Can any one tell me how long the pre-chemo steroids remain in the body? Could symptoms linger almost two years after chemo is finished? What symptoms die y'all have? Thanks, debrajo
It sounds like you are worried about something.
Every small problem I bring to my dr. they just say it's due to the steroids. My balance is pretty shakey,can;t clime stairs at all without handrails, I picked up 30 pounds that I cannot seem to lose, and I have lost the ability to consentrate,therefore I have stopped doing any hobbies or activities I use to do because I can't think. My family has several mental issues that are inherited such as bi-polor disorder. I thought I was spared,but according to the dr. my brain chemistry maybe messed up do to the chemo and steroids. I am 23 months NEDand had no chemo or steroids in those 23 months. Can;t seem to see where all this is coming from steroids. Any opinions? Thanks Debrajo
I too have those moments. It is Chemo Brain more than the steroids. Chemo Brain is a real symptom. Researchers have found that women with breast cancer (of course this is waht they research) 20 years later that still have chemo brain symptoms, this was reported in my local (Dallas) newspaper about a month ago.
This is what one web site has about chemo brain. Signs and symptoms of chemo brain may include:
Being unusually disorganized
Difficulty finding the right word
Difficulty learning new skills
Feeling of mental fogginess
Short attention span
Short-term memory problems
Taking longer than usual to complete routine tasks
Trouble with verbal memory, such as remembering a conversation
Trouble with visual memory, such as recalling an image or list of words
Signs and symptoms of cognitive or memory problems vary from person to person and are typically temporary, often subsiding within two years of completion of cancer treatment.
When to see a doctor
If you experience troubling memory or thinking problems, make an appointment with your doctor. Keep a journal of your signs and symptoms so that your doctor can better understand how your memory problems are affecting your everyday life.
This is what one web site had about long-term side effects of systemic (When taken in oral or injected forms, the route of administration is termed “systemic.” ) steroids:
Long-Term Side Effects of Systemic Steroids
When systemic steroids are used for long periods of time, or when steroids are taken on multiple occasions, more serious side effects may occur. The length of time that steroids stay in the body varies from a couple of weeks to more than 18 months. It is for these reasons that the dose and duration of systemic steroids should be minimized whenever possible. Some side effects can be decreased by taking systemic steroids every other day instead of daily, even if the total dose is the same. Many of the side effects are reversible if the steroids are stopped, while other side effects may be permanent.
Side effects of long-term steroid use includes:
•Increase in certain types of infections
My problem is with words and short attention span. I cannot think of words to say and I know I know them. My concentration is slower so that does not help my attention span which is why it is short.
I had no problems with the steroids as I only had a small dose of them each time I received chemo. I am only 8 months from the last chemo and the fog is still there.
I am sorry you are still having problems and I will keep you in my prayers. trish
I have trouble walking up and down stairs-feel kind of shaky. I also have more trouble writing than I used to because my hands are a little shaky, too. How many rounds of Chemo have you had? I've only had two so far.
I have had the standard five rounds of internal radiation and six rounds of Taxol-carboplatin. The last treatment(I had several radiation treatments at the same time I was taking chemo)I had was May 8, 2010. I have had several episodes of complete vertigo which caused one really bad fall. I thought by now I would be human again. I don't really shake, it's more like my head spins faster the higher I go. About stair-step three I had better be holding on to something! Best, Debrajo
Thank you Trish, I have most of the things on the first list and unfortunately have several things on the extended steroid use already. The thing that bothers me the most besides the vertigo is concentration(so I have just about stopped reading) and memory of written things( I use to do Genealogy and could recall not only the line, but dates, deaths burials, children, ect.) Is this forever? do they have anything medically for this? I tried the Brain teasers, Sudoku, crosswords, ect and for a time I thought I was coming back, but recently the fog is thicker and all the brain exercises just frustrate the Hell out of me, so I quite. I am going to talk to the dr. in May, but they seem to think this is small stuff compaired to cancer and I AM blessed. Any suggestions will be wellcome! Thanks again for the info. Best, Debrajo (from Texas, Too!)