May 22, 2012 - 8:53 am
My mom has recently been diagnosed with stage IV RCC with mets in her lungs. This is 2 years after her kidney was removed. It just amazes me that you can't trust that what is supposed to happen will happen and you have to be on top of everything. My mom and dad divorced 20+ years ago and they both rely on me to help them with their medical issues. My mom had pneumonia 2 weeks ago and even though she was in the hospital it took me being there when the doctors did their rounds at night to finally get her released. One doctor thought the other did it and that doctor was waiting for the first doctor's ok. She didn't ask questions - just figured she needed to still be there even though she hadn't talked to either doctor in more than 24 hours. Then the oncologist that she decided to go with met with her in the hospital and said his office would get things rolling so she could start Votrient. I called there 2 days after she was released and they hadn't done a thing about it even though it was clearly stated in his dictation. Of course he was out of town until this morning so now we are another week behind on her treatment. It's been frustrating and yet I know the doctors are very good and are the people she needs to be in contact with at this point. I'm tired and want off this roller coaster but the ride is just starting!!!!!