CSN Login
Members Online: 10

initial results on Thursday

kimberly sue 63's picture
kimberly sue 63
Posts: 396
Joined: Apr 2012

Tomorrow I return to see my surgeon/oncologist 2 weeks post my original surgery. It is the day that I get the full report on my pathology results. In my brain, I keep hoping for negative results, thinking this was all a mistake. However, I remember what my two surgeons said after surgery and they were preparing me to expect malignancy.
So wish me luck and send good karma in the air waves to give me strength for tomorrows appointment!!

Mwee's picture
Mwee
Posts: 1316
Joined: Nov 2009

and we'll be waiting to hear ........ (((HUGS))) Maria

Cafewoman53's picture
Cafewoman53
Posts: 735
Joined: Jul 2010

Sending positive thought to you, let us know how it goes.
Colleen

undertreatment2012
Posts: 126
Joined: Mar 2012

wishing for minimal everything!!! will be waiting to hear

AnneBehymer's picture
AnneBehymer
Posts: 739
Joined: Jul 2011

don't brorrow trouble from tomorrow we have enough to deal with today. Wait until you get the full report but know you will find out what all of us found out. We are a lot tougher than we thought and that we ever thought we could be. You also have something already going your way and that is that you have found this site. I could only imagine how much worst my walk through cancer would be if not for this site. Please come back and let us know I am praying for you not having cancer that is always our prayer but if you do we are always here for you little or small bring all your worries here.

Love, Hugs, and prayer
Anne

debrajo's picture
debrajo
Posts: 755
Joined: Sep 2011

Wishing and praying for all good results! Just remember, ALL things work to the GOOD for those that love God! Even the bad has a reason...we just don't know what it is. Best, Debrajo

lovesanimals's picture
lovesanimals
Posts: 1237
Joined: Sep 2011

and sending good karma and good thoughts your way! Please keep us posted.

Kelly

garden gal
Posts: 212
Joined: Nov 2010

your way. Praying for you. Kathy

Radioactive34's picture
Radioactive34
Posts: 387
Joined: May 2011

Praying for the best news possible.....hugs

kimberly sue 63's picture
kimberly sue 63
Posts: 396
Joined: Apr 2012

Well, results are in...I have been staged with serous papillary carcinoma stage IIIc. The only abdominal lesions were within the omentum,ovaries, and fallopian tubes and that was all removed.I had nodes on my diaphragm that were quite small, but the pathology of those was negative. I had positive abdominal washings which is a given. The good news is that all of my lymph nodes were clean. My oncologist is confident we can keep it under control and my type is very receptive to the chemo-therapuetic agents. So all in all it is a good result for ovarian cancer....but the sense of doom is still there!! The prospect of chrmotherapy is overwhelming.
She (my oncologist) wants to chemo-dense treatment which means day one I get carbo/taxol, then weekly taxol. This is the cycle of 3 weeks. Has any one done it that way?

mopar
Posts: 1950
Joined: May 2003

All clean lymph nodes - that's wonderful! Your oncologist sounds positive and I hope that you are, too. Yes, the diagnosis is still a lot to absorb. But you have a great support system here and lots of shoulders to lean on. I've never had that type of treatment cycle, but maybe someone else here has.

Thank you so much for updating us. There is much to be grateful for - sending prayers and lots of (((HUGS)))!!
Monika

kimberly sue 63's picture
kimberly sue 63
Posts: 396
Joined: Apr 2012

Thank you for telling me to be positive. It is hard to feel positive when the word cancer is made into a reality. However, I decided if I have to go thru this, I'm doing it with dignity and class. Just spent an hour ordering head scarfs, eyebrows,and eyelashes; and ovarian cancer support necklaces for me and my girls!sometimes shopping can make you feel better!!!

undertreatment2012
Posts: 126
Joined: Mar 2012

you seem so much more upbeat now that the wait is over. Still sorry you have to be here with us. I am sorry any of us are. But now, just like ordering your scarves and jewelry you are ready to dive in. Stay strong Teal sister!

undertreatment2012
Posts: 126
Joined: Mar 2012

you seem so much more upbeat now that the wait is over. Still sorry you have to be here with us. I am sorry any of us are. But now, just like ordering your scarves and jewelry you are ready to dive in. Stay strong Teal sister!

kimberly sue 63's picture
kimberly sue 63
Posts: 396
Joined: Apr 2012

But I must say I do feel better to have the pathology report back and I know now exactly what we are dealing with. Next hurdle is the chemo....
I miss work and really want to return, knowing the start of chemo and it is going to be weekly makes me feel It may be some time before I get back.

