follow up on Arndog's husband

arndog64
arndog64 Member Posts: 537
in Head and Neck Cancer #1
Well my husband no loger has a fever, he went for a follow up with the infectious disease doctor last Wednesday and the doc was ready to take him off his meds until he told the doctor that he is still suffering from severe joint pain and fatigue. The doc looked a little concerned and said he should be better by now. So, he extended the iv antibiotics for 2 weeks and he set up a ct scan of the neck today and told my husband he needs to move up his ent appt. He is also anemic now. HMMMMMMM!!!! I think the doc is thinking that his cancer may have returned. What do y'all think... I am sooo freking scared, he is hurting really bad today.

Comments

  • Mrs. Sarge
    Mrs. Sarge Member Posts: 206 Member
    #2
    Understand the fear
    arndog. It may just be the results of all he's gone through. We'll keep ya'll in our thoughts and prayers.
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #3
    Don't read more in to it than was said.

    The ENT is always a good start for the interception of anything going on, so it's logical to have him check out the situation.

    And if nothing else, it should give you an all clear to help with any doubts creeping in.

    I'm in no way a MD, but I doubt any recurrence would be so soon with everything your husband has gone through.

    Best,
    John
  • Pumakitty
    Pumakitty Member Posts: 652
    #4
    Prayers
    I wish your husband was feeling better. Please keep us updated. Prayers and hugs coming your way.

    Kathy
  • Pam M
    Pam M Member Posts: 2,196
    #5
    I'd Be Scared, Too
    I don't see how anyone in your shoes would NOT be scared. Even knowing that odds are it's not cancer can't take away the fear.

    Very glad the fever's gone, though. I dunno about anemia, but I would expect someone who's been going through this for this long to be fatigued and achy.

    Hoping the doc's recommendation to see the ENT is just to rule out what we all fear, and hope you all can avoid. Do well.
  • nwasen
    nwasen Member Posts: 235 Member
    #6
    Pam M said:

    I'd Be Scared, Too
    I don't see how anyone in your shoes would NOT be scared. Even knowing that odds are it's not cancer can't take away the fear.

    Very glad the fever's gone, though. I dunno about anemia, but I would expect someone who's been going through this for this long to be fatigued and achy.

    Hoping the doc's recommendation to see the ENT is just to rule out what we all fear, and hope you all can avoid. Do well.

    The Committee in our heads
    It is so easy to be afraid. I do think he will be fine (no cancer) but good thing he went to be checked. Let us all know and try and keep that committee in your heads from speaking out!
  • nwasen
    nwasen Member Posts: 235 Member
    #7
    Pam M said:

    I'd Be Scared, Too
    I don't see how anyone in your shoes would NOT be scared. Even knowing that odds are it's not cancer can't take away the fear.

    Very glad the fever's gone, though. I dunno about anemia, but I would expect someone who's been going through this for this long to be fatigued and achy.

    Hoping the doc's recommendation to see the ENT is just to rule out what we all fear, and hope you all can avoid. Do well.

    The Committee in our heads
    It is so easy to be afraid. I do think he will be fine (no cancer) but good thing he went to be checked. Let us all know and try and keep that committee in your heads from speaking out!
  • Tim6003
    Tim6003 Member Posts: 1,514 Member
    #8
    nwasen said:

    The Committee in our heads
    It is so easy to be afraid. I do think he will be fine (no cancer) but good thing he went to be checked. Let us all know and try and keep that committee in your heads from speaking out!

    Justifiable fear of course....
    ...but you got your cyber buddies here sending thougths and prayers your way ....

    We care!!


    Tim
  • Noellesmom
    Noellesmom Member Posts: 1,859 Member
    #9
    Tim6003 said:

    Justifiable fear of course....
    ...but you got your cyber buddies here sending thougths and prayers your way ....

    We care!!


    Tim

    lifting prayers and holding good thoughts
    Remember not to worry until it is time to worry. See what the doctor says first.
  • patricke
    patricke Member Posts: 570
    #10
    I'm sorry that your husband
    I'm sorry that your husband is having to fight this infection, hopefully an extension on the antibiotics will do the trick. In the meantime, hold steady, and avoid jumping to conclusions, as it doesn't help. I'm wishing the best of outcomes from the scan and ent visit.

    PATRICK
  • Jimbo55
    Jimbo55 Member Posts: 590 Member
    #11
    Stay Strong
    You folks deserve a break from this stuff. Sure hope it turns out to be minor. Cheers.

    Jimbo
  • arndog64
    arndog64 Member Posts: 537
    #12
    Jimbo55 said:

    Stay Strong
    You folks deserve a break from this stuff. Sure hope it turns out to be minor. Cheers.

