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Sam (sangora) update

sangora
Posts: 218
Joined: Mar 2011

Wanted to let my EC buddies know that I am still around. Am getting very tired and having hard time being up much to check on our board. Last friday I had to have my feeding tube replaced. That was an ordeal but I got through it ok. Hospice continues to be here and are very supportive and doing a good job.I continue to be 99% pain free and am not feeling over sedated. Please continue to remember me, Sam Stage IV

chrissiebass
Posts: 60
Joined: Apr 2011

Though we have never "talked" I have followed your story here, and have been thinking of you, it is good to hear your pain free, but not too sedated. Take care of yourself and thanks for checking in

chrissie
dad stage iv

paul61's picture
paul61
Posts: 1109
Joined: Apr 2010

Sam,

It is great to hear from you. You continue to be in my thoughts and prayers daily. I am glad that hospice has been able to give you some support. May you continue to be as comfortable as possible.

Best Regards,

Paul Adams
McCormick, South Carolina

Ginny_B's picture
Ginny_B
Posts: 537
Joined: Sep 2011

You are always in my thoughts and most importantly in my prayers. I'm so glad you are not in horrible pain! Keep your chin up! love love love hearing from you!

have2believe
Posts: 135
Joined: Dec 2010

Hi Sam,
I'm glad you are pretty much pain free. I pray for peace and comfort. You are in my thoughts and prayers. I still believe in miracles no matter how big or small. I hope you continue to enjoy what life brings each and every day. In my thoughts always, L.

stephikindred's picture
stephikindred
Posts: 153
Joined: Mar 2012

Hi Sam. It's good to hear from you again as usual. I'm especially glad to know that you're not in pain. Just know that you're thought about often. I remember you in my thoughts and prayers daily. Thank you for keeping us updated as much as possible. You have many friends here who love you very much and think about you often. It means so much to us to get a good word from you!
Sending you love and blessings,
Stephanie

TerryV's picture
TerryV
Posts: 915
Joined: Jul 2011

Glad to hear that hospice is attentive and able to keep you mostly painfree. You are never far from our thoughts, Sam.

With much love and many {hugs}

Terry

Coach B's picture
Coach B
Posts: 21
Joined: Apr 2012

this is my first day todiscuss on the board that i have never done this before and i just found out that I have a EC three weeks ago and I have no idea who to talk to and I dont know how to enter chat to chat with someone... I just want to let you know I was born deaf and I dont know how to start chat live or discuss on the board and i really need "help" to decide which treatment and the surgery option and etc.... I am very nervous and was speechless when I found out.... Sam we never met or get to know each other and I hope u doing well and Pray for you and everyone..

mardigras's picture
mardigras
Posts: 196
Joined: Sep 2011

Please send your message again under new topic. It should be at the top of your page.
I'm so sorry that you find yourself here although there is a wealth of help and support
here for you.
If you send your message under 'new topic', more people will see it and respond accordingly. The discussion boards here are really informative, if a little daunting.
I know William will be able to help you a lot and so will lots of other long time survivors.
I am just a carer for my husband, who also has EC, and we are in England, so the system
here will be very different to you if you are in the USA.
I will pray for you and hope that you will get all the help you need. If you have specific
questions, I am happy to try and answer them if I can.
On the left of the page you will see 'chat'. Once you are registered, you can join in and lots of people will talk to you and try and help you.
Take care of yourself.
Love and hugs,
Marci x

Coach B's picture
Coach B
Posts: 21
Joined: Apr 2012

this is my first day todiscuss on the board that i have never done this before and i just found out that I have a EC three weeks ago and I have no idea who to talk to and I dont know how to enter chat to chat with someone... I just want to let you know I was born deaf and I dont know how to start chat live or discuss on the board and i really need "help" to decide which treatment and the surgery option and etc.... I am very nervous and was speechless when I found out.... Sam we never met or get to know each other and I hope u doing well and Pray for you and everyone..

Coach B's picture
Coach B
Posts: 21
Joined: Apr 2012

this is my first day todiscuss on the board that i have never done this before and i just found out that I have a EC three weeks ago and I have no idea who to talk to and I dont know how to enter chat to chat with someone... I just want to let you know I was born deaf and I dont know how to start chat live or discuss on the board and i really need "help" to decide which treatment and the surgery option and etc.... I am very nervous and was speechless when I found out.... Sam we never met or get to know each other and I hope u doing well and Pray for you and everyone..

rose20's picture
rose20
Posts: 282
Joined: Jan 2011

Sam, I sent you a private message. Praying.

BMGky
Posts: 666
Joined: May 2010

Glad to hear you are in no pain and receiving good care. We all are thinking of you. BMGky

megmacmd
Posts: 94
Joined: Jun 2011

You are in my thoughts as are all the stage 4s Glad you are pain free most important thing hope you have some quailty of life. For me quality is foremost care less about quantity (highly overrated)My trusty jack russell CC(criss cross) and I managed to navigate Home depot get a lawn mower on our own and get it home to mow great day They say I am stage 4 inooperable not curable and yet I continue to continue on.My dad ( an Irish man and Captain in the navy on submarines) always said "I aint dead yet stop checking my pulse" he died of bladder cancer at home pain free and very funny til the very end.Keep a going as my irish grandmother used to say and/or may the spirits guide you well as my other french canadian indian grandmother would say. Its all the same at the end of the day how was your day?I hope and pray it was good. I think of all that is right and good no sense in dwelling on the negative .KEEP A GOING may you have pleasant dreams and a host of good supportive friends. MegMac and trusty jack russell CC Oh yes the beach was awesome today very scary on the early morning fairway walk lots of red foxes on the prowl

JReed's picture
JReed
Posts: 463
Joined: Nov 2011

Sam:

God certainly works in mysterious ways. When I look back to the time I first posted on this site, little did I know that God was leading me to my new lifetime heroes. Until this site, whenever I heard someone asked who their hero was, I often wondered who truly was my hero. I never had answer.

I do now - you, Sam, and I'm afraid to name names in fear that I would forget someone, you Esophageal Cancer warriors and caregivers are my heroes. You make me laugh, you make me cry, you send encouragement, you send cyber hugs, positive mojo, suggestions, phone numbers to call if needed, and the list goes on of what you send. Most of all you send the courage to make it through this battle with grace. You are my hero and I thank God for you and everyone on this site.

I love you Sam,
Judy

Donna70's picture
Donna70
Posts: 920
Joined: Aug 2009

Dear Sam,
I think of you and pray for you everyday. Thanks for letting us know what is going on with you. I am glad hospice is doing a great job and that you are not in pain. You have been an inspiration to everyone here, we love you. many hugs,
Donna70

lilrusty's picture
lilrusty
Posts: 54
Joined: Sep 2011

Sam Im so glad your pain free and still able to fight this nasty disease. I pray you continue with peace and comfort. Love To You, Chrissy

captdave's picture
captdave
Posts: 168
Joined: Feb 2012

Sam, Great to hear from you! I had been wondering how you were doing as we hadn't heard any hews for a while. Thanks for checking in and keeping us up to date we all appreciate it. It is good to hear that your pain is being well managed and yet you're not feeling sedated or loopy. You're in my prayers daily.

Dave

unclaw2002's picture
unclaw2002
Posts: 664
Joined: Jan 2010

Sam,

You are in my thoughts and prayers. I continue to wish you good moments and precious time with friends. And all of us, your CSN family, keep you in our thoughts every day.

Hugs and love,
Cindy

Heeran's picture
Heeran
Posts: 173
Joined: Aug 2011

Sam, no worries on anyone forgetting you. Very happy to hear the 99% pain free part. Take care of yourself.

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