Apr 16, 2012 - 6:23 am
I'm looking to compare notes with anyone who has Chromophobe RCC that has become sarcomatoid. I don't want to be knocked down in the rush, so please don't all flock here at once :)
In the event that there's anyone out there who has heavily necrotic, metastatic, sarcomatoid chromophobe RCC I'd be happy to make contact sooner rather than later.
We already have threads for non-sarcomatoid Chromophobe and for non-Chromophobe sarcomatoid so I'd appreciate it if this thread is limited to messages where both of these histological features apply.
There is a small amount of relevant data on Cancer Compass and on KIDNEY-ONC but almost nothing recent. A current paper indicates that Pazopanib (Votrient) may hold some promise for such cases but I'm keen to garner all the information i can on this very rare and aggressive, de-differentiated cell type.