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looking on the grim side but keepin hope alive

renal scare 57
Posts: 16
Joined: Feb 2012

sorry havent been on in a bit got results not lookin real good found three at esophagus,one at top of lung one at diaphram, 2 or 3 goin down back and one where my kidney was just removed can you believe it speechless to say but life goes on went to the radiation dr they gonna start radiation on my arm did i mention its in the soft tissue cell ,in the back and at the side said my lungs looked as though someone threw a hand full of salt at me and where it landed turned to cancer. said could control the pain thats about it. but do give up hope. its hard not too but i suppose its just so advanced that it is running rampage, but as you are readin this please no one give up hope, because this site is giving me hope still so just eveeryone keep on pushing i know i am

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

Sorry to hear the news isn't better but SO glad to see you're not letting it beat you down.

I've also just started a new thread showing some fascinating new research findings which demonstrate how rapid the progress is in increasing our understanding of the sneaky disease. You may want to cast an eye over it because it reveals one of the main problems that has been defying progress and so it gives a picture of the way ahead.

garym's picture
garym
Posts: 1651
Joined: Nov 2009

RS57,

To quote Yogi Berra, "It ain't over 'til its over!", keep fighting. There are drugs and trials available that may extend your life until the "magic bullet" is discovered, MDX-1106 documented here by foxhd shows great promise and has kept the Grim Reaper at bay, have you asked your docs about trying to get into this trial, or others? Have you considered Gerald White's MAARS program? My point is that as long as you are still breathing you have options so don't give up! I apologize if this sounds too blunt, I don't mean it to be.

Hang in there,

Gary

foxhd's picture
foxhd
Posts: 1708
Joined: Oct 2011

One of the first things I read and remember from this forum was to hang tough and not give up hope because the cure may be just around the corner. I've heard some talk that the MDX is looking so promising that they want to push it through for FDA approval long before the studies are complete. RS57, keep looking at your options. Remember that 2 cancer facilities said they couldn't help me either. Neither was able to provide the treatments that the third was able to. And I just finished my 3 mile run after weight training this morning. I might be dead now if I hadn't kept looking. Sure glad I hung in there. You need to also.

Fox

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

Even you, on your own, couldn't be giving it that much momentum so maybe it really is a silver bullet.

foxhd's picture
foxhd
Posts: 1708
Joined: Oct 2011

I think a silver bullet is for killing vampires. We're working on the "MAGIC" bullet!

littledarlin's picture
littledarlin
Posts: 102
Joined: Mar 2012

We have not met yet but I want to say so sorry to hear the news..Like Fox,and Tex, and Gary and others have said, they are coming up with new treatments all the time and your magic bullet may be just around the corner..There is always hope..

Keep fighting..
LD...

cindygodfrey2
Posts: 38
Joined: Mar 2012

But what a wonderful show of support. this group is great. Best to you all!

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

"The Magic Bullet" was the cure for syphilis!

I believe the term 'magic bullet' has been adopted by default by people unfamiliar with the significance of the much older term - the silver bullet - which is what we all seek to slay a monster.

Limelife50's picture
Limelife50
Posts: 405
Joined: Nov 2011

I thought it was a wooden stake that was used on vampires

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

Absolutely correct Mike, but there's been considerable progress in treatment over the last few centuries, with new approaches emerging!

The silver bullet may be the more elegant method but I've always found a good sharp wooden stake the best guarantee against recurrence.

jam66
Posts: 55
Joined: Jun 2011

Hi RS,

Sorry to hear of the news and the stress that goes along with it. I agree with everyone here...it's so important to keep trying. It seems that of the many success stories I've read on this board, there is one common thread - us, the patients, doing as much as we can to control the situation. Whether it's finding a new doctor, looking into research trials, following Gerald White's program, changing diet.......it all starts with us. I think taking control, even if just a little bit, does so much.
And I also agree They are so close to a cure. So, really, hang in there!

Jennifer

foxhd's picture
foxhd
Posts: 1708
Joined: Oct 2011

RS57, listen to Jennifer.

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