There are so many things we all have had to give up.

lovesanimals's picture
lovesanimals
Posts: 1237
Joined: Sep 2011

We know how scary it is to get the cancer diagnosis but the clean lymph nodes and your oncologist's confidence are good news. You'll probably want to play it by ear in terms of when you'll return to work. In the meantime, let chemo kick your cancer's butt! Please keep us posted.

Take care,
Kelly

undertreatment2012
Posts: 126
Joined: Mar 2012

how many treatments to you have to have? Did you say? And look at this time off work as a well desearved rest and just let it go. You will go back, which sounds like is your plan. But for now, try to forget about work and take care of you.

kimberly sue 63's picture
kimberly sue 63
Posts: 396
Joined: Apr 2012

Well my doc wants chemo -dense treatments....meaning first week carbo/taxol, 2nd and 3rd week only taxol then repeat the cycle on week 4. total cycles are 6 which means 18 weeks of chemo.It is apparently the same dose given every three weeks, but now more often. So it is weekly chemo. I have been doing the research on chemo-dense treatments and the theory is that cancer cells are very proliferative in the early life cycle of the cancer cell. Also during this rapid multiplication the cell is most vulnerable so chemo is very affective during the cancer cells early proliferation. So going 3 weeks without chemo may allow some cells to get a little older and thus possibly not as responsive to the chemotherapy. Weekly chemo is not for everyone and needs to be individualized. I think it can be quite taxing on the system, but I'm young and healthy so hopefully I will tolerate it. There may be episodes that chemo is delayed due to blood counts.
However, my gyn/oncologist surgeon is nearly two hours away from me, so she is setting chemo up much closer to me. So now I am awaiting to meet my new oncologist locally who will manage the chemo. He comes with good credentials and he is into all the research and is on the cutting edge of new treatments that should be approved by next year. So I am anxious to meet him.

Kimmyanne
Posts: 21
Joined: Mar 2012

I forgot to mention that after my initial chemo is done I will be receiving avastin maitenance for about 9 months. Will you be doing that aswell?

kimberly sue 63's picture
kimberly sue 63
Posts: 396
Joined: Apr 2012

They have not discussed that yet.

LoveButterflies's picture
LoveButterflies
Posts: 73
Joined: Feb 2012

I had the exact same diagnosis and treatment as you Kimberly. The weekly treatments were tough. Just when I felt I started feeling better, it was time for another treatment. But, thank God I didn't have hardly any nausea or vomiting. I did have to have a blood transfusion about half way through because my RBC were so low. But, once I did that, I started to feel much better and finished strong. I'm on Avastin every 3 weeks now until October. I have another CT scan on Tuesday and hope everything will be NED just like the last one.

Stay strong. Come to the board often for encouragement or simply to vent. We're praying for you and sending you (((hugs))).

Carmen

kimberly sue 63's picture
kimberly sue 63
Posts: 396
Joined: Apr 2012

Carmen, How long have you been dealing with OVCA.

LoveButterflies's picture
LoveButterflies
Posts: 73
Joined: Feb 2012

Not long, but it truly seems like forever. I was diagnosed on 6/28/11, thought I had appendicitis, I wish I did now! I finished my weekly chemo mid December and since then have been on Avastin every 3 weeks as maintenance therapy. I'm on a clinical trial for Avastin and it will end October 2012. A total of 15 months of treatment. I was declared in remission in December with a clear scan. I go for another scan tomorrow and I'm praying that it will still be NED. It should be since my ca 125 was 18 last month.

Hope this helps.

Carmen

kimberly sue 63's picture
kimberly sue 63
Posts: 396
Joined: Apr 2012

I had two episodes of pain a week apart and thought initially I was having an appendicitis. After the 2nd episode it did not resolve as quickly so then I thought maybe a kidney stone. I was leaving the next day for Houston for a conference so the day before I had the Dr. I work with order me a pelvic and abdominal xray. No stones, but that is how I found the enlarged ovary and started my work up which lead to surgery and then my diagnosis.

kimberly sue 63's picture
kimberly sue 63
Posts: 396
Joined: Apr 2012

I hope you maintain that sweet status of NED!

Mwee's picture
Mwee
Posts: 1316
Joined: Nov 2009

and gives us back some sense of control. I've undergone lots of chemo and I find that preparing for it helps me alot. I stock up on DVDs and audiobooks from the library, prepare food in advance and fill the fridge with healthy, easy to grab snacks. Sorry you have to be away from your work, but as you probably tell your patients.... now your job is to take care of yourself so you can get back healthy and strong.
(((HUGS))) Maria

kimberly sue 63's picture
kimberly sue 63
Posts: 396
Joined: Apr 2012

That is what my nursing staff is telling me..."remember what you tell your patients! Now it is time to follow your own advice!"

carolenk's picture
carolenk
Posts: 909
Joined: Feb 2011

Kimberly Sue

I'm sorry your path report showed cancer after all. I had started off with the dose-dense taxol but couldn't tolerate it. The weekly dose is less but the cumulative dose is more than if the taxol were given only every 3 weeks.

