Tumors

Rosa1234
Rosa1234 Member Posts: 11
in Colorectal Cancer #1
Hello all,

It has been awhile since I have posted. I have a new diagnosis that I would like to figure out. My cancer is colon cancer but has acted very strange. It has spread to my muscles. I do have a very small met in my lung but the other tumors are in odd places such as in the muscle around my spine which responded to radiation. But now I have others in my butt, and groin. I have been on active chemo and bio drugs and they are still spreading. Has anyone ever experienced this? I feel like there is no hope since it is rare to get tumors in muscles. HELP!

Comments

  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    #2
    Sorry
    No help from me but I'm hoping that someone can help you. Sounds like you are going through a lot right now and I'm hoping it gets better.

    Kim
  • Lovekitties
    Lovekitties Member Posts: 3,364 Member
    #3
    Hi Rosa
    While I have no personal experience with this I did find a little info on the livestrong.com web site. It says:

    Colorectal cancer can rarely metatasize to muscle tissue. In a 2006 study published in the "American Journal of Pathology," Dr. K. Schlüter discovered that metastatic colon cancer cells had some ability to colonize muscle tissue, but that the cells' capacity for invading muscle tissue was much less than that of liver or lung tissue. In general, metastasis to muscle tissue is extremely rare.
    Metastasis to the muscle can lead to the development of a painful mass within the muscle. Tumors within the muscle are treated by surgical removal, followed by surgical repair of the muscle and re-attachment of muscle tissue to the bone.

    Hoping that you find an effective treatment.

    Marie who loves kitties
  • tootsie1
    tootsie1 Member Posts: 5,044 Member
    #4
    Oh, dear
    I don't have answers, because your case sounds very unusual to me. Just wanted to tell you that I hope and pray the doctors will have a way to help you.

    *hugs*
    Gail
  • smokeyjoe
    smokeyjoe Member Posts: 1,425 Member
    #5
    tootsie1 said:

    Oh, dear
    I don't have answers, because your case sounds very unusual to me. Just wanted to tell you that I hope and pray the doctors will have a way to help you.

    *hugs*
    Gail

    I've never heard of this,
    I've never heard of this, thanks for posting what you are experiencing, you have taught us all something new. I am so sorry you are going through this and hopefully your doctors can offer you some relief. Marie thanks for your post too, interesting.
  • steved
    steved Member Posts: 834 Member
    #6
    smokeyjoe said:

    I've never heard of this,
    I've never heard of this, thanks for posting what you are experiencing, you have taught us all something new. I am so sorry you are going through this and hopefully your doctors can offer you some relief. Marie thanks for your post too, interesting.

    Might be similar
    My own recurrence of rectal cancer has metastasised locally into the pelvis inclusing the pevic muscles which leads to a lot of buttock and leg pain. Cancer can spread through lymph or blood vessels to anywhere in the body or spread out through the bowel into the surrounding tissue. Not sure if that is what has happened for you or whether you have been told it has spread via blood vessels into the muscles.
    Either way it does make it hard to treat- mine had only a minor response to having more radiotherapy (I had radiotherapy when it initially happened 8 years ago) and is still slowly progressing despite ongoing chemo. I am loking at surgical options but they are very limited and would include an amputation of the leg and pelvic clearance.
    It is a strange illness and sometimes doesn't play by the rules especially if rectal in origin (the venous drainage of teh rectum is different from teh rest of teh bowel- hence the reason why it doesn't do the classical metastasising to the liver like colon cancer does).

    Let me know some more details as haven't found many people with stories similar to mine though yours sounds more unusual with the spread around the spine.
  • smokeyjoe
    smokeyjoe Member Posts: 1,425 Member
    #7
    steved said:

    Might be similar
    My own recurrence of rectal cancer has metastasised locally into the pelvis inclusing the pevic muscles which leads to a lot of buttock and leg pain. Cancer can spread through lymph or blood vessels to anywhere in the body or spread out through the bowel into the surrounding tissue. Not sure if that is what has happened for you or whether you have been told it has spread via blood vessels into the muscles.
    Either way it does make it hard to treat- mine had only a minor response to having more radiotherapy (I had radiotherapy when it initially happened 8 years ago) and is still slowly progressing despite ongoing chemo. I am loking at surgical options but they are very limited and would include an amputation of the leg and pelvic clearance.
    It is a strange illness and sometimes doesn't play by the rules especially if rectal in origin (the venous drainage of teh rectum is different from teh rest of teh bowel- hence the reason why it doesn't do the classical metastasising to the liver like colon cancer does).

    Let me know some more details as haven't found many people with stories similar to mine though yours sounds more unusual with the spread around the spine.

