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scuttlebug11's picture
scuttlebug11
Posts: 175
Joined: Jun 2011

i'm back in the hospital for round2 of rice, this is the worst treatment i have had so far. my date for the consult at wvu is may7th i hope i have some good news this time. my daughter is back home, she has to go to court on the 25th, the stste took over go figure don't they don't they do what they want. i,m praying for her and myself that things will get better for both of us and they don't send her off she has been my life since her dad and i divorced when she was one. blessings denise

allmost60's picture
allmost60
Posts: 3184
Joined: Jul 2010

Hi Denise,
I'm sorry this treatment is so hard on you. How many rounds do you have to do? Darn stuff really messes with our bodies and rough as heck on us. I'll keep you and your daughter in my prayers. Sure wish you didn't have the added stress with your daughters situation and State involvement, but as we know all too well...life goes on, with or without cancer! Hang in there friend and try to focus on keeping yourself as calm as possible...I know, it's hard! Much love...Sue (FNHL-2-3A-6/10)

scuttlebug11's picture
scuttlebug11
Posts: 175
Joined: Jun 2011

i'm not for sure how many more treatments of the rice i will do, i go to wvu on may7th for a consult for either a doner transplant or one using my own stem cells dr. craig said with follicular he would rather have a doner, but i guess either way i'll have one or the other. how are you sue did you ever find out what all that stuff on your scan ment. love and blessings denise

allmost60's picture
allmost60
Posts: 3184
Joined: Jul 2010

Hey Denise,
I still have pain in my hips and knees, and not near as much energy as I would like, but with that being said, I'd say overall I feel pretty good. I met with my doctor last Tuesday and he went over my scan results with me and explained everything. In his opinion I am doing good with nothing to worry about. The scattered calcification deposits are apparantly normal for my age group..(61). I have some degeneration in my spine, but there's not much I can do there since most of the problems are caused from my birth defect..Klippel Feil Syndrome. So...overall, he said I am good to go for another year unless something pops up that looks suspicious. Works for me! You hang in there Denise and remember the chemo treatments will end eventually and then things will start getting better. I'll be thinking of you, and be sure to get back with us after your May Dr. appointment. Love ya....Sue
(FNHL-2-3a-6/10)

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

DEnise,
I wrote you a long response this morning,but don't know what happened to it.It was on here and now its not? Anyway i was saying more or less what Sue was saying. Things will get easier for you. John

jimwins's picture
jimwins
Posts: 2108
Joined: Aug 2011

Hi Denise. Just wanted you to know you are in my thoughts.
Hang in there and great big hugs to you :).

Jim

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