There was new research a couple of years ago that concluded that the better results from the dose dense taxol were possibly from an anti-angiogenic effect. If you look into "metronomic chemotherapy," you will find that it also has promising anti-angiogenic results; however, that daily dosing approach has not been adopted as first-line therapy.

You may want to discuss whether or not your oncologist has any thoughts on "maintenance chemo" which would begin if/when you reach NED status. Some women begin Avastin every 3 weeks & others have taken monthly taxol treatments (although I have not heard of many women recently who are doing maintenance with taxol).

Your hair will probably be gone between 2-3 weeks after your first taxol treatment. There is a free Look Good Feel Better class offered by the American Cancer Society where you can learn about head covering options & how to draw on eyebrows--it's worth going to even if you aren't someone who wears makeup.

If you are going with head scarves, you will want to get a cotton cap to wear UNDER the scarf--otherwise, the scarf can slide around & slide off your bald head & become a nuisance. I went thru chemo in the winter & just went with the wig & sleeping caps.

I don't know if you are opting for a port or not. I highly recommend one. It seems like chemo trashes our veins and a port is something that will make life a little easier for you.

Best wishes to you on the journey back to wellness.

kimberly sue 63's picture
kimberly sue 63
Posts: 396
Joined: Apr 2012

Thank you for words of experience and wisdom.

I have already bought scarfs and the underneath cap. I decided since I am going through it in the summer scarfs would be more comfortable. Everything I heard about wigs is they are so hot. I have bought eyebrows and lashes that I am going to try. I decided if I have to go through these awful treatments....I was going to do it looking good and classy! I admit I am pretty vain and the loss of hair is a challenge for me.

I am also looking into and reading about what I can do to keep my body in optimal shape to fight this. I have already started diet changes. I also bought the Anti-cancer book and so far it is speaking to me and empowering me that I do not have to let cancer rule. I also bought the "Cancer-fighting Kitchen". I read a little of it and also find it to be something of empowerment. It actually has recipes to help reduce nausea from chemo, foods and herbs to stimulate the appetite, and overall food ways to keep your body in optimal health.

LaundryQueen's picture
LaundryQueen
Posts: 682
Joined: Mar 2011

I think you are on the right track by making dietary changes--not everyone is in agreement on the subject. Diet seems to be a very HOT subject on any cancer discussion board! I think each person has to do what they feel is best for them.

It must be hard for you to have to assume the role of "cancer patient." I imagine you have already been all over the Internet by now & at some point you will get to the place where you realize you are NOT a statistic. On the other hand, you ARE an uncontrolled experiment where n = 1.

I want to throw in my support for having a port--it is a minor surgery with a big benefit. I only got chemo thru my port & my veins became "hard to stick" anyway!

kimberly sue 63's picture
kimberly sue 63
Posts: 396
Joined: Apr 2012

Yes it is hard for me to accept the cancer diagnosis, which i am sure everyone has had this transition. At times it seems surreal. 6 weeks ago I was an active busy woman with a busy internal med and pain practice and enjoying life with my husband and dogs. And enjoying visits from our girls.
6 weeks later.....I have had major abdominal surgery and a diagnosis of ovarian cancer. I question why...
I have episodes where I just cry, and then I try to be strong and push to remember the positive aspects of my current situation.
I treat patients, Ive never had to be the patient...

I have learned how fantastic my husband is...He has always been great, but he really has stepped up to the challenge this time. I've learned that my four daughters have grown into four beautiful women with deep compassion and strength. And I have felt the kindness, friendship and love from my work companions and our friends. It brings me to tears every time I think about it.

Kimmyanne
Posts: 21
Joined: Mar 2012

In jan of this year, during surgery for a removal of an 18cm cyst and one ovary they found out tht the cyst had grown to 30cm and that i had ovarian cancer.(2nd surgery i ws staged and biopsied) I am stage 3c and actually will be receiving my 5th chemo treatment next week. I receive weekly chemo. When they told me I would be receiving chemo everyweek my jaw dropped. Initially it is scary at first but afterwards you get used to it. I'm not sure what they do anywhere else but before they start ea chemo treatment for me, they put in zantac zofron for nausea and benedryl and usually the benedryl makes me real sleepy. I start ea cycle with avastin taxol/carboplatin then 2nd and 3rd week of the cycle its just taxol. I have only had minimal side effects so far my blood count has went down so i will be receiving neupogen shots. They say everyone is diff you'll be ok. You'll probably meet other women with ovarian cancer. It is def scary to think of chemo, but you seem strong.