    Steve have they offered any
    Steve have they offered any more radiation or something!!! Amputation seems so drastic, I cannot even imagine. I don't know anything about cyberknife or such things, but are these not an option in your circumstance??
  • Rosa1234
    Rosa1234 Member Posts: 11
    #8
    steved said:

    Might be similar
    My own recurrence of rectal cancer has metastasised locally into the pelvis inclusing the pevic muscles which leads to a lot of buttock and leg pain. Cancer can spread through lymph or blood vessels to anywhere in the body or spread out through the bowel into the surrounding tissue. Not sure if that is what has happened for you or whether you have been told it has spread via blood vessels into the muscles.
    Either way it does make it hard to treat- mine had only a minor response to having more radiotherapy (I had radiotherapy when it initially happened 8 years ago) and is still slowly progressing despite ongoing chemo. I am loking at surgical options but they are very limited and would include an amputation of the leg and pelvic clearance.
    It is a strange illness and sometimes doesn't play by the rules especially if rectal in origin (the venous drainage of teh rectum is different from teh rest of teh bowel- hence the reason why it doesn't do the classical metastasising to the liver like colon cancer does).

    Let me know some more details as haven't found many people with stories similar to mine though yours sounds more unusual with the spread around the spine.

    Spine
    Steve,

    The tumor around the spine was the first to be discovered that was not in "normal" places. I still have a tumor in bowel which has not grown, and a small met in my lung which has grown even with agressive chemo and bio drugs (grew within a 6 week span). The tumors and or mets, in the groin and butt appeared within 6 weeks. I had PET scan that did not show them but did indicate that the lung had grown so the Dr.s put me on chemo (every 2 weeks) and bio every week. Since my body did not respond well to the bio Dr.s ordered another PET to see if the drugs were effecting the tumor in the lung. Sadly the bio did nothing to the lung met and it grew, and the new tumors appeared. Wonderful! Now what? Well I am heading to Stanford, but honestly do not know what the Dr.s will say. The cancer is in my blood. Good news is that it is not attacking any organs so my body functions are good, but......the muscles.....I just don't know what my future holds. Sucks.....I am frustrated and I am not looking forward to being on chemo and other various drugs for the rest of my life. It takes such a huge toll on me emotionally and a "chemo holiday" does not look good anytime soon.
  • Rosa1234
    Rosa1234 Member Posts: 11
    #9
    Annabelle41415 said:

    Sorry
    No help from me but I'm hoping that someone can help you. Sounds like you are going through a lot right now and I'm hoping it gets better.

    Kim

    Thx!
    Sending a SMILE :)
  • Rosa1234
    Rosa1234 Member Posts: 11
    #10
    Lovekitties said:

    Hi Rosa
    While I have no personal experience with this I did find a little info on the livestrong.com web site. It says:

    Colorectal cancer can rarely metatasize to muscle tissue. In a 2006 study published in the "American Journal of Pathology," Dr. K. Schlüter discovered that metastatic colon cancer cells had some ability to colonize muscle tissue, but that the cells' capacity for invading muscle tissue was much less than that of liver or lung tissue. In general, metastasis to muscle tissue is extremely rare.
    Metastasis to the muscle can lead to the development of a painful mass within the muscle. Tumors within the muscle are treated by surgical removal, followed by surgical repair of the muscle and re-attachment of muscle tissue to the bone.

    Hoping that you find an effective treatment.

    Marie who loves kitties

    Thx...it is a very strange diagonsis. I will keep you posted. I appreciate all of the support!
  • Rosa1234
    Rosa1234 Member Posts: 11
    #11
    tootsie1 said:

    Oh, dear
    I don't have answers, because your case sounds very unusual to me. Just wanted to tell you that I hope and pray the doctors will have a way to help you.

    *hugs*
    Gail

    Thx!
    I appreciate the hugs and prayers.
  • steved
    steved Member Posts: 834 Member
    #12
    Rosa1234 said:

    Thx!
    I appreciate the hugs and prayers.

    Thanks for the reply
    It sounds like your tumour is generally metastasising via the blood and so can't realy shed anylight on the appearance of it in muscle. IT is a strange disease that doesn't play by the rules.

    SmokeyJoe- I have had further radiotherapy with little response. Cypberknife isn't an option as it too widely spread and the main bulk is pretty much attached to the sciatic nerve so would zap that rendering my leg either more painful or useless. Am on palliative chemo and to tell the truth now that I have been 'terminal' for a while the option of amputation isn't looking so grim!

    Steve
  • danker
    danker Member Posts: 1,276 Member
    #13
    steved said:

    Thanks for the reply
    It sounds like your tumour is generally metastasising via the blood and so can't realy shed anylight on the appearance of it in muscle. IT is a strange disease that doesn't play by the rules.

    SmokeyJoe- I have had further radiotherapy with little response. Cypberknife isn't an option as it too widely spread and the main bulk is pretty much attached to the sciatic nerve so would zap that rendering my leg either more painful or useless. Am on palliative chemo and to tell the truth now that I have been 'terminal' for a while the option of amputation isn't looking so grim!

    Steve

    Steved
    After 8 years to have it return like that is a ****. I wish you well no matter the path you choose. Good luck.
  • rrob
    rrob Member Posts: 158
    #14
    Muscle mets
    I just found out I have a met in my shoulder muscle. The plan is to radiate. I was also stunned and felt like I had been knocked down again. What chemo and bio drugs are you on? Good luck and please keep us posted. I see the radiation oncologist next Friday and will let you know what he says.

    Rebecca

Discussion Boards