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Lifes a Beach ! Stage IV

Dapsterd's picture
Dapsterd
Posts: 291
Joined: Jun 2010

Hello Family.....

Saw Doc Tuesday, scans are now verified "face to face" .. all NED, brain and body!

I have had some constant back pain..and of course the internet describes me perfectly!
So of course....my thinking is I have cancer mets now in the bones!!

Doc says CT does not indicate any bone activity, but to help me through, she ordered a bone scan and took some blood, and wants me to see a social worker and join a support group, to help with the pshychologal effects of cancer.
Funny, I agree with her! So we are moving forward with that.

Doc said "go enjoy your summer", you are clear for now!

Best wishes to all!! (keep you posted on the bone scan)

Dave
49 yr old, Stage IV Adeno-Car w/brain mets

dennycee
Posts: 657
Joined: Mar 2011

I am glad that you are considering a group for survivors, I get a lot out of the group I go to. Also, there are 2 programs that I know of for post treatment survivors. Both are sponsored by grants from the Lance Armstrong Foundation. Livestrong is offered through the YMCA and Cancer Transitions which is offered through the Cancer Support Centers or Gilda's Clubs. Transitions is about to be offered on line too with a weekly interactive Saturday program. The programs were developed because Armstrong was disappointed to learn that there were no programs available to him after treatment.

http://www.livestrong.org/What-We-Do/Our-Actions/Programs-Partnerships/LIVESTRONG-at-the-YMCA

http://www.cancersupportcommunity.org/MainMenu/News/Recent-News/Seeking-Volunteers-for-Pilot-Program-Cancer-Transitions.pdf

Both programs are free and open to both men and women.

grannylove
Posts: 183
Joined: Apr 2011

coming your way for sure Dave! So glad your news "face to face" was NED!!!! Love hearing those words. I know it is such a relief! Good idea for follow up support group. We deal with alot of anxieties.....not just at scan time but each ache and pain we feel. Looks like the Sunshine State is on your agenda heh? Life is good and we are blessed to be able to share. Keep us posted Brother and again...congratulations on your wonderful news. Cheryl

AlanRinHBG
Posts: 120
Joined: May 2011

I'm happy for the good news. NED is what we all want to hear. I also get it about the group. If you have one in the area, give it a go. All we have around here is a bunch of them all over the place for ladies and breast cancer. I did see a group for guys and prostate cancer. Talking it out with other survivors is so great. Nobody gets it like we do. It helps alot. You'll get alot out of it but more importantly you'll be helping others cope as well. There's real satisfaction with that.

z's picture
z
Posts: 1249
Joined: May 2009

Wonderful News! I wish you continued wonderful news! Lori

Prsartist3
Posts: 9
Joined: Apr 2012

Sorry, but what is NED?

Ex_Rock_n_Roller's picture
Ex_Rock_n_Roller
Posts: 268
Joined: Mar 2011

... No Evidence of Disease. My onco seems to prefer NEC, which doesn't have the same ring to it, but is probably more precise.

Dave, at the risk of repeating myself ... Oh, what the heck : YOU ARE THE MAN! Get out there and do some stuff! Mojo regarding the bone scan.

Let us know if you get into the survivor group thing, and how it works out. In our area, it seems as though most of them are made up of people who have one of the varieties from which a vast majority of people survive a long time, so I haven't been too convinced they'd have a lot of utility for me.

Unfortunately, I've had the "good" fortune to have a couple friends, family and work, who are also fighting the Big C, so I've kinda gone with a "do it yourself" survivor group up to now (not counting y'all, that is).

Ex_Rock_n_Roller's picture
Ex_Rock_n_Roller
Posts: 268
Joined: Mar 2011

Dapsterd's picture
Dapsterd
Posts: 291
Joined: Jun 2010

Good morning Family! I may have spoke too soon on the NED.....I had a bobe scan due to some pain in my back, and it showed some "abnormal" areas in the upper spine according to the Doc. Will get MRI this week.

Everything I know (or dont know!) tells me it is bone mets to the spine....what a drag.

I will await the scan and Doc's words.

I am running out of places the LC tends to invade!!!

Just have to live....One scan at a time !

Keep u posted...
Dave

z's picture
z
Posts: 1249
Joined: May 2009

I want you to be totally wrong, and hopefully it will be wear and tear on your body, as we age, just inflammation. Lori

dennycee
Posts: 657
Joined: Mar 2011

I hope it is just some kind of inflammation. From another of your entries, I think you are here in Michigan. I had checked in on this thread to tell you about 2 support groups in s.e. mich and read your news. If you are looking for groups there are mixed cancer support groups in Ann Arbor at the Cancer Support Community and in Royal Oak at the Gildas Club.

My best to you,
Denny

lekkerone
Posts: 199
Joined: Jan 2011

I also want you to be very very wrong. Stay strong and know that we are here for you. Diane

Dapsterd's picture
Dapsterd
Posts: 291
Joined: Jun 2010

Thanx Denny....I am looking into Gildas Club.
MRI on spine Tomorrow, Doc says bone scan indicates "abnormalities".

I go to Henry Ford-Josephine Ford Cancer Ctr. I like them and I think it is a good hospital.

We will see !!!!!

Thanx again..>Dave

Rosi's picture
Rosi
Posts: 69
Joined: Dec 2009

Dapsted, Honey child just go ONE DAY AT A TIME God is always with you.

dennycee
Posts: 657
Joined: Mar 2011

When my mom was dx with lc there was a monthly lc group and a weekly mixed support. Hope all works out well.

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