May 05, 2012 - 3:47 pm
I joined here earlier as I had a "tentative" diagnosis of maybe cancer but it turned out to be Sjogrens which is an autoimmune disease also. Weakened immune system.
Well as of April 24, 2012 I am officially diagnosed with B-Cell Non-Hodgkins lymphoma. It was a bit of a fluke finding it as they did a CT on my lungs of which also shows the liver. Found a lesion, did a liver biopsy and found the cells. Thing is when the pulmonologist called the first words out of his mouth were "I have bad news." Gosh they got to learn to be a little bit diplomatic!!!!
I am getting a CT/PET and a bone marrow in hip done on Tuesday the 8th. I see the dr again on Thursday the 10th. IF (big if) the test results are all back "they wanted to do the tests Monday but couldn't" dr wants me to start chemo after I see her. Dr mentioned that due to the Sjogrens she was concerned if I would be more prone to getting an infections. But the only times I have been ill are in the Fall, Spring and maybe Winter. Summers for me have been 99% illness free so I hope that works in my favor!!
So far, the plan is R-chop which is 6 doses taking 4-6 hours ever three weeks. The dr wanted the initial chemo there but I am working with her to get my treatments closer to home as we have a cancer center here without driving 35+ miles each way as I don't know how I will be feeling driving that distance. Trying to plan ahead here some as drs can't tell me how I'd feel. Geesh!
I am totally solo - closest relatives 400 miles away. I "think" I am going to take partial disability and work 4 hours daily from home on my job which is a "bang the computer all day type". If I get to the point I can't do that, I will take the short term disability. I am finding all about that stuff from HR Monday. Heck I am just not sure!
So far it has been one fast rollercoaster ride for me. I'm trying to get things set up prior to chemo and have no idea what to expect. Emotions and brain is ok but tummy is getting ticked off from time to time.
Just want to introduce myself and have everyone wish me luck on my tests and my journey through chemo for NHL treatment.