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Just found out I have Kidney cancer

250xcfw's picture
250xcfw
Posts: 30
Joined: May 2012

I’m amazed how conflicting the information is for a disease so well known. I don’t have all the stats on the size and level. But I can tell you there going to remove the left kidney and a small bit of the right. It doesn’t look like it’s spread to any other organs. I guess I need to learn the terminology so I can have more intelligent conversations in the future.

Thanks
John

bonitoweiy282
Posts: 8
Joined: Feb 2012

Hell John,

Sorry to hear about the news. You will learn more words in this club. When will you have a surgery? You can tell me more about your information. This is a very supportive group of people. We all help each other. Just fight together.

- mini skirts

- sexy pajamas

- latex lingerie

dl650a
Posts: 31
Joined: Feb 2012

Hi John,
As others have said, we are sorry that you have to join our club. I was diagnosed in February, but unlike yours mine my right kidney was involved. The kidney was removed 8 weeks ago. I am back at work full time, I tried yoga for the first time last week, and I was able to commute to work on my motorcycle.

This group is great and will give you a lot of information.

Take care,
Ed

lovinlife23
Posts: 3
Joined: May 2012

I too have just been diagnosed with kidney cancer. They found a 4 cm tumor in the upper pole region of my left kidney so they will be removing my entire kidney. My surgery is scheduled for May 21. I am so thankful that the cancer has not spread to any other organs. All the research I have done tells me that rcc is more common in men in their 50's. I am a 30 year old female so I was a little shocked when I researched this disease. However, I feel more comfortable to research what I am facing so I can understand it more when my doctor explains things to me.

Don't feel bad if you don't know the terminology, as this is a learning process for all of us as we go through this. When is your surgery scheduled for?
Take care.

garym's picture
garym
Posts: 1651
Joined: Nov 2009

lovinlife23,

Hi, I'm one of the lucky age 50+ males you spoke of, I'm now 61 and over 2-1/2 years post surgery, I wish this club were exclusive to only us, but as you now know this is not the case. Soooo... welcome to the club, your official initiation isn't scheduled until May 21, but in the meantime hang out here and read the stories of your fellow club members. As you will see, this is a good place to come for answers, advice, or just to vent to an understanding ear. We'll help you anyway we can.

Good luck and Godspeed,

Gary

icemantoo's picture
icemantoo
Posts: 1528
Joined: Jan 2010

Lovinlife23,

We do not discriminate. It is not all older men in our club like garym, Tex and myself. Over the last year we have had a handful of young ladies in their late 20's and early thirties join us. As I recall all of these youngins are doing fine. You have a good diagnosis and we need younger blood to help the newcomers as we older men get older. Next week will be a little rough, but we have all gone thru this initiation. My diagnosis date was 10 years ago this month. You will be there in notime.

Icemantoo

lovinlife23
Posts: 3
Joined: May 2012

Well I am 10 days post surgery and am doing quite well. I am up and walking around, even though it is at the speed of a turtle. I believe I am recovering well. My doctor confirmed from the pathology report that it was indeed cancer but he says that I am cancer free since the surgery and should not have anything else to worry about. As this is great news to hear, I am a little scared. Should I go see an oncologist for follow up care just to make sure everything is ok? Just not sure what to do. My urologist is amazing and I am very happy with his care but I can't help but feel as though the surgery is all I need. Is it normal to feel this way? Should I be concerned?

Thanks for any help you can give.

foxhd's picture
foxhd
Posts: 1899
Joined: Oct 2011

.So glad you are recovering so well. But I would say the concences here is that one SHOULD have an oncologist follow up. Best to be proactive.

icemantoo's picture
icemantoo
Posts: 1528
Joined: Jan 2010

Lovinlife23,

Try not to be too concerned as your prognosis is excellent. You will have routine test annually and more often the first 2 years to verify that everything is OK. As for seeing an Oncologist discuss this with your surgeon. If a referral is available and covered by your insurance follow up with it.

Icemantoo

garym's picture
garym
Posts: 1651
Joined: Nov 2009

ll23,

Good to hear that you are on track for a speedy recovery.

Its been 2-1/2 years for me and I have not seen an oncologist which has worked fine for me, I had an excellent pathology and trust my urologist, but I would advise that you do whatever will make you feel the best mentally and emotionally. If a consult will aid you in a return to "normal" then go for it, a second opinion is not a bad thing and will likely bolster your resolve.

Hang in there,

Gary

lovinlife23
Posts: 3
Joined: May 2012

Thanks for the input. I will talk to my surgeon. Also wanted to ask you all, I asked my surgeon what kind of diet I need now due to only having one kidney and he told me to stay away from protein supplements, such as protein powders and protein bars. He also told me that I am only able to take tylenol now as my over the counter choice of meds. This is a little confusing to me. I've been told by some people who have had various types of cancer that they are only supposed to use aleve or ibuprofen now and NO tylenol. Even my grandmother who had bone cancer wasn't supposed to take tylenol. Have any of you been told the same thing? I'm thinking maybe its because it is difficult for one kidney to filter out all the other medications, tylenol being the easiest to filter out. Any input or info on what you all were told by your doctors to avoid with only one kidney?

Jeramiahs Mimi
Posts: 1
Joined: Jun 2012

I am not going to comment on the tylenol issues, however, I would like to see you taking Nettle leaf. Do some research.. it's good for the kidney(s)!

Jeramiah's Mimi

Advocates to families of cancer and catastrophic illness.
www.JeramiahsMiracleFoundation.org
www.JMFcares.org

250xcfw's picture
250xcfw
Posts: 30
Joined: May 2012

I was hoping I had a few more years in me before I needed to start talking about all my ailments other than sports injuries. Cancer makes even less sense when you don’t fit the standard criteria.
My Dr told me the average age was 65 for men to get kidney cancer so most of the statistics are based on this and that new treatment and procedures come out daily.
My surgery is on Wednesday the 23rd so I’ll race you to recovery even though you’re younger than me by 10 years.

