Any recommendations on NPC Radiation Oncologist near New York or TriState area?

aluo1271
aluo1271 Member Posts: 25
in Head and Neck Cancer #1
Hi there,

I was recently diagnosed as having NPC... now looking for a good radio oncologist near my home: New York or Tri-State area. As I found out that NPC is rare in the US, I wish he or she could have previous experiences and treats NPC on a regular basis. So far I have references to some very good radio oncologist, but not specialized in this area.

I wonder how did you decide where to go and what do you look/check when picking your radio oncologist? Any information would be very appreciated!

thanks,
aluo

Comments

  • longtermsurvivor
    longtermsurvivor Member Posts: 1,842 Member
    #2
    Welcome
    I think you are narrowing your focus too much when you say you are looking for a radiation oncologist who specializes in NPC. Better, you should look for someone who does a lot of head and neck cancer. Who diagnosed you? In my case it was an ENT oncologist, a man whom i've known for a long time, and who I trust a lot. I went to the radiation oncologist he recommended. That took a lot of the stress off of me.

    Pat
  • phrannie51
    phrannie51 Member Posts: 4,716
    #3
    Hi aluo
    Welcome to the best place on the internet for information, and support (in all ways) for your disease. I too have NPC, Stage III...and it was just a few short weeks ago, I was in the same dilemma you are...where to go, who should I have treat me. The big difference is, I live in the NW corner of Montana, and there are no cancer centers close to our area.

    I've heard that Sloane-Kettering in NYC is one of the better cancer centers in the US, and it's in NY...Dana Farber is in Boston...there are some places in your area.

    p
  • aluo1271
    aluo1271 Member Posts: 25
    #4
    phrannie51 said:

    Hi aluo
    Welcome to the best place on the internet for information, and support (in all ways) for your disease. I too have NPC, Stage III...and it was just a few short weeks ago, I was in the same dilemma you are...where to go, who should I have treat me. The big difference is, I live in the NW corner of Montana, and there are no cancer centers close to our area.

    I've heard that Sloane-Kettering in NYC is one of the better cancer centers in the US, and it's in NY...Dana Farber is in Boston...there are some places in your area.

    p

    Thanks for the information.
    Thanks for the information. I am going to give Sloane-Kettering center a try.
  • aluo1271
    aluo1271 Member Posts: 25
    #5
    longtermsurvivor said:

    Welcome
    I think you are narrowing your focus too much when you say you are looking for a radiation oncologist who specializes in NPC. Better, you should look for someone who does a lot of head and neck cancer. Who diagnosed you? In my case it was an ENT oncologist, a man whom i've known for a long time, and who I trust a lot. I went to the radiation oncologist he recommended. That took a lot of the stress off of me.

    Pat

    Thanks for pointing out that
    Thanks for pointing out that head and neck would be the area of expertise to look for. Best wishes for your latest treatment!
  • longtermsurvivor
    longtermsurvivor Member Posts: 1,842 Member
    #6
    aluo1271 said:

    Thanks for the information.
    Thanks for the information. I am going to give Sloane-Kettering center a try.

    If you can get to Sloan easily
    They are truly one of the top centers for this in the nation. You won't go wrong just getting there, and letting them lead you through this. There's a lot to be said for getting the right team picked, and then just concentrating on getting your act together for this as best you can.

    Pat
  • pattyanny
    pattyanny Member Posts: 544
    #7
    Mt Siani
    Hi aluo, Sorry to hear of your diagnosis. I have been treated at Mt Siani Medical Center on 98th & Madison in NYC. They are just wonderful, caring, and top of the line on keeping you informed, and accept many insurances.
    They are at 212-241-9410 Head & Neck Oncology
    Wishing you the best!
    Patty
  • Kent Cass
    Kent Cass Member Posts: 1,898 Member
    #8
    aluo1271 said:

    Thanks for the information.
    Thanks for the information. I am going to give Sloane-Kettering center a try.

    Sloan
    Excellent choice. Like P-51 said, Farber is another top notch place, though not as well known. I'm also NPC. Are you unknown Primary?

    kcass
  • CherriBlossom
    CherriBlossom Member Posts: 44 Member
    #9
    There are many well known
    There are many well known teaching university hospitals in NYC, just to name a few: NY Presbyterian, Sloan Kettering and NYU cancer center. NPC is very common amount Asians and NYC has a large Asian community so all these hospitals have lots of experiences treating NPC.
  • Chryssi
    Chryssi Member Posts: 12
    #10
    Radiation Oncologist Near NY or Tristate Area
    Hi Aluo,

    I just recently finished my radiation treatment for Head & Neck cancer and I would highly recommend my radio oncologist. He was highly recommended to me by my ENT who discovered my cancer and guided me step by step through this whole process. My radio oncologist is located in Astoria, Queens. I live in Manhattan so it was a trek but they provided free car service back and forth which saved me a ton of money. Furthermore the whole staff went above and beyond to accommodate my needs. I asked if I could take Amifostene to relieve some of the side effects of radiation and they worked with my insurance company to pay for it. They also give a lot of free samples of various oral care products, nutrition supplements like Ensure and Juven, and skin creams.

    He trained at Memorial Sloan Kettering and he uses the IMRT machine.

    I don't know if I'm allowed to post his information publicly but if I am I'll be more than happy to post his name, address and phone number. If not send me an email and I'll give it to you.

    Chryssi
  • kingcole42005
    kingcole42005 Member Posts: 178
    #11
    Johns Hopkins in Baltimore
    Johns Hopkins in Baltimore. My doctor at UCSF just moved there. He is head of the department and he is a brilliant physician. His name is Dr. David Eisele, pronounced eyesly He is one of the head and neck cancer gods in our weird world of cancer. Top of his field. If you go to him tell him Shelly Cole said hi from California! You won't regret it. I cried when he told me he was leaving. He's the best doctor I ever had. Here's a link: http://www.hopkinsmedicine.org/news/media/releases/david_eisele_named_director_of_otolaryngology__head_and_neck_surgery_at_the_johns_hopkins_hospital
  • adventurebob
    adventurebob Member Posts: 691
    #12
    Why New York?
    If you find something awesome near home then that is wonderful. If not, then why not go where the best treatment is? I have been more than pleased with the treatment I received at Marin Cancer Institute. After much research though I would go to the Block Center for Cancer Treatment in Illinois. They combine alternative and conventional treatment. They also seem to be at the front-line of research. Check out Keith Block's book "Life Over Cancer". Since this is a life or death kind of thing why not allow yourself to go where the best treatment is? This one time; give yourself only the best.

    AB

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