May 24, 2012 - 9:12 am
I just joined in late Feb or March when my mom was diagnosed with RCC Stage IV at that time she had a softball size tumor in her kidney which they removed that kidney and adrenal gland in mid March and they knew she had multiple tiny lung mets and mets in her left femur and a couple places in her spine. They treated her leg and 2 areas of the spine with radiation to help with the pain. However, they then found two more areas of her spine, which they decided to wait on treating to see if the Votrient would help - she started this drug 3 weeks ago. She was given calcium treatments to bring down her calcium levels (as that we the reasoning for her confusion levels) and then they started tappering her off the steriods. As Foxhd had said in some of his posts, "be the squeaky wheel" - I kept telling them that she was confused from time to time in situations she shouldn't be and that she wasn't following instructions as well as she previously (before any of this started) and that this was continuing even though she was taking less pain meds. She has been living with me since late March and so I was the only one noticing these things. Last week they decided to do an MRI of her brain. They found lots of tiny mets in her brain, which were apparently not causing as much trouble while on the steriods as these drugs reduce the inflamation the tumors cause. Now they want to do whole brain radiation and that is way scary, the side effects sound terrible and I can't find solid information on what life is like and for how long after radiating the brain this way. PLEASE if you know anything about this, please help. We have our consult with the radiation doc next Thurs, May 31st and then we have to decide what to do.