JoWin615's picture
JoWin615
Posts: 137
Joined: Feb 2011

I wore scarves during my baldness (wig = too hot for Florida!), and I discovered that a wide, stretchy headband worn under the scarf kept it from slipping.

Cheers,
Jo

lulu1010's picture
lulu1010
Posts: 367
Joined: Feb 2011

So sorry for your diagnosis. I am also an RN and though a little older than you was very healthy and had so many plans and things to look forward to. I was diagnosed Aug 2010 with 3c serous pap also. Actually I had Primary Peritoneal but it was from the ovary cell. It was not in the ovary or lymph nodes but scattered outside the colon. I did 4 Carbo treatments before the surgery and then I did the dense dose carbo/taxol for 6 more cycles. I am being treated at Cleveland Clinic. I did not work for about 7 months. I then went back PRN. I did a vaccine trial after chemo. Was in remission for 9 mos. In March of this year they found 3 small tumors near my colon. I am now on Doxil. I decided not to go back to work when I had the recurrance but now I am sorry I made that decision. Dr says I could be stable on Doxil for years and I really need work to take my mind off the cancer every once and a while. Things are not all bad. Doxil does not make you sick or lose hair and I am vacationing in Maui this week.
I know how hard it is. I think I cry more with the recurrance.It all seems so unfair. I was so sure I had it beat. Chemo worked very well for me the first time and I am trying to be much more positive and understand that I can live with the disease. I am also BRCA 2 positive which makes me more sensitive to chemo which is good.

I have heard of many with 3c and even stage 4 that have done well and lived for many many years. I pray yours is gone for good after the chemo. (I had been sick for a long time before diagnosis so it had spread around the peritoneum.)I love your positive attitude. That is the most important thing.

lulu1010's picture
lulu1010
Posts: 367
Joined: Feb 2011

So sorry for your diagnosis. I am also an RN and though a little older than you was very healthy and had so many plans and things to look forward to. I was diagnosed Aug 2010 with 3c serous pap also. Actually I had Primary Peritoneal but it was from the ovary cell. It was not in the ovary or lymph nodes but scattered outside the colon. I did 4 Carbo treatments before the surgery and then I did the dense dose carbo/taxol for 6 more cycles. I am being treated at Cleveland Clinic. I did not work for about 7 months. I then went back PRN. I did a vaccine trial after chemo. Was in remission for 9 mos. In March of this year they found 3 small tumors near my colon. I am now on Doxil. I decided not to go back to work when I had the recurrance but now I am sorry I made that decision. Dr says I could be stable on Doxil for years and I really need work to take my mind off the cancer every once and a while. Things are not all bad. Doxil does not make you sick or lose hair and I am vacationing in Maui this week.
I know how hard it is. I think I cry more with the recurrance.It all seems so unfair. I was so sure I had it beat. Chemo worked very well for me the first time and I am trying to be much more positive and understand that I can live with the disease. I am also BRCA 2 positive which makes me more sensitive to chemo which is good.

I have heard of many with 3c and even stage 4 that have done well and lived for many many years. I pray yours is gone for good after the chemo. (I had been sick for a long time before diagnosis so it had spread around the peritoneum.)I love your positive attitude. That is the most important thing.

Cafewoman53's picture
Cafewoman53
Posts: 735
Joined: Jul 2010

They have a website where you can get a beautiful bracelet for being a "Teal Princess". It is really pretty. Good luck with your treatment it will go by faster than you think.
Colleen

whiterose
Posts: 89
Joined: Jan 2012

Is this "Dose-Dense"? When I had my chemo I had taxol every week for three weeks. Then a week off. On one of those taxol treatments, they infused a large dose of carboplatin also. (So, one out of every three weeks.) This went on for 8 cycles. I've read that other people had their treatments once every three weeks. So, does that mean two weeks off? I'm confused.

carolenk's picture
carolenk
Posts: 909
Joined: Feb 2011

Whiterose

I would consider your treatment as "dose-dense taxol" modified to allow a week to recover from the chemo before starting another cycle. I watched a YouTube video where a doctor was excited about what the Japanese had researched using an old drug in a new way.

This doctor commented that the dose-dense approach had a better overall survival rate, too.

This doctor (on YouTube) said that the oncologists like to wait until TWO studies have been done that confirm these results before they adopt a new way of doing chemo. I don't think a second study has been published (or done yet); however, GYN/Oncs are jumping on the band wagon with the "dose-dense taxol" already--maybe because the Japanese study (published in The Lancet) had a lot of validity.

Linda Procopio (may she rest in peace) posted info about intraperitoneal (IP) chemo & the Japanese research on dose dense taxol on this discussion board in February 2011; if you want to search for it, try using the words "dose dense taxol."

whiterose
Posts: 89
Joined: Jan 2012

Thanks carolenk!!

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network