    Jimbo

    Good news!!! No cancer!!! I
    Good news!!! No cancer!!! I was soooo scared they would have to do a neck dissection... Being that the infection has an unknown source, the doctor is ruling out all possibilities. I now believe, that all the joint pain and fatigue is coming from the blood infection going to his heart. They could not due a transorphangeal scope due to the radiation. So we do not know at this time, if there is damage. He will be seeing his cardio doctor this friday to see if he wants to wait it out or try to scope him. This thing has me really scared. He is very fatigue and hurting all the time. Everyone be careful this infection can come from peg tubes, Urinary infections, dental procedures, even flossing your teeth. With everyone having some to no salivary glands you all have more bacteria in your mouth. I think this happened when he bit the side of his mouth and had an open sore. Thanks for all the well wishes...
  • Mrs. Sarge
    Mrs. Sarge Member Posts: 206 Member
    #13
    arndog64 said:

    Good news!!! No cancer!!! I
    Good news!!! No cancer!!! I was soooo scared they would have to do a neck dissection... Being that the infection has an unknown source, the doctor is ruling out all possibilities. I now believe, that all the joint pain and fatigue is coming from the blood infection going to his heart. They could not due a transorphangeal scope due to the radiation. So we do not know at this time, if there is damage. He will be seeing his cardio doctor this friday to see if he wants to wait it out or try to scope him. This thing has me really scared. He is very fatigue and hurting all the time. Everyone be careful this infection can come from peg tubes, Urinary infections, dental procedures, even flossing your teeth. With everyone having some to no salivary glands you all have more bacteria in your mouth. I think this happened when he bit the side of his mouth and had an open sore. Thanks for all the well wishes...

    That's wonderful!!!!
    Hey....it's about time some good news came your way!!! So glad for you both!!!
  • KareGiver
    KareGiver Member Posts: 301 Member
    #14
    Mrs. Sarge said:

    That's wonderful!!!!
    Hey....it's about time some good news came your way!!! So glad for you both!!!

    Hooray!
    Great news. So happy for the two of you!
  • Ingrid K
    Ingrid K Member Posts: 813
    #15
    arndog64 said:

    Good news!!! No cancer!!! I
    Good news!!! No cancer!!! I was soooo scared they would have to do a neck dissection... Being that the infection has an unknown source, the doctor is ruling out all possibilities. I now believe, that all the joint pain and fatigue is coming from the blood infection going to his heart. They could not due a transorphangeal scope due to the radiation. So we do not know at this time, if there is damage. He will be seeing his cardio doctor this friday to see if he wants to wait it out or try to scope him. This thing has me really scared. He is very fatigue and hurting all the time. Everyone be careful this infection can come from peg tubes, Urinary infections, dental procedures, even flossing your teeth. With everyone having some to no salivary glands you all have more bacteria in your mouth. I think this happened when he bit the side of his mouth and had an open sore. Thanks for all the well wishes...

    great news
    arndog, so happy to hear this news. You have been thru so much with this infection... Enough already. Now you can relax a bit knowing it's not cancer. Wishing arn a speedy recovery...and sending you strength as well. hang in there !
  • Tim6003
    Tim6003 Member Posts: 1,514 Member
    #16
    Ingrid K said:

    great news
    arndog, so happy to hear this news. You have been thru so much with this infection... Enough already. Now you can relax a bit knowing it's not cancer. Wishing arn a speedy recovery...and sending you strength as well. hang in there !

    Oh how wonderful!!!!!!!!
    I'm so glad .....and I'm going to keep those prayers coming that his fatigue and this joint pain go away ...it's just been too long (bless his heart as we say in the "south") ...

    Sooo very glad for you!!!!


    Tim (and I told Jennifer, my wife, and she was happy too) ...
  • Pam M
    Pam M Member Posts: 2,196
    #17
    arndog64 said:

    Good news!!! No cancer!!! I
    Good news!!! No cancer!!! I was soooo scared they would have to do a neck dissection... Being that the infection has an unknown source, the doctor is ruling out all possibilities. I now believe, that all the joint pain and fatigue is coming from the blood infection going to his heart. They could not due a transorphangeal scope due to the radiation. So we do not know at this time, if there is damage. He will be seeing his cardio doctor this friday to see if he wants to wait it out or try to scope him. This thing has me really scared. He is very fatigue and hurting all the time. Everyone be careful this infection can come from peg tubes, Urinary infections, dental procedures, even flossing your teeth. With everyone having some to no salivary glands you all have more bacteria in your mouth. I think this happened when he bit the side of his mouth and had an open sore. Thanks for all the well wishes...

    Yesyesyes!
    No cancer! Wow - crazy to think this infection that's been wreaking so much havoc could have started out as something so small. Hope his meds kick into overdrive, and he can finally get the upper hand with this infection. I'm mostly happy, kind of irate for you - it seems so unfair for him to go through so much during treatment, then get kicked in the teeth by a stinking infection.

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