Hello Cindy & David,
Was sitting here thinking about you guys, wondering how your last treatment went.How were the doctors and nursing this time. Hope everything went well, and David is continuing to improve, little by little. It's the small things that make one excited, a few steps, words, or outings if possible. I probably hug my kid more now than I have ever done, and constantly tell him how much I love and appreciate him- that he is so important to me and our family. He soaks it all up with a huge grin :o)
We have been blessed so far. Benjamin is totally stable, no signs of cancer. He is being removed off his Keppra, which will take about two months. Cutting his dosage in half, at 30 day increments, so should be pill free by July. Neuro- decided that he had not had any seizures from his tumor resection, but was put on Keppra as a precaution. Hope it stays that way. After reading on this site the number of people who suffer a seizure later on after being fine for months or years. I hope Neuro is making the right
call, but his EEG was excellent. My daughter and I watch the whole procedure - explanations were give for each area of the test- was comforting to us. Amazing what EEG tell us about the human brain. Having his MRI still clean, was a relief, guess we all panic, every three months.
My husband expressed in wishes that our whole family should do funeral preplanning for the future, so if an when the time comes for any of us, arrangements and fees are all
paid. I about fell over, was such a shock, I burst out in tears, he felt so bad, because
we were having such a great day. In the long run, I know he is right, but still hard to
face, guess I'm not ready. I've already buried my parent's and lost a brother, it's just
extremely hard. Found out it was my sister who approached my husband, they had preplanned for their family 20 years ago already. GRRRRRR!!!!! Reminded of the time you were thinking about approaching your son about his future-- that is one tough area. How? It's easy to do when not family.
Is the exitement of your daughter's wedding building yet? Plannign can be so stressful, but rewarding in the end. David will be involved, anyway your hearts desire, whether he is there in person or video. We watched our only daughter get married in a helicopter over the Grand Canyon, by video. Still chocks us up watching this video, and seeing how happy they are, which we do every once in a while as a family. Now there is the first grandchild coming in July. Can't wait!!!!
Wishing you a wonderful Memorial Day weekend with your family and friends.