Apr 18, 2012 - 7:09 pm
OK. Here we go. First of all, excuse me as I am getting a bit emotional. I do know that I am going to cry tonite. Second of all, if I begin to slur my words it's because some one told me to have a couple beers to celebrate. So, I took my own advice!
Went for 7th infusion today of 10 mg/per kilogram of body weight of MDX-1106. Or Anti PD1. But first was the Doctor visit.
To rehash for many newer members, I had a left radical nephrectomy for stage 3 cancer in March 2011. Recovered well last summer with negative scans. In October 2011 found out I had numerous tumors in my lungs, liver, and chest lymph nodes. My local oncologist said she could do nothing for me. Maybe I would not make through March 2012. I needed to go to a bigger cancer center. A friend pulled some strings and got me to see a top rated oncologist at a bigger center. Bottom line is he said "Good Luck". He agreed that if I was his own family member then Interleuken 2 was worth the chance. But they didn't do it!
So I got to Yale in a bit of a panic. Yes. They could treat me with the Interleuken but......Maybe, I would like to hear about a trial drug of MDX-1106. This drug blocks the programmed die off of T-cells in our immune system allowing the T-cells to attack cancer cells. Specifically Clear cell renal cancer and melanomas....There were to be a limited number of candidates accepted into this trial. But I had to meet all the criteria. I really liked the idea and went for it.
Many weeks of blood work, genetic testing, ct scans, pet scans, bone scans, brain scans and biopsies took place. Then I recieved the news. My first infusion was to begin in December then every 3 weeks there after. Ct scans every 6 weeks.
By the end of December and in January, the cancer now had spread to my pelvis and spine. Very painful. I was needing percocets to get around the house.
But my pain started going away. I returned to exercise and running. I continued with treatment and my scans began to show healing in my bones. My lung and liver tumors were shrinking. Some are GONE!! I am feeling GREAT!!
So Today I go in for infusion #7. Pre-treatment, I meet with my Doctor to review my latest scans. Was I anxious?..Just lay it on me Doc. She says ,"So how are you?" I told her I'm excellent unless she tells me otherwise. She smiles and says," Some tumors are only half to a third of what they were. Some are gone."I am getting excellent response from the drug. Side effects are minimal. Not even worth mentioning.
I am getting better!!!!!!! How do I express how thankful and fortunate I am?
I want to thank all on this board who share their stories, support and love. We are going to win this challenge!
Now excuse me while I cry a little and finish my beer.