So glad I found this forum, I couldn't find many forums on this type of cancer that would teach me something, you all are helping to educate me. So let me begin..........
Routine colonoscopy, they found two polyps, I was diagnosed with invasive squamous cell carincoma, margins uninvolved. The first copy I got there was no staging, called the patholigist who did the staging and demanded he do that and also the size of the tumor.
Staging is as follows pT1, pNX, pMx. Tumor sized is 0.6cm.
The tumor with cancer was found distal rectal, left anterior quadrant. Other polyp was fine not cancer. I have also sent my path slide to be reviewed for a second opinion.
I have also fired my surgeon......he lost my path report, he recieved the report on March 12th, lost it, found it, called me on April 6 with the old need to make appt to talk about your path results.....wasn't going to wait so went to the hospital and got the results myself.
I have had 3 opinions, dumbass surgeon (sorry I swear alot and I am still mad at him) said I need nothing, just checking me every 3 months, etc.
I happen to be fortunate to have a university where I live with a great Cancer Hospital, they said chemoradition therapy (6weeks) also going to do all the tests (pet, ct, chest etc)
We also have a private cancer instituation highly reputable and they told me the same thing. I have no risk factors or so I thought except for smoking and I don't do that anymore but I only stopped 6 months ago. I have never been diagnosed with HPV but the doctor told me that I wouldn't necessarliy know that I have it and with this type they do think that it could be from this.
All that I have talked to have said that they feel this has been caught early, and with treatment is curable, which is what helps me stay postive, but let me tell you I am still scared also scared to get chemo/radiation
Oh and I hate to admit this but why do I not want people to know that I have this type of cancer and I mad at myself...I know this needs to be talked about but I'll deal with that after my treatments need to focus on being positive, laughing, and getting thru treatment!
And I am hear to tell you I am going to laught myself thru this!
Ok, this is where you all come in. PEOPLE WHO TRULY KNOW WHAT I'M FEELING. Any and all all advice most welcome about anything to do with the cancer no one talks about LOL....ok maybe thats a little dramatic. CHemo/radiation tips......I am worried about weight loss, I would just love to hear from you all.
Sorry so long and thanks to everyone who reads this, sending alot of love and hugs!!!!