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Petscan nightmare I just sat there and cried

AnneBehymer's picture
AnneBehymer
Posts: 739
Joined: Jul 2011

Once again my petscan did not happen, when I got there they went to take my stats and it showed my blood pressure down to 80/45 and we knew that was not right so she took it again it was 83/45 lol so she said it must be the cup so they gave me the medication I sat there without saying a word for one hour then back to the room. They got me under with no problems, the breathing tube went in fine and every thing was going very well. I woke up about 1 1/2 hours late to fine out that I did not get the petscan, I asked why and he said they could not stablelize my blood pressure it would be at 59/25 when I came to it was like 45/25 and again he knew by looking at me it was not right. He said it was the blood pressure mechaine and my size, I fit into the mechaine fine but my arms would touch the wall so when he tried to inflate the the arm cup it would press against the mechaine and would not inflate. I was so mortified I went from a 6x to a 3x I was over 400 ponds and now I am 360 pounds which is 9 pounds lighter than three weeks ago. It just crushed me and even though I did not want to but the tears came anyway. The nurse, technition, and doctor all tried to tell me it was ok it was not a problem but you know it just hurt I felt like a hug fat pig and when I got up this morning I did not feel that way at all I put on a shirt that I have not worn in 5 years because I was so big so I left the house feeling so good about the weight I lost. They are going to try again but putting a lead into my artery to monitor my blood preassure that way but they have to bring in a different mechaine and they would need about three more nurses. so I have to wait to see if my doctor will let me try again I sent an email telling them I so want to do this so we leave no stone unturned. I am going to call John from my insurance and plead with him for another one which should be fine thay have been good with about it so far. Thanks for letting me vent.

Love, Hugs, and today tears
Anne

lovesanimals's picture
lovesanimals
Posts: 1320
Joined: Sep 2011

I'm so, so sorry that your experience with the petscan today was not good.:( I know you don't feel good about yourself right now but I think you've accomplished a lot by losing over 40 pounds and counting. I'm also glad that your doctor and the others are going to try something different next time, so that you can get this scan done.

Sending you good thoughts and prayers,
Kelly

AnneBehymer's picture
AnneBehymer
Posts: 739
Joined: Jul 2011

Thank you Kelly it is really over 60 pounds because I was about 410-420 pounds. Thank you for your kind words and you are one I know that always lifts people up when they are down and I love that about you. I will let you know if I can get it done there are some thing the hospital has to look at to see if they can do it, we have to see if my doctor even wants to try again, and then I have to talk with my insurance to see if they will approve it again. But I will post what happens again thanks for lifting me up.

Anne

karen1951's picture
karen1951
Posts: 103
Joined: Oct 2011

dear anne......my thoughts and prayers are with you...keep us posted.
take care.....karen

kimberly sue 63's picture
kimberly sue 63
Posts: 413
Joined: Apr 2012

Anne, I am sorry to hear about your experience. I wish it would have gone more smoothly for you. I am sure just continuing to wait has to be agonizing for you. You should do something for yourself today. Do something that gives you pleasure and relaxation. You deserve it!!

mopar
Posts: 1954
Joined: May 2003

So sorry you've had such an awful experience. I know how it is to get all 'psyched' up for something, telling yourself when you wake up it will be over, only to find out you're back to square-one. I'm sure they'll come up with another way to do this. Certainly, you can't be the only one who's had problems with this test. As for the BP, my husband always has to ask for a different cuff. His blood pressure always shows high when they use the regular one. But he's very muscular, and the larger cuff is better suited to him. Sure enough, when they switch cuffs, it's much better.

Try not to be so down on yourself. Losing weight is a process - sometimes a few steps forward then a few backward. But you've made progress, and that's important. I know of someone who has some struggles too, mostly due to injuries sustained in an auto accident many years ago. So it's been a long process. But I always tell him to focus on the things he CAN do, not what he 'can't' do. One day at a time.

Sending hugs and prayers, and that you're not facing this disease again. Keep us informed, Anne.

Monika

:)

Mwee's picture
Mwee
Posts: 1323
Joined: Nov 2009

Vent away.... nightmare sounds about right! (((((((((HUGS)))))))))) Maria

AnneBehymer's picture
AnneBehymer
Posts: 739
Joined: Jul 2011

thanks everyone for lifting me up and am still a little down but I have pallaitive care coming today for a massage today and mybe that will help with how I am feeling. Last night when I finally got sittled I just needed to vent to my teal sisters. My mom was a great help she understood so much but I have made a connection here and just needed you love and support thank you for being there for me through all of this.

today
Love, Hugs, and Prayers
Anne

Radioactive34's picture
Radioactive34
Posts: 387
Joined: May 2011

Hugs and more hugs....stuff like this sucks. I prayed and prayed last night. The names on the boards kept going through my prayers. We are here.

