD's picture
AngieD
Posts: 504
Joined: Sep 2011

Well, dang, Jerry!! I just know your spirit and sense of humor are big pluses for you in this battle. What chemo will you be getting 24/7? Do you have to travel for that or can you do it locally?
You and your wife are in my thoughts and prayers for sure!
Angie

jgwright's picture
jgwright
Posts: 252
Joined: Oct 2011

I'll find out on Thursday when the new regimen starts. Hope I can keep my brain.
"Of all the things I've lost, I miss my mind the most..." --Mark Twain

--Jerry

annalan
Posts: 149
Joined: Jul 2011

Hi Jerry, would just like to wish you well as you continue your battle with this terrible cancer. Hope your next round of treatment will prove successful. You're in my thoughts and prayers.

Ann wife of Alan
Dx Sept 2009, T3N2M0
Ivor Lewis March 2010
Lost his battle Jan. 2012

Ginny_B's picture
Ginny_B
Posts: 537
Joined: Sep 2011

There are no words. You sound chipper and strong. Keep it that way. Just keep fighting. We all love you so much here. This is just not not not what any of us wanted to hear. You rest. Take your chemo. Fight!

paul61's picture
paul61
Posts: 1105
Joined: Apr 2010

Jerry,

Bummer that this round is not working!!! I am very familiar with the lovely chemo-pump "constant companion". After wearing it 24/7 for 16 weeks when I finally got it taken off each time I would get out of bed at night I would reach for the pump that I used to set on my nightstand when I was sleeping.

My biggest challenge was to figure out how to take a shower. Here is my process:

1. Cover the area where the pump goes into your port with plastic wrap (I found "Press and Seal" works best.
2. Hang the chemo pump over the shower partition (I set mine on a towel rack that was outside my shower).
3. Carefully get wet under the shower
4. Soap up
5. Carefully rinse off trying to keep the stream of water away from the "Press and Seal"
6 Dry the area over the "Press and Seal" first, and then dry off the rest.

I have a shower that is a combination standard shower head and hand shower so that helps to keep the shower stream away from the port area.

I hope the 24/7 approach works better than the last round. You will be in my daily prayers.

Best Regards,

Paul Adams
Grand Blanc, Michigan

DX 10/22/2009 T2N1M0 Stage IIB
12/03/2009 Ivor Lewis
2/8 through 6/14/2010 Adjuvant Chemo Cisplatin, Epirubicin, 5 FU
Two year survivor

Life may not be the party we hoped for, but while we are here we might as well dance!

Donna70's picture
Donna70
Posts: 920
Joined: Aug 2009

So sorry to hear this news Jerry. I read your other post and was hoping that those lumps were not cancer. You have every right to be bummed, 24/7 chemo is never easy. My thoughts and prayers are with you. Sometimes I think you have to get angry with this stupid EC. hugs,
Donna70

jgwright's picture
jgwright
Posts: 252
Joined: Oct 2011

The alternative was to be unwashed and horribly offensive. I'll follow your recommendations. They sound good. I have one of those portable shower heads on a long flexible tube, so I should be "cool".

"It's always something..." --Gilda Radner.

--Jerry

preacherchad's picture
preacherchad
Posts: 62
Joined: Dec 2010

Jerry,
I hate the news you have gotten, and the news is not what I am referring to when I say you keep me smiling. I love your choice of words and keep such a great attitude, that is what keeps me smiling about you.

Please know that I will be praying for you daily and will keep check here to get all the updates. keep up the positive attitude brother.

ritawaite13's picture
ritawaite13
Posts: 249
Joined: Aug 2011

That just doesn't seem like a strong enough word for this situation. I hope the next round will knock the socks off those little cancer buddies and the new jaw tumor.
I'm going with Judy's line....FEC
Rita

jgwright's picture
jgwright
Posts: 252
Joined: Oct 2011

Robert Heinlein had a line in one of his books. "Profanity wasn't strong enough, so I just said, 'Oh my...'"

The only time I used profanity was when I got my first diagnosis as a Stage IV. My wife and I got in the elevator, and I used the impolite term for fecal material about five times. It didn't help. (Of course, in reality that isn't "profanity", but rather (at least theoretically) obscenity. Actually, it is just crudity.)

Heavy sigh...

--Jerry

Guigna
Posts: 71
Joined: Feb 2012

you're entitled. I'm so sorry we are going through this. I have been so impressed with you, continuing to work through this ordeal.
Last night my husband's right arm puffed up with fluids. The cancer between his shoulder and clavicle is likely blocking something. Game ender? who knows. It's scary, ugly, and so unfair.

Freida
Posts: 191
Joined: Nov 2011

"Living with cancer rather than dying of cancer. That's what I'm doing."

Oh Jerry, I just love your spirit and your choice of words.

I am sorry to hear your news. I hope the pump does the trick for you.

Freida xx

jgwright's picture
jgwright
Posts: 252
Joined: Oct 2011

Well, the chemo is doing something. I have the dreaded thrush now. Gargling with 3% H2O2. The roof of my mouth feels like I tried to drink a pint of boiling coffee, and all the skin is peeled off.

So SOMETHING is happening. Also got neulasta shot, but thankfully, I don't feel any bone pain.

Ha ha... Bon pain... French for beautiful bread...

--Jerry

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network