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this chemo is so hard

poopergirl14052's picture
poopergirl14052
Posts: 1179
Joined: Nov 2010

Cisplatin/Gemzar..I have one chemo one day for 5 hours and then one chemo 7 days later. Before I had carbo/taxol for 12 infusions. Two done and 4 more to go. I get to keep my hair but I am in bed a good week feeling like..well you know. Just wish this was over and the end of cancers...wishing you all blessings...val

Mwee's picture
Mwee
Posts: 1316
Joined: Nov 2009

I'm glad you'll be done after 4 more. I, too, am in bed for the week after the cisplatin/gemzar and then it's off to get the gemzar. The digestive problems and fatique are so tough to endure time after time. BUT... it's keeping me stable and that's alot. I'm so glad that you posted today for I've been thinking of you and wondering how the chemo was going. Hang tough............ (((HUGS))) Maria

lovesanimals's picture
lovesanimals
Posts: 1283
Joined: Sep 2011

You both have endured so much and at the same time have selflessly provided so much love and support to the women here. I wish I could take away all of the chemo side effects.

Sending you both big hugs and good thoughts and prayers.

Kelly

kayandok
Posts: 1223
Joined: Jun 2008

how many more do you have to do? I can't believe you are still on this chemo. I am so sorry. It is the worst, spelled HELL.

I am glad to hear you are stable. You always have such a positive attitude and are such an inspriation to me!!!!

Hugs,
kathleen

Mwee's picture
Mwee
Posts: 1316
Joined: Nov 2009

Thanks for the kind words.... I have no # of how much longer I have to stay with cisplatin/gemzar. I guess I'll stay on this routine for as long as it's working. I'm staying stable with variations on my ca-125'S, small ups and downs, but my last ct scan showed my tumors reduced by 2/3s. I'm not a candidate for additional surgery at this time, so this is kind of my new normal. Like you, I'm thrilled to be alive and try to suck up all the joy I can squeeze in. YOU are an inspiration to me, you're such a fighter.
(((HUGS))) Maria

undertreatment2012
Posts: 126
Joined: Mar 2012

O honey, I can tell you are deflated and discouraged by all this chemo and I feel your pain. I have not been through nearly as much as you--- yet. But last night I was up late, I could not sleep because of pain in my abdomen, sick of seeing myself without hair, sick of being tired just angry about everything. There is nothing anyone can say when you feel like this. The only thing they can do is just "be there", no words are necessary. People can walk your journey WITH you, but no one can walk it FOR you. We understand here. Prayers and hugs

carolenk's picture
carolenk
Posts: 909
Joined: Feb 2011

I feel for ya. (((hugs)))

poopergirl14052's picture
poopergirl14052
Posts: 1179
Joined: Nov 2010

,,they help a lot. I miss working and living my "normal" life. I want to take care of my patients and feel useful..as now I feel useless. Can bearlt do housework or go shoppinf or cook. Hubby does most of it. I must not feel sorry for myself. I have wonderful friends and family..but I do wish cancer would be gone and stay gone. I will keep up the fight for sure.....God bless..val

LoveButterflies's picture
LoveButterflies
Posts: 73
Joined: Feb 2012

Stay strong Val and Maria! You ladies are always so giving to the rest of us on this board. Always there willing to listen and give us words of encouragement. God bless you both and may he give you strength, courage and relief of any discomforts. Let your family and friends take care of you and rest when you need it.

You are in my prayers and sending both of you big (((hugs))) and love!

Carmen

kimberly sue 63's picture
kimberly sue 63
Posts: 408
Joined: Apr 2012

Rest when you need it. Let the sleep help renew your energy. Soon life will look brighter. Try and enjoy the moments you can. Remember this will pass and hang in there for sunnier skies. Kim

jbeans888's picture
jbeans888
Posts: 313
Joined: Mar 2011

Val, I know it is hard but you have done it before and you will do it again. Lots of love.
Joyce

zinaida's picture
zinaida
Posts: 220
Joined: Oct 2007

Hi Val! 14 month non stop chemo. One week in bed, two weeks good to go... Just remember we do it to live longer and we have more good weeks than bad?... Love you my teal sisters, Zina :)

Lisa13Q's picture
Lisa13Q
Posts: 683
Joined: Jul 2009

Hey Val,

Cisplatin is as tough as the chemo gets.....if you get 2 good weeks you're doing well...hang in there....

sandyinmi
Posts: 17
Joined: Jan 2012

Val
I'm a relative newcomer, but already I've seen you be so encouraging to others on this board. You are such a warrior, and inspire all of us. Hopefully this round of chemo will give you lots of cancer free time. In the meantime, hang in there and be kind to yourself.
Sandy

clamryn's picture
clamryn
Posts: 508
Joined: Jun 2010

I know what you are feeling. I am so sorry you have to go through this again. You are such an inspiration to those on the boards. We all have a right to get upset. I spend a lot of time in the bed too. My little grandkids don't understand why I don't get well. I get so mad sometimes that I just don't know what to do anymore. I am a fighter and will continue to fight but my body just seems to be wearing out. All my love and prayers to you Val. You will get through it.