debrajo's picture
debrajo
Posts: 800
Joined: Sep 2011

Hi Anne, I am "stalking" from the UPSC board, but felt that I had to say I do know how you feel and how impressed I am that you lost sooo much weight! That is as good as getting a 5 on the ca125! I, too, am quite large and have to suffer so much indignities due to my being fat, not the least is that they did NOT stage or grade my UPSC due to my multiple "co-morbities"! They just figured to treat it aggressively and nothing else was said. I had to plow through my records to guesstimate that I have 1a-c. So you hang tough and fight them ever step of the way! An if one of those skinny-ninnies looks at you wrong, do what I did...I told her I could always sit on her! Keep smiling and losing weight! I actually GAINED 30 pounds on the chemo-steroids! Best, Debrajo

lovesanimals's picture
lovesanimals
Posts: 1320
Joined: Sep 2011

So glad you got a massage today and I hoped it helped you feel better. Thank you for the really nice words. What I admire about you is that even though you are in pain, you are always ready to provide support and a "shoulder to cry on" for the other women here. All of the women on this board are simply terrific!

Kelly

AnneBehymer's picture
AnneBehymer
Posts: 739
Joined: Jul 2011

Again thank you all so much it does touch and heal my heart when so many show how much they care. Kelly thank you for your kind words I always try to read other post even if I am still in pain because maybe by helping some on else my pain will ease and you all have been so kind to me how could I not post.

Love, Hugs, and Prayer
Anne

AnneBehymer's picture
AnneBehymer
Posts: 739
Joined: Jul 2011

I use to say that or I would say I may be fat but your ugly and I can lose weight. Thanks for you support stalk me anytime I could use a laugh every so offten. I though was very angry that they just said oh let just treat her this way it's like you don't matter as much as a normal size person. Well we can get togeather and start just sitting of those skinny-ninnies.

Hugs, Love, and Prayers
Anne

debrajo's picture
debrajo
Posts: 800
Joined: Sep 2011

Oh Yeah! In reality we don't count or matter as much as thinner people. They think"Well, she half did this to herself so we will treat someone else who is more deserving". Even had a dr. tell me this...I fired him! We have to fight twice as hard just to get proper treatment! You want to stage a "sit-in" you just let me know and I'll be there. Guess you can tell I have anger issues!!!LOL E-mail me if you need a "fat-friend" at debraj856@gmail.com Best, Debrajo

Cafewoman53's picture
Cafewoman53
Posts: 739
Joined: Jul 2010

I am sorry you had to go thru that and not get your scan besides.Hang in there it will get done. You are doing great to be in pain and still lose weight, try to relax and not worry.
Colleen

carolenk's picture
carolenk
Posts: 909
Joined: Feb 2011

I'm really appalled by the way you were treated! I can't believe you were the first large person to be put into the PET scanner. The tecnician could have taken your blood pressure on one of your wrists instead of the usual place on the upper arm. I am so sorry you have to delay the test again. Hopefully, you will get good results when you finally do get tested.

kikz's picture
kikz
Posts: 1297
Joined: Jun 2010

and keeping it off is one of the hardest things a person can do. I have fought the battle since I was about 8 and have experienced all the taunting, stares and being made to feel different and ugly. Like you, I love the saying, "You can lose fat, but you can't lose ugly!" I believe being ugly has nothing to do with looks.

Please quit calling yourself names. I use to do that all the time. I hated the way I looked so why did I expect others to like it. And you know you would never treat a friend like that so why yourself? About 6 years ago during my much documented (I've posted about my break-up, reconciliation, etc.) drama, I lost about 70 pounds. I needed to lose a lot more but for some reason it changed how I felt about myself. I felt thin even though I was fully aware that I wasn't. I would walk around a store feeling so good and suddenly catch sight of myself in a mirror and say, oh yeah, I'm still fat. But I wasn't putting myself down. I'm still fat, so what?

Not too long ago when I was waiting for bloodwork, I started to notice women's butts as they walked by. I hope you don't think I am weird. I have always felt self-conscious about my J-Lo butt. But that day, for some reason I finally accepted it. I noticed a lot of women have no butt so I should be happy I do and own it. At yoga, the instructor has us massage our lower back and now I always gives my "buns" a little pat of appreciation. Okay, now you are going to think I'm weird.

Keep up the good fight and remember that there are a lot of people who are pulling for you.

Karen

JoWin615's picture
JoWin615
Posts: 143
Joined: Feb 2011

I can't believe all the things you are going through. You have my sympathy, and my prayers that everything will go fine for you next time. You are such a good and caring person. I appreciate all the supportive comments you make.

Cheers, Jo

AnneBehymer's picture
AnneBehymer
Posts: 739
Joined: Jul 2011

thank you so much if I ever feel someone is treating me like crap I am going to have all of you get them lol.

Love, Hugs, and Prayers
Anne

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