Apr 10, 2012 - 8:42 am
Have oncologist appointment in one week. Have fatigue,swollen nodes and leg bruising, and intestinal symptoms. When I saw him 2 months ago he said I need treatment and said he would probably recommend Treanda. The problem is they cannot treat me until my intestinal bacterial overgrowth problem is cleared up. I've had 3 rounds of mega antibiotics with no change in symptoms. Gastro doc is to call me today with his next plan. I also wonder (with great fear) whether the BEAST (aka: NHL) has moved into the small intestine! Maybe THAT is part of my symptoms... We know it's in my stomach and of course the small intestine is right there and is sort of a dead zone as far as testing- very hard to get to! They've tried everything they can (short of surgery) and have not found evidence of it. So part of me is thinking - go ahead and treat already!! and then the other part of me is not so eager...
Thanks for listening. Sometimes just venting helps. I like to always have a plan( I make lists for everything) and right now it all feels confused RE: my treatment plan. No ones fault- it just is the way it is right now.
In a week I'll know more and will keep you posted.
BIG hugs and prayers to all,