May 17, 2012 - 1:57 am
Ok, I can't believe I did it, "butt" I did! And I did it for all of us, took one for the team! I was invited to speak to a group of oncologists, urologists, pelvic physical therapists, psychiatrists, psychologist, etc. The topic for the forum was sexual dysfunction in the oncological patient! How's that for a mouth full? My pelvic physical therapist invited me to give the patient perspective as she felt it would help educated the group. I really was a "unique" case to them, unfortunately, because not many know "about" us and our special needs. Most cases they encounter come from the ob/gyn dept or male prostate cancer type patients. My therapist had to use her imagination and improvise treatment and tools and educate herself to be able to help me, and she did. You have NO idea how out of my comfort zone this was for me and to top it off, there were huge projected images from my examine under anesthesia for all the room to see. I can't even tell you. However I approached it with a sense of humor and do feel that I educated all of them, but mostly myself. My radiation oncologist had agreed to be a presenter as well as my PT. My og/gyn dr was there too. I started by introducing myself to them and told the audience they probably didn't recognize me with my clothes on! It sure was a great ice breaker and helped me to relax. Anyway it was a great experience and was told by many they had learned a lot. YEAH!
On a side note, it pretty much sucked that I couldn't partake in the catered meal, I had my anoscope scheduled for the next morning which means no solid food the day before. So at the end of the evening I got go home and use my dilators and give myself an enema as a thank you to myself! My anoscope was fine, NED, however I have hemmoroids that will not heal, surgery would be the best option, but it isn't an option as it would probably never heal. So instead I get to try a new sulfa enema each night that I am supposed to "hold" all night! Anyway, that's why I am up posting late....so much for holding it. Guess I am calling my doc tomorrow.
This board has been so inspirational for me and I only hope and I am helping encourage others as you have all done for me.
Love you all,
PS is anyone in the SoCal area?