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Does the dread of getting test results every get easier?

mom2greatkids's picture
mom2greatkids
Posts: 512
Joined: Jun 2011

I had a CT Tuesday, petscan Thursday. I should get my results next Tuesday. It's been almost a year since my surgery. In December the dr. said I was in complete remission. Now for whatever reason, (I feel great, no apparent symptoms of recurrence), I'm really scared to get the results. Does this get easier with time? I sure hope so. Thanks ladies.

Carla

kikz's picture
kikz
Posts: 1267
Joined: Jun 2010

Sometimes I get anxious for a few days before my blood draw and other times I feel kind of matter of fact. I quit calling for the results and wait for the letter in the mail which arrives about a week later. I got nervous waiting for the advice nurse to come back to the phone with the results.

I posted last week about my number tripling. It went from 8 to 23. I know that is not a huge rise but my onc is concerned as well. I will get another CA 125 on 6/10 and I know I will be jumping out of my skin until I get this result.

I am surprised any of us maintain our sanity while dealing with this disease. But as I have been from the start I am trying to take it a day at a time and not get ahead of myself. Sometimes it's not so easy to do but I don't want to give this disease more of myself than I have to.

Good luck with your results. You'll be in my thoughts.

Karen

AnneBehymer's picture
AnneBehymer
Posts: 739
Joined: Jul 2011

When my numbers went from 6 to 22 two weeks later they checked it again and the continued to check it every two - three weeks until they realized the cancer was back now I will have blood work up every week before treatment. It's just me but I would ask if they can do it eery two weeks I know how hard it is for me br sitting here waiting to start my new treatmet and knowing I have womething growing inside me with nothing being done have to have test before I can start the trail medication, are you still on treatment?

Love, Hugs, and Prayers
Anne

kimberly sue 63's picture
kimberly sue 63
Posts: 393
Joined: Apr 2012

I liked your response "dont't give the disease more of myself than I have too". Words to live by, but hard to do! Kim

undertreatment2012
Posts: 126
Joined: Mar 2012

i cant imagine it ever getting easier. You speak of symptoms that you do not have at this point. Can you elaborate on that? Would they be the same whispering symptoms we had to start with? or pain some where? I don't understand. Thank you and good luck

debrajo's picture
debrajo
Posts: 732
Joined: Sep 2011

I am blessed to get my c125 blood test results on the same day of the draw! Only thee times have I had to wait and then they called me inrout home and once the results were on the answering machine when I got home! Even that makes me a nervious wreck. I go to M.D. Anderson in Houston, Texas. For me, it will never get eaiser. Best, debrajo

mom2greatkids's picture
mom2greatkids
Posts: 512
Joined: Jun 2011

I should have worded that differently. I have no symptoms. However, when it's "test" time I just know that every little pain, ache, etc. could be it. I know, it's crazy, but it's where I am. I don't let it consume me though like I did at the very beginning of diagnosis. I feel great, I really do!

lovesanimals's picture
lovesanimals
Posts: 1222
Joined: Sep 2011

Although I don't get overly anxious or nervous, I do breathe a sigh of relief after each blood test time, and am thankful that I continue to be NED (no evidence of disease).

Kelly

AnneBehymer's picture
AnneBehymer
Posts: 739
Joined: Jul 2011

I found out last Thursday that my cancer is back so next thursday I have to have an EKG, catscan, and a lot of blood work up. I already know the answer to all the test yet it is killing me to know that I am going to have to wait and see if the cancer has spread anymore while waiting to get started on chemo again. So no I really don't think it gets easier. Sorry I wish I could tell you yes but I also have only been fighting for just under a years so maybe it does but right now I don't think so.

Love, Hugs, and Prayers

twillits
Posts: 32
Joined: Mar 2012

I have only had two CA125 draws, once before surgery, and one just last week, which I have not heard what the result was. I was supposed to have chemo, but couldn't cuz of low white count, so I left there with no results for the CA125. I am nervous to go back on Tuesday to not only find that out, but my white count as well so that I can continue on with my treatment. I am also still waiting on the genetic testing. It's all a big wait and see game. Seems like I do that alot. And tried to stay positive with every test!!
Just adds to the stress of the this disease!
(Didn't meant to go off there venting...but thanks for letting me)
Hugs to you all,

AnneBehymer's picture
AnneBehymer
Posts: 739
Joined: Jul 2011

Don't ever worry about venting to us that is why we are here. I don't think any of us would open up and talk about the things going on with us unless we knew that the ladies here will help us through. That is the one thing I take from this site is all of you have been where I am going and know what to expect and it helps me make it threw the tought times. We are here to love you threw and prepare you for what to expect if we can. Please come often so we can help. You also will be able to help us and others so it is a win win thing. We are sister in this battle and that is a great thing to have.

Love, Hugs, and Prayers
Anne

chaotikc
Posts: 4
Joined: May 2012

It has been almost 13 years since I finished my treatments. I have never had a recurrence, but I have had many scares. I still see the GYN every 6 months for testing. I still experience a lot of anxiety while waiting for my results. I doesn't get any easier. I am not as paranoid as I used to be. I don't worry that every little ache, pain, or discomfort in my body means that it is back. But I can't shake the anxiety between when they run my tests and when I get the results.

kikz's picture
kikz
Posts: 1267
Joined: Jun 2010

You are an inspiration and source of hope for us. Thirteen years and counting and you are still so young. I am so happy for you.

Karen

chaotikc
Posts: 4
Joined: May 2012

Thank you! I am glad that I found this opportunity. I have wanted to be able to help others that are dealing with cancer or have loved ones that are. I want to remind people that this is beatable! Its a horrible experience, and you live with it long after the cancer is gone. But we are warriors! We will fight this disease!

paris11
Posts: 132
Joined: Oct 2010

Nope -

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