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mets to lymph nodes?

waffle8
Posts: 232
Joined: Mar 2010

Looking to see if anyone has any thoughts or experience with this? My original nodes were clear (3) with my lumpectomy ! But I recently had my first pet scan! The report shows 2 swollen lymph nodes! One in neck and other in pelvis! Now waiting on doctors to decide what type of biopsy should be done! My least favorite word waiting! My head is spinning again!

missrenee's picture
missrenee
Posts: 2137
Joined: Apr 2010

I had them all removed on the side of my lumpectomy. Out of 22 nodes, 10 were positive. That was at initial diagnosis.

Since then, I've developed bone mets 2 years later.

You're right--the waiting is the worst. Hopefully, you'll be scheduled for the biopsy soon and then you can see what you're dealing with. Don't assume it is cancer. They can be swollen for a number of reasons.

Best of luck and hugs, Renee

SIROD's picture
SIROD
Posts: 2121
Joined: Jun 2010

Hi,

Having negative lymph nodes when diagnose doesn't guarantee that a recurrence won't ever happen. I would think the one in the neck (soft tissue) might be easier to do a biopsy on than on your pelvis (bone).

No one likes the waiting and no one wants a recurrence. Please keep us posted.

I am 17+ years from diagnose, (13 years since my first recurrence) and mine are in the lungs, lining, ribs. Doable. Waiting is the hardest aspect of having a breast cancer diagnose. Once you know and have a plan it makes it easier.

Best to you,

Doris

Kylez's picture
Kylez
Posts: 3765
Joined: May 2009

You're in my prayers and thoughts!

mblount
Posts: 1
Joined: Jun 2012

I had swollen lymph nodes in my neck. Later my internist found a swollen one in my left lung field. I was going to have a biopsy of those in my chest area followed by the ones in my neck; however, after discovering a recurrence of breast cancer that metastasized to the lymph nodes in my chest area, the surgeons decided to leave my neck alone.

Monica B.

Jean 0609's picture
Jean 0609
Posts: 2317
Joined: Jun 2010

I was just thinking about you the other day, wondering how things were. This isn't what I wanted to hear. Fingers, toes, and everything else crossed that it is nothing. Please know that you are in my thoughts & prayers, my friend.

Hugs & Hershey Kisses,
Jean

MAJW
Posts: 2515
Joined: May 2009

I had no lymph node involvement at the time of my lumpectomy in May of 2009....last June I discovered a swollen node right above my clavicle bone...it is a recurrence of my triple negative bc...I swear it came up overnight...don't know how I could have missed it...
I had a biopsy done under conscious sedation...it took less than 10 minutes and it really was a piece of cake...

Don't panic, it maybe due to some type of infection...they will probably do a biopsy of the clavicle node....

Keep us posted and yes, waiting is always rough...We care
Hugs, Nancy

RE's picture
RE
Posts: 4606
Joined: Feb 2004

Yes, after 6 chemo treatments and 6 weeks of rads I had mets to the sentinel node in my chest. Surgeon did a testing of it to be sure, once it was confirmed I had more chemo and more rads...that was way back in 1998 and I was fine until 2007 when I had an early bc in the unaffected breast (unrelated to first two cancers). So I guess what I am saying is yes it is scary as the dickens but it can be manageable! Hugs to you, let us know how things go.

RE

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susie09
Posts: 2933
Joined: Jul 2009

Lots of prayers!

Gabe N Abby Mom's picture
Gabe N Abby Mom
Posts: 2415
Joined: Sep 2010

The pathology after my bilateral/axillary dissection showed that 12 of 14 nodes were positive. In fact, my cancer was found because of swelling in my armpit, not because of changes in breast. A year later I had a local recurrence and was dx'd with mets to the lymph nodes between my lungs at that time. The mets would not have been found if not for additional tests done with the local recurrence. The mets by themselves cause no symptoms.

All of the symptoms and issues I have (fatigue and neuropathy) are a result of the treatments, not the cancer. I have been on chemo for 8 months now. I started with Xeloda for 2 months, it didn't work for me. So we switched to weekly Abraxane, I've done 6 months of that, it's keeping the cancer stable.

I truly hope the swelling is something else. Our lymph systems help to fight all kinds of infection and inflammation, so there is every possibility that it is not cancer. I know the waiting is hard, but we'll be here with you. Please let us know what's happening.

Hugs,

Linda

New Flower
Posts: 3944
Joined: Aug 2009

Sorry that you have to wait. PET scans are often give false positive results. That is why my oncologist does not routenly monitor NED using this technique. Usually, UCLA recommends scans when patient has a serious complaint.
There are many reasons for swollen lymph nodes, even flu, cold, or skin wound can cause it.
I hope and pray your swollen nodes have nothing to do with cancer.
Let us know about your doc decision
Hugs

mollyz's picture
mollyz
Posts: 737
Joined: Sep 2010

I know how you feel waiting it's hard,im waiting now on a mri i got the 1st week in may I called my Dr's office last Thursday and the nurse said she would call me Friday but she didn't she was at another office and my mind went to thinking maybe she's not telling me until after memorial day because it's not good news but them i had to think "like a girl" lol im a fighter and im going to handle this and so are you when we both get our good news. ~~MollyZ~~

DebbyM's picture
DebbyM
Posts: 3294
Joined: Oct 2009

I don't know about this but will keep you in my prayers. Keep us posted.

Hugs, Debby

carkris's picture
carkris
Posts: 4520
Joined: Aug 2009

you are in my prayers too!

Noel's picture
Noel
Posts: 3101
Joined: Apr 2009

Sending lots of positive thoughts and prayers.

