May 28, 2012 - 12:12 am
Hi, I have never posted here before but have read many of yours and it has helped me very much. I am 57 years old and in good physical condition. I was diagnosed with UPSC stage 1A in October 2011 after a routine pap test showed abnormal cells. I hate to say it but it had been 3 years since my last test. I was cleaning out a drawer one day when I found an old appointment card from my last pap test and so I made the call to schedule a new one. To make a long story short, a biopsy confirmed uterine cancer and the doctor reassured me that a hysterectomy would solve the problem as it was a slow growing type of cancer. However on the follow up appointment 3 weeks after surgery my doctor surprised both me and my husband when he explained that it was UPSC, a rare form of uterine cancer. I was scheduled for and received 6 rounds of chemo with Taxol/carboplatium and followed that with three sessions of Brachytherapy of the vaginal cuff. I had experiences similar to many others I have read about, (low blood counts, Nulasta side effects, neuropathy and now extreme fatigue and leg pains). My question is this, and I would like to know if this sounds normal. I have never had a CA-125 test, (my oncologist told me it was not a proven test for UPSC) and, I have not been scheduled for any follow up appointments until the middle of August, that’s over 4 months from my last treatment, (no CT/PET to date). I know that my cancer was caught early and was just a single polyp found in the uterus but I have read about how quickly UPSC can metastasize. Do you think I am getting the best treatment? It worries me; can anyone allay my fears.