May 23, 2012 - 4:48 pm
I ran across this site the other night while sitting in the ER with my Mother. She was diagnosed with Non Small Cell Carcinoma Of Mullerian Origin on March 9, 2012. At her first appt with the Oncologist on March 15, we were told that it was very unusual because she did not have any masses on her ovaries or any of her female organs so they were going to call it Carcinoma of Unknown Primary and wanted to start her on Gemazar the following Monday. She had the treatment that following Monday March 19th which went well until I noticed the following Fri that she was getting very jaundice. She was scheduled for another round of the Gemazar the next Monday the 26th as well as an office visit to see how she tolerated the first round. Her bilirubin was 5.9 so her Oncologist decided against continuing with the 2nd treatment. After several weeks and a couple of hospital stays her Oncologist finally told us that she now thinks that Mom has PPC. She entertained the idea of surgery but after further consideration decided that Mom was just to weak to under go a major surgery so she started her on Carboplatin as of 4/28 and has been getting it weekly since. She was going to start her on Taxol this past Fri but Mom started passing blood with her bowel on Thurs which landed up back in the ER. Her Oncologist ended up admitting her the next day after her chemo treatment so that they could find out what was causing the bleeding as well as have a net put in her groin since she was taking her off the blood thinner they had been giving her for the blood clot in her leg. She is scheduled to have a colonoscopy tomorrow. Thru this all, the biggest challenge has been to get her to eat. I would have never fathomed a day that my Mom would not want to eat. She has ALWAYS loved food and to cook. When she started losing weight last summer we all just chalked it up to the extreme heat and the fact that she was eating better due to cooking healthier due to my StepDads diabetes. She has gone from being over 200lbs to at current 110. My Mom means the world to me and I feel so blessed that I am able to care for her. I have read several postings have found so much hope and inspiration. I look forward to speaking with you all and sharing our experiences thru our own personal journeys.