Apr 24, 2012 - 11:21 am
My daughter wanted my scans and pre-treatment appointments to move a little faster (we are Canadians), so she had me join her in Florida (where she has a second home). She got the process rolling for me in Florida and I flew down, had both a CT scan and a PET scan, consultations with both chemo and radiation oncologists within 2 days of being there. After reviewing the results, the oncologists encouraged me to go back to Canada for treatment because they said that the PET scan showed that my anal canal tumor was localized and that there was no lymph node involvement. They felt I could wait the few extra weeks to start treatment here. Let me say, I was extremely impressed with the clinic and the doctors there. I had never been treated so well in my life by medical professionals!
I came back to Canada with the CT Scan and PET Scan and records of all their findings from Florida. Having made this excursion to the U.S. seemed to speed things up here-- almost immediately, I saw a chemo oncologist and gave him my medical records in Florida including the DVDs of the scans. I asked him if I had to go ahead with a scheduled MRI here in Canada since I had had the PET scan in the US. He said I did. He told me that MRIs SHOW THE PELVIC AREA MUCH BETTER THAN DO PET SCANS. I had the MRI and it showed that I not only have lymph node involvement but that I have a sizable (1.6 cm) cancer in my lymph nodes! We again consulted the oncologists in Florida who once again went over my scans from there and found absolutely no indication of lymph node involvement.
Had I not had the MRI, I would not be being treated for the cancer in my lymph nodes. So, I know that perhaps this message will cause alarm to some people but I just couldn't keep this information to myself. If you are newly in treatment, ask your doctor about an MRI.