((((hugs))))
Linda

srwruns's picture
srwruns
Posts: 343
Joined: Oct 2010

Thinking of you.

davevg
Posts: 114
Joined: May 2011

Very good to see you posting again. Sorry to hear your having a difficult time as of late. That Cisplatin is bad bad stuff but works well. That is one of the first ones my wife Tina had IP paired up with IV Taxall. The Dr said its side effects are bad but its top shelf stuff. Hope you get a very lengthy remission out of it.

Prayers and good luck to you

Dave & Tina

2timothy1 7's picture
2timothy1 7
Posts: 337
Joined: Jan 2012

I don't post to much but I wanted to encourage you. You can do this. I get cisplatnin 2 times in an 8 day period plus taxol on day 2. I also give myself I've fluids for about 3 days following the chemo. Home health brings them to me. My port stays accessed after chemo for this. Renders me useless for at least 3 to 4 days but I do come out of it! And you will too.
Prayers to you
Shawnna

poopergirl14052's picture
poopergirl14052
Posts: 1179
Joined: Nov 2010

I will be getting more fliuds via my port at home the day after chemo,,as I told my Dr, I was in bed got 5 days and really couldn't ear or drink and I became dehydrated. I hope this will will help ease the nausea. My next chemo will be first week in May..I wamt to feel good for Mothers Day, Thank you all for your continued love and support..val

kikz's picture
kikz
Posts: 1284
Joined: Jun 2010

for what you are going through. I hope you are feeling fine for Mother's Day. I think about you and tell people about the funny stuff you put on facebook. I bet your patients loved having you as their nurse.

I always tell people you seem like you would be so much fun to hang out with.

Keep up the fight as I know you will.

Karen

VictoriaSF
Posts: 165
Joined: Dec 2010

Hello Val! I am sorry this chemo so hard on you, but lets pray it will put you in remission again! I will say prayers for you and sending good vibes!
Stay strong!
(((hugs))
Victoria

kayandok
Posts: 1223
Joined: Jun 2008

cis/gem was the worst chemo combo I ever did. I was supposed to do 8 and stopped after 6 (I still wonder if I had gone a couple more if my remission would have been longer) because I was almost suicidal. In Japan, they make you stay in the hospital to hydrate for 4 days, and I stayed at least 5 because I could not eat or drink. Then, wen I came home, I still could hardly eat for a few days, although the nausea went away slowly. None of the anti-nausea worked and I took them all!

I feel for you, and am so sorry you have to go through this. Hang in there, it will pass. Is it working????

Love and warm hugs from across the ocean❤

kathleen

Cafewoman53's picture
Cafewoman53
Posts: 738
Joined: Jul 2010

When I feel like it is too much I think of you, the cisplatin is harder than the carbo.I have to go tomorrow for the first infusion of the 6th (last) round ! I am trying to cheer myself up by the fact that it is almost done but the last round was so horrible I just don't want to go tomorrow, but I will. But I really need a break. So do you and Im sure many more of our teal sisters. maybe this next round for us will be easier.
Colleen

Radioactive34's picture
Radioactive34
Posts: 387
Joined: May 2011

Hugs, hugs and more hugs...

Tina Brown's picture
Tina Brown
Posts: 1054
Joined: Nov 2009

I am feeling just the same as you at the moment. I am on my 4th chemo and I sometimes wonder WHY I keep going back to have some more. The side effects - nausea, constipation and reflux is getting me down and I am losing my positive attitude.

You are not alone - we are all doing this together for the same reasons. One day they may come up with a much better way to keep us alive. We will cling onto live for as long as we can. We all have lovleing friends and families we don't want to leave. We take each day as something to be glad of and I often feel happy that I am still here eventhough I feel un-well.

Take care everyone on this board and never give up :) Tina

mom2greatkids's picture
mom2greatkids
Posts: 519
Joined: Jun 2011

Val,

So sorry you're having a hard time. Since I joined this board last summer, you have been a constant encourager to everyone. I'm sending you a virtual hug!

lovesanimals's picture
lovesanimals
Posts: 1283
Joined: Sep 2011

Hoping and praying that you have a wonderful Mother's Day!

Take care,
Kelly

AnneBehymer's picture
AnneBehymer
Posts: 739
Joined: Jul 2011

I am so sorry you are going through so much I am praying for you all the time. I remember how it was when I was on the taxol/carbo and avastin and do not look forward to going back to chemo. I am still dealing with the side effects of the last chemo but soon might be going back on chemo and it scares me. Keep up fighting it is people like you that make me fight hard because if you can do it so can I.

Love, Hugs, and Prayers
Anne

garden gal
Posts: 212
Joined: Nov 2010

Sorry to hear what a hard time your having, like we all say hang in there. I've been on 7 chemo drugs now non stop except for time just recently off for surgery. We do it because we want to live. I truly hope it gets easier for you, you ladies have been there for me so so so many times. Prays and hugs Kathy

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