Good luck
John

Fishknees
Posts: 73
Joined: Mar 2012

Sorry John!
Sounds like we have a real epidemic going on right now. It was semi=quit for a while. The folks will take good care of you.
Fishie

250xcfw's picture
250xcfw
Posts: 30
Joined: May 2012

I was doing an endurance offroad motorcycle race yesterday and it gives you time think about life and death. I see people who give up because it's to difficult or just because they can't win. I've got blisters, bruises, scrapes, sore muscles and was wishing it would hurry up and end. When you look at it, it's not much different than life. When the pain gos away you start to think that wasn't so bad I could do that again. My goal yesterday was to finish and enjoy the day with good friends talking about how close we came to winning over a cold beer. I did everything I set out to do and feel good about it. My next race will be on Wednesday when I have surgery. I know the outcome will be same banged up and bruised but a sense of accomplishment.
The way I see it is we all can't win but we still need to get to the finish line and be happy with how we got there.

John
Sorry for the rambling.

Limelife50's picture
Limelife50
Posts: 411
Joined: Nov 2011

It has been 7 months for me and i am still trying to come to terms with the fact that life the way i knew it was ripped away from me,now its time for you to take a little break and focus on what is neccesary and that is to achieve full recovery and even though we are changed forevever life will return to normal,you will have plenty of races to win later and will be able to celebrate your victorys over a few cold ones,i hope for the best outcome on your upcoming surgery so hang tough and keep us posted

foxhd's picture
foxhd
Posts: 1899
Joined: Oct 2011

You are right John. Full speed ahead! you won't catch my ass sitting around waiting for the end. If it is coming, then, it has got to come and chase me down.

250xcfw's picture
250xcfw
Posts: 30
Joined: May 2012

Foxhd
Right on, I plan to use the time after surgery to plan for the future not dwell in the past and feel sorry for myself.
A group of friends stayed with me this weekend and we're still planning a trip to do the Baja 500 race in a year or two.
I'll email again after surgery in a couple of days.

Thanks everyone,
John

garym's picture
garym
Posts: 1651
Joined: Nov 2009

John,

Good luck with the surgery and recovery, you have a great attitude and spirit which will serve you well. It will all be little more than an unpleasant memory before you know it.

Looking forward to hearing from you afterwards,

Gary

250xcfw's picture
250xcfw
Posts: 30
Joined: May 2012

Here’s my story for the last two weeks. Surgery was planned for May 23rd which is a 3 hr drive from home.
May 22nd
We decide to take off the day before and have a nice day with friends. About 15 minutes into the drive I start getting pain in my lower left flank. No big deal a little pain never hurt anyone. After 45 min I had to pull over and let the wife drive. As we drove along I realize we still have 2 hrs left and there’s no cell phone service ahead for at least an hour. By now the pain is real bad, “turn around we need to go to the ER now” I told the wife. Now she’s freaking out and I’m trying to get a signal on my cell phone so I can find the next hospital. We reach the ER; they wheel me into the back and start giving me morphine and lots of it to stop the pain. After giving me 3 times the legal quantity they switched to a synthetic form and it does no good either. Finally they find a drug that helps and swoosh on to an airplane headed for the big city.

May 23rd
Still in horrible pain, they decide to postpone surgery until evening. That’s when everything falls apart. I won’t go into detail but I ended up loosing quite a bit of blood. Once they got everything under control I felt much better and they rescheduled for Thursday morning if everything looked good.

May 24th
Thursday morning came and no word from surgery. Finally I get word my Dr was in emergency surgery and wouldn’t be out for 6 to 8 hrs. At 8pm they move me to pre op and by 9:30 I’m headed to la la land.

May 25th
1:30am I wake up in recovery and wonder what the heck was going on. After a few minutes they let my family in and get ready to wheel me back to my room. That’s when my wife decides to pass out and cause a big commotion. The rest of the day went as planned.

May 26th
Up walking and eating clear foods.

May 27th
Up walking and eating solid foods.

May 28th
Home

May 29th – June 4th
Went off pain pills on May 30th and walking about a half mile by June 4th. Feeling good other than my stomach feels like I have motion sickness. Plan on going back to work part time on Wednesday the 6th for 2-3hrs per day.

Thanks
John

garym's picture
garym
Posts: 1651
Joined: Nov 2009

Hi John,

The initiation into this club was pretty boring for most of us compared to yours, what a fun filled week you had. It sounds like everything worked out ok in the end so you can take a deep breath, let out a long sigh, and concentrate on recovery. Don't push going back to work right away if you don't have to, your body needs rest, this seems like simple surgery, but it is still a major trauma to your bodily systems and functions. Keep up the walking and remember to drink plenty of water, all of this will be a distant memory before you know it, someday you'll even be able to laugh about it, yeah right.

Hang in there,

Gary

foxhd's picture
foxhd
Posts: 1899
Joined: Oct 2011

Nobody said kidney surgery was boring! My surgery was done quickly also. Pretty much forced into the emergency room past a full house due to pain. Sure beats the hell out of waiting a month like many other people. Doesn't it?

250xcfw's picture
250xcfw
Posts: 30
Joined: May 2012

Forgot to mention that I got my pathology report and I'm a grade 2 stage 2. Doc also wants to wait for 4 weeks before the next surgery on my right kidney.
Did anyone have any stomach problems after surgery?

John

Limelife50's picture
Limelife50
Posts: 411
Joined: Nov 2011

Yes my stomach bothered me for a good 2 weeks after surgery

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