DianeBC's picture
DianeBC
Posts: 3888
Joined: Jun 2009

You're on our prayer list.

Hugs, Diane

waffle8
Posts: 232
Joined: Mar 2010

Thanks to everyone for the good thoughts and prayers! Just wanted to let you all know the docs have decided to biopsy both nodes! My appt is on June 5! I go from wishing the days away to saying I don't want to go! lol Believe it or not I got my pet scan done on a Monday and by the next day the nurse was calling me with the results! Now I could let myself say that might be a bad sign they are in a hurry but I am refusing to allow that thought! Please make room on that pink bus!

 

 

debi.18's picture
debi.18
Posts: 847
Joined: Jun 2011

More good thoughts and prayers on the way!

Hugs, Debi

VickiSam's picture
VickiSam
Posts: 8226
Joined: Aug 2009

and prayers. I will also be driving our PINK Support bus on the 5th ... I know we will
have to pick up Nancy .. and a few others on the way.

Continued strength, and peace for you during this most difficult waiting time.

Vicki Sam

Kylez's picture
Kylez
Posts: 3765
Joined: May 2009

I will be on the pink bus for you waffle on June 5th!

linpsu's picture
linpsu
Posts: 725
Joined: Mar 2010

Thinking of you and hoping for the best.
Hugs,
Linda from Hershey

survivorbc09
Posts: 4378
Joined: Jun 2009

Lots of positive thoughts and prayers.

Hugs, Jan

Kristin N's picture
Kristin N
Posts: 1969
Joined: Mar 2009

Lots of prayers and good thoughts!

Lynne Logan's picture
Lynne Logan
Posts: 105
Joined: Jul 2011

Linda, you have been through so much! I do admire you so and you have such a wonderful attitude always helping others.
I too just discovered a hard bump under my arm and pray it isn't a node since surgery was only 3 weeks ago.
Since you're so supportive of all of us, I'd just like to let you know I think you're one very brave Warrior!!!
XXXXX
Lynne

jnl's picture
jnl
Posts: 3873
Joined: May 2009

I wouldn't miss riding the pink bus for you! Wishing you lots of good luck!

Hugs, Leeza

Alexis F's picture
Alexis F
Posts: 3604
Joined: May 2009

Have you gotten your results yet? Praying that it will be only good news for you.

Hugs, Lex

sbmly53
Posts: 1466
Joined: Jan 2010

Like Jean, I was thinking about you recently and saw your post. I have been doing all the things I can think of (prayers, positive thoughts, wishing...) I do hope it helps.

June 5 is marked on my calendar. I'll be there, in the front of the bus with my new favorite thing - those frozen slushy wine cooler in a juice bag things and chocolate. Maybe some Belgian Waffles in your honor.

Big hugs and so much love,

Sue

Noel's picture
Noel
Posts: 3101
Joined: Apr 2009

June 5th I will be riding along with the other pink sisters.

Hugs, Noel

StaceyPMD1121's picture
StaceyPMD1121
Posts: 65
Joined: May 2012

Hi Waffle8,

I don't exactly know what you are going through, but my prayers are with you. I have asthma, sarcoidosis(which is inflammation of the lymph nodes and parts of the body).Now stage 2 breast cancer-IDC. My lymph node under my arm was swollen at the time of biopsy, but came back clear. Right now my throat hurts and is irritated (too much air conditioning)had tonsilectomy last year at 46 years old. Just be positive, say your prayers, and relax. Go have fun while you are waiting. Know that your pink sisters have your back. Please let us know how you are doing?

Peace,Blessing, Hugs, & Laughter,
Stacey

DianeBC's picture
DianeBC
Posts: 3888
Joined: Jun 2009

Don't let the bus leave without me!

Hugs, Diane

sbmly53
Posts: 1466
Joined: Jan 2010

Anxiously waiting with you.

Sue

jnl's picture
jnl
Posts: 3873
Joined: May 2009

Checking for an update

Leeza

waffle8
Posts: 232
Joined: Mar 2010

Wow what a ride on that pink bus! Went for biopsy doc was only able to do the neck nodes but praise God they were benign! If I could whine just for a minute the biopsy felt like she was digging in my neck with a fork! I told her she was a pain in the neck! lol Will now move on to see an onco/surgeon to find out about pelvis node! Thankful for all your prayers and good wishes!

New Flower
Posts: 3944
Joined: Aug 2009

Thank for your good news. Your neck is clean hopefully your pelvis will be too

DebbyM's picture
DebbyM
Posts: 3294
Joined: Oct 2009

Great news Waffle about your neck nodes being benign! Congrats! Good luck and praying for the same good news with your pelvis node.

Hugs, Debby

jnl's picture
jnl
Posts: 3873
Joined: May 2009

Praying you will get great news for your the rest of your tests!

Leeza

cahjah75's picture
cahjah75
Posts: 2623
Joined: Jun 2010

when I noticed your name not on the Hershey list, I thought about you. Now to read what you've been going through, explains a lot. I'm so glad the biopsy of neck vein was begnign and hoping the pelvic one is too. Will keep you in my thoughts and prayers.
{{hugs}} Char

skipper54's picture
skipper54
Posts: 936
Joined: Feb 2011

'cause I haven't been on here for a while but am sending prayers that the results are the same for the pelvic node. Peace pink sister!

Kylez's picture
Kylez
Posts: 3765
Joined: May 2009

Hoping and praying for the exact same results for your pelvic.

laughs_a_lot's picture
laughs_a_lot
Posts: 1368
Joined: Mar 2011

I hate it. You'd think you could be done with it. You are in my prayers.

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